After years of struggling with insomnia, I have come to the conclusion I have Alpha Wave Intrusion. Unaided by medication I sleep only for 15-20 minutes out of 8 hours. I have done everything under the sun as far as trying to beat this without meds. Now, I must take one of the hypnotic's to get any sleep at all.
Question is, anyone else effected by Alpha Wave Intrusion? If so, what do you do/take to help? Can this condition be reversed or at least relieved?
My sleep Doc is not much help, he just writes more meds. He has tried in the past to get a patient on xyrem but was unsuccessful and would not even try to procure it for me.
I understand there is a new class of sleep drug that has been through all the clinical trials and will be submitted to the FDA this year for a NDA. It is said to work on a completely different GABA receptor than what is currently available. I sure am looking forward to trying this out.
I'm a little confused - you say you have come to the conclusion you have alpha wave intrusion. Is that what your sleep study showed and your doctor said? What was on your sleep study report of significance?
I had a sleep study several years ago. The results pointed to numerous awakenings throughout the night with only 43 minutes out of 360 asleep. No REM. This study was done in my home not a clinical environment. My current sleep doc seems unphased by the results and wants to do another. I will reach Medicare in 2 1/2 years and am trying to postpone the huge expense prior to that time.
Based on my sleep fragility and various other issues dealing with my sleep, the Alpha Wave thing has been suggested. I, myself, am more of less convinced this is my problem.
I really feel for you. Several years of inadequate sleep has had to take a toll on you, and I would imagine your health. I tolerated my sleep issues too long and it cost me dearly. I waited on insurance, then waited for a "good" time, then waited till I felt more like being bothered. Now I have nothing but time as I am unable to work and I'm barely functional. Sleep is so necessary to life and health. If necessary for you to wait on Medicare, then it is what it is, But the cost of waiting may be higher. It would be a shame to keep suffering if you may not have to. Please, if you feel yourself slipping, don't wait any longer. Hopefully you'll have something treatable. I've heard alpha wave intrusion can be stubborn.
I found your post while googling, I hope you dont mind me messaging you. I also have alpha wave intrusion although not as bad as yourself. Have you had any luck with treating this? Meditation helps me a bit but its far from a cure.
Please email me to discuss sleep issues. I have struggle horribly for over 9 years. I have been to hell with this. I've made some progress, but still struggle horribly. Would love to know how you are doing now, and share with you what has worked (somewhat) for me.
I have been diagnosed with alpha wave intrustion since 2002. I have used a number of things to help me. The medication that I use the most is trazodone. It is an anti depressent with a sedative quality. Many people use this medication for other sleep issues. I have found that I am less tired in the daytime and that I am able to sleep better, and I am able to fall asleep sooner. It has also helped with the depression that goes with not being able to sleep enough or with good quatilty. Anybody have any other good things to say about it? I would love to know about others expreinces. Kim F.
I have Alpah Wave Intrusion for 2 years and have suffered terribly. My dr. just recently talked me into trying Trezadone. He suggested that I take it to a pharmacy that would break it down into 5mg capsules, because the lowest dosage of 50 mg was just too much for me.
I have been taking the lower dosage coupled with 10 mg of Melatonin and it seems to be working pretty good. There doesn't seem to much to do about this disorder and it really is tough.
I have Alpha Wave Intrusion also. I've been through the works. Meds. Light box. Pretty much anything you can imagine. What my neurologist ended up suggesting goes against what many doctors would say. They usually will tell you that any light or noise is BAD for people with sleep disorders. But with Alpha Wave Intrusion your brain actually NEEDS something to focus on to relax and allow you to enter into REM. So every night, I put on a movie, low volume and dark lighting. Not enough to distract me from falling asleep, but enough that there's a tiny bit of auditory and visual stimulation that my mind settles down. Long story short, I still have terrible insomnia, but WHEN I sleep, I manage to get a bit of rest at least.
Of course, I'm an odd duck, so what works for me is usually not what works for other people and vice versa. But worth a shot, I think, if you are still struggling.
I too have alpha wave intrusion. I am so tired all the time. I have had 2 studies and both showed 50 awakenings per hour and zero deep sleep. When I try sleep medications, I sleep 18 to 20 hours, even when halved! I work full time and just keep trying to push through the week. Anyone find anything that works?
I'm glad to see this forum's stood the test of time! I feel the frustration of everyone who carries this insidious ailment. It's almost been 10 years now since the on-start of my persistent sleeping problems and subsequent DX of Alpha Intrusion.
My sub-par stats were:
I'm 28 years old and I've spent a significant portion of my early adult years searching for a resolution to my sleep troubles. To those of you in a smiliar search, I'd especially encourage you to read into Xyrem (Sodium Oxybate). The case studies and testimonials are very encouraging. Also, the tricyclic Amitriptyline is commonly used to treat Alpha Wave Intrusion. In addition, there are some interesting conclusions being made regarding Upper Air Resistance Syndrome and how its effect on a person's sleep is similar to that of sleep apnea minus the apneas. (This syndrome affects those with thickened sinus tissue / chronic allergies)
Feel free to comment & inquire----> I'm happy to contribute any knowledge I've garnered since the Beginning Of It All =]
I have had problems with alpha wave intrusion and sleep paralysis for years. A couple of years ago, my doctor put me on a VERY low dose (10 mg) of the antidepressant nortriptyline, not for my sleep problems, but to help ease the pain of psoriatic arthritis. Once I was diagnosed with alpha wave intrusion, she bumped me up to 25 mg every night. This is a low enough dose that it hasn't really had any side effects (other than the first couple of weeks, I had HORRIBLE dry mouth, which subsided), but it has helped me SIGNIFICANTLY. Most doctors other than maybe a psychiatrist will not think of trying nortriptyline because it's very old and rarely prescribed anymore, but if you are having this disorder, I highly recommend asking your dr about it!
