I have had a difficult time responding to this post. I tried it the first time about 4/28 and my computer battery died w/o warning and I lost it. I have been horribly busy, so I didn't try again for several days and then I got a message saying the site was having a "periodic check-up" and my post disappeared again, grrrr! I've been taking a lot of senior pictures for the procrastinators that waited until the last minute (May 7) but I am finally caught up! At least until I have to go back to work on Wed/Thurs. Last week I didn't even come home because I knew I was going to be called on duty again w/i 10 hours. My manager got quite upset over the fact that I had so many hours on duty when I don't think anyone familiar w/ my case is all that comfortable w/ me being at work in the first place. I could have called the Safety Hotline on gone over the head of the Manpower manager if I actually felt 'endangered', but strangely enough I actually felt pretty decent. I have been paying a price for overdoing it since then, though.
I did get a good opportunity to test my theory w/ the color saturation issue. I suspected that since my right eye (my bad one) is my dominant eye, I think that dominance factor is a big reason why I perceive color at a distance as washed out so much. Looking w/ both eyes at a signal at moderate to long distance it seems just as washed out as if I was only looking through my right eye, but if I close my right eye the color is more accurate. I still don't understand why this is so closely tied to distance. I can differentiate the colors at a normal distance for a car, just not at a safe distance for a train. One picture that I retouched while I was truly exhausted was very interesting though. I thought the sky looked washed out and ugly, so I airbrushed it and thought it looked nice and blue when I was finished, but when I looked at it again once I was rested and feeling better, I had turned the sky a lovely shade of lavender!
I have mentioned my eye issues to the doctors that I personally chose, as opposed to the ones my company sent me to. I have an appointment w/ the Optic Neurologist at the MS center on 7/9, but I wish he had better patient ratings. There don't seem to be a lot of choices in my area! I think the only thing they can do about ON is to offer IV Steroids, isn't it? I am not comfortable w/ steroids at all: they are totally contraindicated if I have Lyme's or really any other ongoing infection and since I definitely have an ongoing fever I think it is safe to assume that I have SOME sort of infection. And the bone loss issues really worry me, too. My hobbies are mostly of the variety that carry high risk for bone trauma, high speed equine sports, downhill skiing, and various motor sport racing. IF I ever get these problems under control, I would like to be able to engage in my hobbies w/o elevated risk for broken bones. I guess I need to at least find out for sure what is responsible for my vision issue, just in case it is something else more treatable, and if not taking steroids puts my vision at greater risk.
Sorry I missed this post. How did the appt go? Are they doing anything for the eye issues? Or don't you want to tell them due to your job?
Hope all is going well!
Love and hugs!
Val, sorry you're having color issues. I had that awhile back and can't imagine needing to drive. I had the shade over one eye thing going on too that Sidesteps described. Is your doctor addressing the eye problems?
I hope it gets better for you soon...
Laura
How was your appointment with the LLMD.? Did you have to travel far?
Maria,
I hope your husband is okay! He has had more than his share of health issues lately, too. I didn't even notice the color issues at first. I just couldn't understand why the engineer I was working w/ last fall could see the signals (color-wise) so much earlier than I could, with his thick glasses. My saturation issues seem to be much worse w/ the distance factor thrown in. Both yellow and red look kind of orange!
Tammy,
Thank you for your prayers! I definitely don't think I have had a change in my reading comp, (except on my absolute worst days combined w/ exhaustion) but since I didn't even take a test like that, I'm just not sure if that was an innocent mistake on their part, or intentionally billing for tests they didn't perform. I guess they can always claim short term memory loss on my part :)P I don't really know whether to consider the Dx in the doctor's notes official or what. He didn't TELL me I had MS, it just seemed pretty odd to put it in his notes. But I did tell him I would rather wait for the MRI's which are rescheduled for 5/5 to ask any questions. I don't know if that could have contributed to him NOT telling me?
Ricobard,
Thank you for clarifying my terminology and the whole Lyme issue! Niko has mentioned the term on this forum several times and I didn't realize I would be confusing people. :)
Sidesteps,
'Inching forward' is very well put! I would much rather sprint, but I'm trying to learn patience :) That is very interesting that the tonal difference can vary so much person to person. Red just washes out for me 'til it looks like an unripe tomato. I would much prefer the purple tone in my line of work, with a vehicle that takes more than 1/2 a mile to stop, my custom version of color issues couldn't get much worse! I was wondering specifically about the distance issue, but the more I think about it, most people probably don't try so hard to differentiate color at such a distance. Good thing I'm not too attached to this career! The pain thankfully hasn't approached the top of the pain scale for me since about January. Unfortunately it also seems to be the symptom most likely to recur for me. Again, probably my last choice, too bad we don't get to choose! My blurriness reminded me of looking through glasses with a fingerprint on them. I have a mild scotoma, too but at least it is in my peripheral vision, right where I need to have good vision to watch for deer and antelope while driving and that is a real problem where I live. It was noticeable yesterday in city traffic, too. I sure hope some healing occurs with that, but I assume the odds are not good as long as it has gone on, now.
Thanks guys! I think this Lyme path is worth pursuing. I am at least feeling hopeful at this point.
Hi Val, sounds like you are inching forward and doing well. That is good news!
Regarding ON? Pinks show to be more of a purple tone. Reds look darker in one eye vs the other. One thing I noticed which was weird was my right eye seemed to look like a shade came down over it. Like it was filtered through grey. Kinda blurry as well. The pain was behind my eye in the orbit and I'd rate it an 8 but I hear that those symptoms vary with each person. I have a scotoma now in the center of my field of vision now too.
I wish you the best...
An LLMD is a Lyme Literate Medical Doctor.
It is a term used by patients, not necessarily the doctors themselves. The good ones are affiliated with ILADS, a group of doctors of various specialties who believe Lyme Disease and its coinfections are much more complex and common than the establishment doctors say. They are criticized as not following science, but in reality, there is a lot of excellent science behind their assertions that Lyme testing interpretation is often inaccurate, that Lyme can persist following treatment with antibiotics, and that the disease presentation and symptoms are far more varied than was believed earlier. There is a shocking controversy in the medical community over Lyme and patients suffer as a result.
Many Lyme patients have to seek out these Lyme Literate doctors on our own, because so many doctors fail to recognize the late stage symptoms, and/or don't know how to treat it.
Good morning Val,
I am also glad your appt went well other than big change w/reading comp.:(
It seems as if things at work are going in your favor working 1 day a week but hopefully it won't always be 15hrs a day.
I'll be lifting you in prayer about Lyme test and w/upcoming MRI. I hope they resched.soon.
????Did you say you do have MS dx?
I'm the same as Maria, I do not recognize LLMD.
Glad to see you around here.:)
Have a blessed day!
Hugs and blessings,
Tammy:)
Hi i wondered where you were.
When I had my ON (which wasnt diagnosed at the time), I had terrible pain in my eye really bad sometimes it would shoot into my eyeball. I also found some colours on the T.V. did not look right and was always trying to adjust things.
Glad your physc results were fine.
What is an LLMD appointment? I dont recognise the abbreviations sorry being a bit dense lol.
Mike my husband is back ill again and having to have urgent endoscophy and full body scan.
big hugs. maria