SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
hi im new
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
521 members
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hi im new

i  suffer pains in arms and legs every day but doctors always send me away without ever doing anything they are useless also i got a brain injury when i was nine and i suffer memory loss and i have to cope evry day on my own dotors dont do anything about that either my eye is funny and i got asthma and suffer deafness in my left ear i just always feel on my own nobody knows what i go through every day
4 Comments
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956292_tn?1334058469
Hello,

welcome to this forum. what type of brain injury ddid you suffer from when you were 9? To e a better understanding have you been seeing any doctors? and if so what type? It would be great if you could explain a litle about your situation and your symptoms to us..

JibJen
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551343_tn?1350880995
Hi and welcome.

When you say pains in your arms and legs can you be more specific?

For example I get pain in my legs but it is nerve pain, and a deep ache into my bones like I have massive flu.

It is easier to help if you could feel up to it and let us know a bit more, when it started. I am sorry you had a bad time when you were so young.

I take it the brain injury is responsible for the memory and the partial deafness.

Anyway could you let us have a bit more about the pain, does it start first thing when you get up for example, is it worse on walking, exercise, heat, stress ok.

Thanks and again welcome. Mariaxxx
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1510895_tn?1294065335
hi maria i find it hard to descibe things i get it any time of day and some days are worse than others like today i can cope with walking my german shepherd but other days the pain so bad i cant walk or even lift a pencil i cant do my art when it really bad or walk my dog i try to rest so i can walk my dog but when it bad i just let her out the garden till i feel better luckily that doesnt happen too often or i would have to give the dog to someone else as big dogs need lots of walks my arm sore right now so it a bit hard to type i sorry i cant describe it any better i walk my dog every day  and just cope with the pain but on a really bad day  i cant cope it so bad
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1510895_tn?1294065335
i see my gp doctor they never do anything i also went for test at hospital for pains in arms and legs where they electricute me but they say nothing wrong with my arms and legs i got hit on head when i was nine
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