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some new weird things....

Hello

I have also sun and skin sensitivity for some years after my other symptoms have started.
My sun sensitivity started  this year with red itching and burning pustules which came to some body regions and resolved some hours or days again .

Then with the time and the summer going on the pustules disappeared when sunbathing but now I have another problem.
When I am out I sometimes get  burning wounds from sun,especially on dorsal feet and some on the arms.
They are luckily not too many but weird enough:
It starts with an itching and burning and then the wound is there for some weeks,some of them heal with scars and browner pigmentation.

I also had some few small vesicles which don`t hurt and open after two days,there is a bit of fluid in then an when the vesicle disappears there is also this kind of small burning wound under them (??)

Some days I also got a weird thing which I only have rarely...
I had some bad burning pain in the gallbladder area and kind of bad stomach cramps for half a day,I also felt very dizzy and  agressive  in every small situation and I had the feeling of having kind of a bladder infection and urinary retention.
Luckily I didn`t have water on my feet or somewhere else but the day after when the cramps went by I had a bad migraine episode with depression and frequet urination like my body wants to clean up some poisonous thing.

After the day with the headache I  suddenly felt very good in the evening when it was all over again and the next day my period started .(??)

I find it a bit weird but I was lucky that it didn`t last very long ( I thought of some organ failure for some moments *urgg*) but I had this symptoms the last time almost a year ago or so....

Anyone an idea (also for skin) ?

Yours

sweety :)


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Avatar universal
Hello mintel

Just read your post, I also thought about possible pellagra-niacin deficiency.
Can also be caused by a genetic disorder called hartnup disease.
Do you have the same thing and did doctors then tell you about it?
Hartnup also can have neuro and psychiatric signs like in my case,but normally you can diagnose it in childhood in most cases

I also think the lesions mostly resemble milder type of pct or pellagra like lesions.

I now take new b3 supps everyday.

yours sweetie :)
Helpful - 0
Avatar universal
Hi just passing by and read about your skin sensitivity and lesions. Have recently been to doc and he has mentioned a condition called Pellagra, of which sun sensitivity and skin lesions are a symptom. Personally I dont suffer from either, but he seems to be enjoying himself with random conditions that no one has ever heard of, if it's of interest to you bonus.
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Avatar universal
Have heard it might be looking like PCT skin disease....

This disease often occurs with liver damage or liver disease and most often with Hemochromatosis on different stages..
But I luckily have no liver damage or high enzyme tests

Think I will check my ferritin levels soon to rule it out and maybe copper too, again.

And with neurological things you should always think of liver diseases like Wilsons or Hemo too.

yours sweet :)
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Avatar universal
Hello you

Thank you for your answers....


@VictoriaD

Think we maybe have the same things but my sun sensitivity is not that extreme but also weird. *urgg*

@mamiJ

I have also been tested for lupus but it was negative.
Also lupus skin pictures on the web look very different from mine...

I am now thinking of possibly having a defect in niacin transport metabolism...
But now I have enough of visiting doctors,they all tell me my nervous and blood sugar symptoms are al imagination .
With my new skin problem I wasn`t  even at a doctor by now.
Think I will buy some niacin supps tomorrow,our weather is rainy at the moment but will get sunny again on saturday.
And I normally like the sun,it makes a good mood and I also take very high sunblockers.and don`t stay out in the sun too long.

yours sweety :)
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Avatar universal
My mom has similar skin rashes/lesions and her drs are pushing towards lupus, although she doesn't have a dx either
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1386233 tn?1279931493
I have sun sensitivity also.  Not exactly the same as yours, but if I'm out in the sun my skin gets so red and itchy, burny.  More than just a regular sunburn and I get it if I'm out there for less than an hour with 50 SPF.  I have gotten blisters, but since this sensitivity started last year, I don't allow myself to stay out in the sun that long uncovered.

I have noise sensitivity also.  Sometimes I will get ringing in my ears so loud I can't hear my husband talk to me.  The buzzing from our tv bothers me sometimes to the point where I need to go into the other room.  Other times my hearing is horrible and I have to ask my husband or kids to repeat themselves several times.  Talking on the phone is hard for me also, I have to ask the person to speak louder or repeat themselves.

You aren't alone and I hope you can find some answers and relief soon.

Victoria
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Avatar universal
No one here who has it the same as me?

At the moment I tend to be fastly agressive inside and feel very annerved by noises,for example of the vacuum cleaner in another room.

It is sometimes so badly that I have to listen to music with earphones in my ears to overtone the noises and to don`t get completely mad.

At the other hand I tend to be very hyperactive at the moment but also like social whitdrawal...
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