SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
i'm in limbo land and i'm lost
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
521 members
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i'm in limbo land and i'm lost

neurological limbo land fits me to a "T" Thats my dx with no tx. After having survived a roll over that landed me in a coma for a little over a week to having extremely suffered from encephalpothy from having liver diease  which gave me brain damage to having a liver transplant which of course only gave me more brain injury.  I am in such a confused state ,it's sad. From having encephalopothy (way too much ammonia to the brain for over a period of 9-12 months if not longer)I lost all my friends, by saying horrable things to them and i was not aware of ever talking to them. Thats the culprit of suffering from encephalopothy, So i'm all alone. I am in the begining stages of seeing a neurologist,so far they dx me with extremely abnormal sleep apnea and narcalepsy.  I need for myself to start finding answers so i can gettx and get out of limbo land.  I need to ask this question.am I the only one who at times,a lot of times feeling suicidal? thanks for listening and hope to hear back from you
3 Comments
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Hello and Welcome to Limbo,
Sorry you are here!  But please, do not think of suicide. I will be lifting you in prayer.  There is hope in the Lord. Jesus loves you and I'm sure you have others around that do too!

There are alot of us here that have been in limbo w/no answers but we all try to encourage one another and keep the faith and hope that in time we will get answers but only in God's timing.Thank God for the wonderful members that I call family and friends now,as others say we all are like a second family and now we are that family for you.
I'm here and others will be along soon too!
Life gets hard and it truly stinks at times but God is still good.

It's good that you are in the process of seeing a neurologist, that is great because you will be that much closer to getting answers.  I will be praying for you and I'll be checking to see if you post anything or you can send me a note or private message me.

Please know someone is here to listen.Vent,ask questions whatever you need we're here.

hugs and blessings,
Tammy:)
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Thanks so very much for getting back to me. Trust me the last thing I want is to kill myself,it(being suicidal thoughts)just pops up out of no where and I can't stop it from having it.  It's so scary.  But , thanks for  taking me in on 'LIMBO LAND' and I am looking forward to hearing from you as well as others.  I need to put the pieces together in order to move on with my life. And yes all good comes in God's timing.                                                                                                                                         God Bless                                          
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Well hello,

Tammy is so awesome, and like her I believe God will see you through this. Suicide is not the answer, although I know that someone else in this forum probably has had those thoughts before. Maybe they can tell you their stories and ease your mind. My mom is extremely bipolar so I grew up with her threatening and even trying to commit suicide. The one thing I told her was always remember someone loves you out there, and your life always has a purpose.

Recently she was so downed she went outside turned on the car and was trying to suck down the exhaust. Thank God he showed up then and a prayer hotline called her back. She gave her life to Christ that night. Lately she seems happier then she ever has. God loves you to, and if you haven't tried then you may want to cry out to him.

Either way the people in this forum are awesome and will become like a second family to you as they have for me. They give loving caring advice, and also just are here to help you vent when you need to.

My advice about your loved ones that you feel you lost, is go to them and apologizes, explain what you are going through. If they accept your apology great. But if they don't, never give up on them if they truly care for you they will forgive you. Sometimes people are stubborn but it always better to be the bigger person, even when it's hard.

Well, I pray this gives you hope and you can find some comfort soon. Life will get easier, because God loves you. He doesn't want you to feel fear, anger, or like there is no hope. Praying for you,

Kimberly
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