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brain lesion's

hi I have a friend he has brain lesions his left side is weak he can't walk, we have been to many doctors have had many test, been to the mayo clinic they said they did every test they can think of but they still don't know what's wrong with him, it's going on a year now one day he was fine the next day he had problems talking and he started getting weak, he's had three brain biopsy's still they can not fine out whats wrong. need to find a doctor that will look further in to it not just give up on him like they all did.
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Avatar universal
I have done that took him to the er but still they just send him back. I don't know where else to look for doctors. he's going down hill and the doctors just don't care it's so hard for me to see this.  help!!!
Helpful - 0
551343 tn?1506830518
I think what Niko has posted well if you can find someone like this would make sense.

I just have no words to say. I cant believe in a 1st world country that this young man can be so badly neglected. Surely in the states there is some form of accountability to medical neglect?

I am so sad. He is giving up basically can you blame him.

I would steal him out of the home and take him to emergency hospital to get him checked out...this just cant be right he is undiagnosed.

Its truly mad....mariax
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1530171 tn?1448129593
Hey babybear.
Is there a chapter of Doctors without Borders or Doctors of the World in St Paul?
Sorry to butt in as you addressed to MrsAristotle, however I feel so bad
for your friend, I felt compelled to reply.
These  Doctors are usually a cut above the rest. I'm confident that should  you be able to contact them, they would easily offer to help him, without any hesitation at all. Back home(in Greece) I have Doctors of the World as tenants, and honestly they have inspired me greatly by their amazing compassion and commitment to their patients.
No comparison to any other Doctor I have ever come across!
The only thing is that if you can pursue this, it has to be done in elegant manner - perhaps in a different location so it does not create any animosity
or make the other "uncaring" Doctors look bad, because of this interference, if you may want to call it.
I hope and pray that something good is going to take place.
God Bless you for being there for him.
Niko

Helpful - 0
Avatar universal
he really seems to be getting weaker. I can't even understand what he's saying anymore his speach is so bad now, what really makes me so made is not one doctor will do anything to help him, it's gettin so hard for me to see him like this. why why won't these doctors help him.
Helpful - 0
551343 tn?1506830518
Hi well thats a good sign then. Dont they check his bowels in the home.....? They should never allow him to be constipated.

Hope he is ok today. xxx
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Avatar universal
infection gone his back does not hurt anymore he was consipated. he looks a lot better.
Helpful - 0
551343 tn?1506830518
Hi how did he get on Monday? mariax
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Avatar universal
not good his back hurts they think he has an infection bladder infection, but his back hurts so bad, he does have an appt. monday with the doctor that fixed his back. i just wish things would get better for him. I hate to see him in pain.
Helpful - 0
551343 tn?1506830518
Hi how is everything? Thinking of you both.x
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551343 tn?1506830518
Hi I would blow up its ridiculous. They treat animals better then this young man.

IF his back hurts it might be because he is not getting physio. Sitting a lot without physio will cause backache.

If you need me just shout. xxx Big hugs Mariaxx
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Avatar universal
well i am working on getting him home, hate that nursing home. still trying to get him seen at the u of m in minnesota i just hope they see him. this is unheard of why would any doctor just give up. and i am going to fill out the forms and thank you if i do need help I will let you know im sure i will. but any ways he's doing about the same but he said his back hurts but they just seem like they don't care. i amabout to blow up on all of them in that nursing home they are heartless people.
Helpful - 0
551343 tn?1506830518
THANK YOU SO MUCH SARAH this is what I need from someone in the states.

This is so patient neglect it is making me really angry.

This young guy is wasting away and they are just not doing anything.

IF his brain lesion biopsy was clear then why is he so ill now?

IF he worked in chemical and argon and welding environment then they should be checking him for poisonings...its ludicrous.

Baybear if you read Sarahs post can you act on it? I am sure between us all we can help you fill in the forms.

I cant bear to read about this in a civilized country like the states. I would expect better of it really.

He would be better off out in his own home at least he would be surrounded by things he loves. Mariax
Helpful - 0
1917408 tn?1421952040
I have been thinking about you but had no idea what to say. What a horrible situation.

Sarah's post sounds exactly like what I wanted to say but didn't have the specific knowledge to express.

I hope these people are help accountable for their inaction and that something can be done to improve the situation!

Valerie
Helpful - 0
1627868 tn?1333886342
This is sooooooo horrible!  I wish I had some advice for you or knew what to do, but I don't.  :(  Can you go to the medical board in your state and file a complaint?  I would!  File a complaint against the doctor/doctors, the nursing staff, the hospital, the nursing home, etc.  You can do this easily online, at least in Wisconsin you can.

