I also posted this question on the Autoimmune disorder forum;
My Dr has done a autoimmune blood panel because I have several symptoms like feeling ill,raised rash,uvetis,night sweats and swollen lymph node. But everything I read says chest xray is a way to diagnosis Sacroidosis.So my question to anybody who has Sarcoidosis how were you diagnosis and what were your symptoms?
I was diagnosed after a CT scan for kidney stones caught the lower part of my lungs where nodules were seen along with swollen lymph nodes. A repeat showed that the lymph nodes in the mid part of my chest were very enlarged. I had been having a dry violet cough, extreme fatigue, shortness of breath, and joint pains. I was sent to a pulmonologist who measured my lung functions which were decreased and did a bronchoscopy to get a definative diagnosis. Blood work can give preliminary informamtion but isn't always as accurate as a CT with follow through for anything unusual seen.
I had a very dry cough for over a year that would not go away, a chest x-ray revealed a mass on my lungs
then a ct scan showed that i also had nodules on my heart, lungs liver and kidneys
further testing MRI showed I also had it in the brain
They will usually do a Biopsy to rule out things like Lymphoma of the lungs,
i also had blood work done and my ACE levels were sky high
Usually you will see a dermatologist and also a pulmonologist, the important thing is to find a really good doc who knows all about Sarcoid, and there is really not a great deal of them around,
It took me three tries to find the doc that I have now, and he is truly wonderful,
Good luck with your diagnosis
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