This is my first time posting in this forum! I am trying my best to "survive limbo land" and today wasn't one of my best days.
I am in the midst of an ugly symptom flare (heavy limbs, tingling everywhere, twitching, extreme fatigue) and went to the ER today because I could not take deep breaths. It scared me.
I wound up w a psych eval and they referred me to intensive "day therapy" for two weeks to rule out "conversion syndrome". They said sometimes trauma from childhood, etc. Can manifest itself physically.
I will totally go just to check it off the list, but I don't have any child hood trauma, at least that I recall. I also have EMG's that show nerve damage in all of my extremeties.
Just curious if anyone has had this diagnosis or had it suggested. I felt like they thought I was suicidial!
My "list" of diagnosis that are "checked off" that my docs have ruled out...
-MS, Parkinson's Disease, ALS, Lyme disease, vitamin B12 or vitamin D deficeincies, lupus, diabetes and thyroid disorders,
Welcome to our little corner of the world.
I had prepared my reply to you earlier and poof! it vanished in a flash!
Now I find that there's a glitch in forum, many 2000 word plus posts
don't get submitted at all. So I 'll restrain myself to post less.
Conversion disorder or syndrome: The "trash can" medical label used when unable to dx neurological based conditions. Waste no time with this one as it is designed as a substitute for "sorry we don't know" which is a little hard on the Ego of most MDs.
Things to look into or to rule out:
1. Pathogenic infections such as All Borrelia species- not just Borrelia Burgdoferi,Anaplasma phagocytophilum, Babesia microti, Babesia duncani,Bartonella henselae, Bartonella quintana, Coxiella burnetii, Ehrlichia chaffeensis,Francisella tularensis, Mycoplasma fermentans, Icognitus and other Mycoplasma species, Rickettsia rickettsii, viruses such as HHV-6,nematodes. These are extremely difficult to detect!!!
Do a search her in medhelp for Dr. Garth Nicolson who is an expert in this field and was a contributor here a while back
Your checked off Lyme Disease, is most likely a false negative.
Monkeys shooting darts are more accurate than most lab findings when it comes to lymes Disease. If you haven't seen an LLMD and if you haven't
done a complete Borellia and co-infections panel using IgeneX Labs, you're nowhere close.
END OF PART 1
Welcome to our little limbo group!
Unfortunately it seems to be growing but Everyone here is helpful and we have a few like Niko that has given you great info and wise advice and then Maria(Mrs.Aristotle) the founder of this forum and then some other wonderful members old and new.:)
I will be lifting you in prayer and I do hope and pray the Lord will give you answers soon.
His timing is not ours so until then we must remain patient and trust that in time we will understand the why's? of it all.
Keep us posted and please be sure to post questions or if you need to vent or anything.:)
WELCOME AGAIN DEAR FRIEND!
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