I was diagnosed with Alpha Wave Intrusions several years ago. I have been taking clonazepam (half pill - .25mg I think). It has helped me for the most part without feeling hazy. I do wake up frequently in the mornings, but am getting at least 4-6 hours sleep. I do have periods where I'm up every hour, but it's not enough to make me want to increase my dosage. When I ask my doctor if there has been any news on this disorder, he tells me no. I try to look it up myself every now and then. I have not heard of the other medications listed, so I'll look into those. Does anyone have any articles or websites that are useful for our problem?
Wow! That explains why when I fall asleep in front of the tv I feel that I've slept much better than without it--gotta be the reason. I was just telling someone about his two days ago! I said that an hour (asleep) in front of the tv is more restorative/restful than several hours in bed. Thanks for this info!
I've just stumbled onto this site. Wow! People like me. What a thing this is. I have felt alone for a long time now with this. I walk around like a zombie unable to focus. It's like my brain isn't awake. Kinda like a sensory overload or something. I even went to the Mayo Cliinic to find out what was wrong. They did a study and said I have alpha wave intrusion. That's how I got here. Your comment stood out to me because I have issues with my sinuses. I've had an operation to fix a deviated septum and to roto-rooter out the sinuses. Horrible experience. Man any help at this point is appreciated. The Mayo clinic down played my problem and suggested hypnotics. The doctor there obviously doesn't suffer from this. I "sleep" all night and wake up more tired than when I went to bed. What causes this and how to treat it. What effects on my health. I feel like I'm dying
I have suffered from Alpha Intrusion for nearly 13 years. Mine initially started and was diagnosed after I was in a Coma and Total Organ Shutdown for just over 2 months due to an allergic reaction to Dilantin and Depakote called "Stephen's Johnson Syndrome". I have always had trouble sleeping...even since birth, but after my Coma, everything got worse. I go for routine Sleep Studies every 6 months and every Sleep Study indicates that my Alpha Intrusion is getting worse. On top of the Alpha Intrusion, I have Obstructive Sleep Apnea. My Neurologist just recently (about 2 months ago) discovered that my Uvula is deviated to the left and that the entire left side of my Soft Palate and Upper Throat are paralyzed. I had an MRI done to try to figure out why I have this Deviation and Paralyzation, but it came up inconclusive. I've had a very difficult time swallowing since I was a kid, but it has gotten much worse recently. I'm scheduled for a Swallow Study next month and am looking forward to figuring all that out.
I have tried nearly EVERY medication under the sun for my Insomnia and Alpha Intrusion, including medications NOT indicated for this use. The only medication I have yet to try is Xyrem because I have not heard of it before now. I DO know however, that a LOT of "sleeping" medications can actually have the OPPOSITE INTENDED EFFECT. For instance, one of the medications that I currently have and use on RARE occasions, is Trazadone. I VERY rarely use it because it causes me to only get about 1 hour of sleep per 24 after the first dose which DOES allow me to get a "full night's sleep". With people who have brains like ours, medications designed to help us FALL and STAY asleep can quite often cause us to have Insomnia and further WORSEN our already existing Alpha Intrusion. If anyone is a fan of the show "Grey's Anatomy", there is a partial explanation for this on Season 9 Episode 22. There HAVE been several studies where Coma Victims regain consciousness and other things lost due to the coma, but as of right now, there is no SIGNIFICANT FDA approved "proof" that this actually works. Still, there are people out there like me who can genuinely say that some sleeping medications may actually KEEP you from sleeping.
Someone mentioned (sekhmet611 on 4/30/2011) trying to sleep with a movie on. This is pretty much the ONLY way that I can sleep. I HAVE to have light that "moves" (the changing of scenes and changes within scenes) and constant noise in order for my brain to understand that it is time to relax and sleep. I keep the volume at a level just a NOTCH above where I otherwise wouldn't be able to hear it and I put the movie on repeat. It took my husband a while to get used to it, but it DOES work for me for the most part. Recently (the past 3 weeks) I have only been able to sleep for about 2 hours at a time with a MINIMUM of 8 hours before trying to fall asleep again. This is WITH my taking Valium (30mg), Zanaflex (24mg), Seroquel (25mg), Trazadone (200mg), a couple different pain medications and a few other medications. This combination of high dose medications would knock most people out for a week and cause SERIOUS CNS-Depression, but because my Brain and Body are how they are, I still am not able to get the sleep I so desperately need.
I totally feel ALL of your pains and can relate. I wish that I had more to say, something that could actually help, but at this point, I'm pretty much at as much a loss as you all. I will check back after I get the results for my upcoming Sleep Study and Swallow Study and let you all know how they went and if there is anything that I can add, I certainly will. Please don't hesitate to contact me for support or to chat when you can't sleep. I'm almost always awake and almost always on the computer! Take Care my fellow sufferers, and happy dreaming!
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