Do a search online for the Minnesota state licensing board.  At the very least if you file a complaint with the hospital, nursing home, and clinic, the state inspectors will have an unannouced audit.  They do this in Wisconsin and I can't imagine it would be all that different one state away.

I would also ask to speak to the hospital administrators as well.  Tell them you are very dissatisfied with their services.  You are looking for answers and they keep dismissing you!  If he is worse off than you expect, they NEED to tell you!  It is NOT optional!!!!  This is part of their job and they are abandoning their patient, which is against their hippocratic oath!

You could file a lawsuit because of patient abandonment.  In Wisconsin, you can lose your license for this.  This is one of the first things that was beat into our heads in nursing school.  NEVER abandon your patients!  This can bring serious implications!  I am not saying you should file a lawsuit, just that it is optional.

Please take good care and keep us updated!  Have you sent out that hair sample yet or checked into the holistic practitioners yet?
Sarah
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Avatar universal
really they did not tell me much, the doctor called me on the phone and she was talking like she didn't know what to say i do think they know something but all the doctors stick togather. he was taken to the hospital because he was getting weaker and his speeh is so bad i can't understand him. I did call his sister and told her if she cares about her brother she needs to come and see him. now she wants to help she should of been helping long ago now it might be to late, if somethime is not done soon I don't think he's going to make it.
Helpful - 0
551343 tn?1506830518
OMG I cant believe this what is going on. Do they know something they are just not telling you?

To be honest if you could I would take him away from it all and just get him away from sick places. They have given up on him and I can only assume they know there is something really wrong with him otherwise surely there is a case for you to take court or something. This would never happen in this country. We would have been able to do something about it.

Cant his family help him? I just feel so bad for you both.

Why was he taken to hospital?

Its like the lost children of the damned. He is damned because they dont want to deal with him. I thought America was a first world country, not a 5th world country where they allow young men to just fade away because they cant be bothered.

It stinks. Mariax

Helpful - 0
Avatar universal
well another dead end they would not do any test they released him from the hospital and said there is nothing they can do. they also said thing in front of him that i don't think they should of, they are just going to let him get worse and not do anything and now he is so depressed because they brought up dying I am so mad about the way they handle things and made him feel real depressed. they would not even test for anything i told them too.
Helpful - 0
551343 tn?1506830518
Oh bless I am so sorry to hear he is worse. Maybe now though whilst he is in he will get some answers. I just feel so bad for you both. I am glad you got the test. I am sure it is to do with his job I have done lots of reading since and it all just seems to fit, BUT then it might be way off base.

Let me know how he gets on in hospital. I do think about you both a lot wondering how he is.

Big hugs Mariaxx
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Avatar universal
hi I did get the test sorry but my labtop charger sparked out so no computer for a while. well i just got the test a couble days ago but my friend has got worse he's in the hospital as of yesturday, i did tell them he needs to be tested for manganese from welding, if they say no then i going to the hospital with the test kit in hand.
Helpful - 0
551343 tn?1506830518
Hi did you get the test stuff and how is he? Mariax
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551343 tn?1506830518
that is truly disgusting about only about money. I would have hit him.

This guy is obviously sick with something for gods sake.

I had a look for holistic medical practitioners in your area by googling and found a few. I think it is the only way to go because the doctors dont seem to be bothered at all do they. I have sent you a private message. Mariax
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Avatar universal
and also didn't tell worst of it, when I told the doctors about the welding and chemicals at his job, the doctor replied oh it's money like we only care about money. i told him i don't care about money i just want answers. how dare he say that that is the last thing on our minds.
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Avatar universal
Hi still so depressed this morning all i want is for one doctor to take his case, a doctor that cares. I live in st. paul minnesota. i really can't  afford much trying to not lose the house but it looks like he will, I can't make the payments much longer by myself along with all the other bills.
Helpful - 0
551343 tn?1506830518
I just cant believe it. If this guy was old like me i could believe it but they are just giving up on a young man.

I would follow Nikodicretas link and find a holistic medical practioner.

I am disgusted with this and thought the Mayo was the best.

Where abouts are you? Perhaps we can all do some research for you.

I am just gobsmacked.

I would start though really with getting a hair anaylisis. It doesnt cost much and if it comes back positive you have something to fight with. IF you cant afford it please contact me ok.

IF the hair comes back negative then we know it is something else.

Dont give up. Mariax
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