I also posted this question on the Autoimmune disorder forum;
My Dr has done a autoimmune blood panel because I have several symptoms like feeling ill,raised rash,uvetis,night sweats and swollen lymph node. But everything I read says chest xray is a way to diagnosis Sacroidosis.So my question to anybody who has Sarcoidosis how were you diagnosis and what were your symptoms?
I was diagnosed after a CT scan for kidney stones caught the lower part of my lungs where nodules were seen along with swollen lymph nodes. A repeat showed that the lymph nodes in the mid part of my chest were very enlarged. I had been having a dry violet cough, extreme fatigue, shortness of breath, and joint pains. I was sent to a pulmonologist who measured my lung functions which were decreased and did a bronchoscopy to get a definative diagnosis. Blood work can give preliminary informamtion but isn't always as accurate as a CT with follow through for anything unusual seen.
I had a very dry cough for over a year that would not go away, a chest x-ray revealed a mass on my lungs
then a ct scan showed that i also had nodules on my heart, lungs liver and kidneys
further testing MRI showed I also had it in the brain
They will usually do a Biopsy to rule out things like Lymphoma of the lungs,
i also had blood work done and my ACE levels were sky high
Usually you will see a dermatologist and also a pulmonologist, the important thing is to find a really good doc who knows all about Sarcoid, and there is really not a great deal of them around,
It took me three tries to find the doc that I have now, and he is truly wonderful,
Good luck with your diagnosis
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.