SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
so quiet
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
521 members
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so quiet

i am hoping the reason its been so quiet here is because everybody got a dx's. wondering were everyone is.
8 Comments
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I have wondered that too. I haven't got a dxs but feel healed and really have no way to fight for one at the moment. I am about to start a new job that hopefully one day will give me a chance at good health insurance.
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Earlier had to cut my post short was at work. I have been praying for everyone on this forum. Sometimes life just takes hold of us. Maybe everyone feels alot better and is just trying to get their lives back I pray that is why this forum is so quiet. I know that this forum had many people who deserved the best. Please lord stick by their sides.
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551343_tn?1350880995
Hi hun its partly my fault as i jumped ship. I got to the stage where i felt overwhelmed with everything and could not face life anymore in the sick lane.

I just got scared and fed up of being ill and turned my back on my online friends.

Where did it get me. No where, just sicker.

So i thought i would pop back in and say hello. i have also got involved with someone who is bed bound and I am trying to help her see I just cant keep sticking my nose into peoples business lol.

How are you hun?

I am slowly deteriorating partly mentally but i am trying to keep up beat but some days it is hard.

I often think of my friends on her, and today i needed to just come and say hello. Mariaxxxxxxxxxxxxx

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163240_tn?1337907961
Im doing. Cant say wall or bad. Im frustrated overwhelmed and mad as hell that i just cant get an answer. I have been given no meds. No treatment. No nothing. Four years ago i could out walk my kids now a 70 year old could out ealk me. I am tired of living in pain and everything else. Im tired of doctors who i only see every three months who only run one test at a time. Most days anymore i just feel like giving up. No onr can tell me why i constantly have new symptoms constantly popping up. I feel like at 40 i shouldnt have to worry about whether i will be around for my 8 yr olds wedding or if i will be dead before then. I am just totally frustrated as heck.
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1530171_tn?1362547225
Hi chefaid.

Just a hunch. Go to the antenna research website punch-in your current address and it will give you the number of all the cellular towers and antennas in close proximity to you.And please let me know if and when you get it done with your results.
Don't give up. You ARE your own best healer. Don't give up that power
for  the  conventional medical system. So far, from  what I see, you have given them TOO MUCH power, power they do not deserve, according to the results you are getting. You see, when you resume your power, you shift the energy inside you, exchanging your frustration  with your doctors for determination to see this through from a position of strength.
May be in the future, you can re-post your medical history, symptoms and tests and results. Make a new start perhaps
There's always a cause and a reason why we suffer from anything. I can look at it and give you suggestions.
It's OK to vent but please don't stay there too long.
It' could be really toxic for the body and the mind after a while.
Best wishes.
Niko
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1530171_tn?1362547225
Mary we did miss you here.
I was away in Mexico and just came back last night.
You have many friends here and you are truly loved.
I'll touch base with you in the near future.
I have a gazillion messages to respond to.
Hang in there.
Hugs!
Niko
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163240_tn?1337907961
Ok since im on my phone will repay symptoms tomorrow. But as for towers and antennas. I have 4 towers and 14 antennas within 4 miles of my house. All start about a mile to a mile and a half away.
I also don't understand what you mean by I have given to much power to my doctors. Could you please explain more.
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1530171_tn?1362547225
Hi chefaid90.

Here's a link in regards to high frequency microwave radiation  that may or may not have something to do with some of your symptoms.
http://www.townsendletter.com/May2011/cell0511.html

As far as giving too much power to your doctors, you are telling us that:  
"Im frustrated overwhelmed and mad as hell that i just cant get an answer. I have been given no meds. No treatment. No nothing."

I take it that you have given your doctors the power to:
a. get you answers
b. give you medications
c. provide you with treatment
d. offer you anything

I understand, that you are very upset because of all the NADA medical
help so far- I'm on your side, not the enemy OK?

What Conventional Doctors CANNOT do:
1. Cure viral infections.
2. Manage satisfactorily most mental illnesses.
3. Cure most degenerative diseases.
4. Manage satisfactorily psychosomatic illnesses.
5. Cure most autoimmune diseases.

By giving your doctors most of the responsibility to get you answers, prescribe medications and treatments for any of these 5 categories, can  take away your own control of the situation, leaving you hanging with probably false expectations, in light of the complexity of your situation.
I have been down this road myself and trust me, I only am where I am today  (almost optimum health) because I decided to take health matters in my own hands.
It is a wonderful feeling-a bit scary at first though- when you are in control.
I'm not suggesting you drop everything you're doing and listen to everything I say, but please consider to put yourself in charge. Get better informed,
learn about the human body, alternative and holistic medicine, etc.
There many things you can do, but first you must make that forward leap of faith, to disempower the doctors that have held you in limbo and empower yourself, which may take some time, but well worth it in the end.
This may require some thought restructuring from your part, as most of society has been "infected by memes"( metaphorically virus of the mind)
e.g. Health is exclusively the domain of Medical Doctors.
If this were true, why aren't you healthy?
The truth is that ONLY your own body can heal itself. ( It may need some proper support and re-balancing to get the job done though)
Hang in there and please give my suggestions some consideration.
You have been in limbo for too long, but there are things you can do.
Let me know if you need any information.
Niko



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