Hi, I have been diagnosed with probable MS, but have my doubts. I recently was looking up sarcoid for my cousin and was surprised to read that many of the symptoms of neurosarcoid resemble MS.
What is making me wonder now if I have sarcoid rather than MS is that I get small sores on the edge of my nose, and sometimes just inside my nose, nearly every time I ahve a bad "attack". I've never mentioned that to my neurologist as I thought they were just small infections like pimples> though they can last for about 6 weeks!
So my question is, do sarcoid lesions on brain MRIs disappear after an attack? If they DO, I can rule that out as I have had the same lesions sitting there for 3+ years.
One other thing: my last MRI showed "bilateral subependymal nodularity". My neuro said "that's part of MS", but my MS Nurse and the MS community here and Google have ZERO reference to that being part of MS. I am wondering if 'nodules' can be sarcoid? All google refs seem to tie it in with seizures, epilepsy and brain damage ffrom birth,w hich i don't have. (Though i have had one seizure, I think as an adverse reaction to codeine though)
All and any opinions would be greatly appreciated.
You can see some of my brain MRO scans in my pics on my profile.
I'm very sorry you did not receive an answer for this when asked but what you mention does sound like sarc. Skin lesions are a symptom and the "nodules" you mention could be granulomas. Of course, I'm hoping you received a Dx a year ago so all this would be moot. I'd love an update if you have one.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.