I need answers,...please!!

[MsRiggio]

Where to begin.....I am CONSTANTLY tired; for AT LEAST 2 or 3 years now, this has been a problem. I sleep 6-11 hours a day, typically with a nap. I fall asleep for slip seconds at work, I tend to 'drift off' (but not to sleep, in a daze) when driving. Here are some other issues I am having that seem to be tons of different problems, but maybe they have something in common: I sweat at night,...all the time, profusely. I thought it could be linens, and changed what I use. My husband thought it could be clothing, so I now opt for near nothing. I still sweat. My body hurts; it's mainly my head, neck, shoulders and sometimes my back. I had a back surgery years ago to remedy at least that. I have ringing in my ears...horrible, horrible ringing that tends to make me dizzy and light-headed. Sometimes the ringing is low, sometimes high, less-intense, more-intense....I'm soooo tired, and dizzy, and sweaty....and my body hurts...why?? What is wrong with me? Stats: age: 27, sex: female, work schedule: M-F, appx 7:30-3:30 or 4, no children, have done blood tests-normal, have been seen for apnea-apparently not apnea; taking Paxil, but conditions existed before meds, normal, regular exercise 3-4 times a week

[huneybee41]

Have you tried a endocrine specialist? My cousin sweats alot feels dizzy etc and his adrenaline is messed up. He almost died before he found out what was wrong. Thank God he was with his brother when he  went blind and went into a coma, because they were close to an army hospital. His Primary care physicians never had tested him for this problem they said they did not find anything wrong with him. If it had'nt been for God and him being close to an Army hospital and his brother he would have died. He has Addisons disease, his adrenaline does not work. Give this a try.

[Suri123]

Hi MsRiggo, how are you. Well you need to relax and take things little easy. I feel you are under stress because of not keeping well and in coping up with the daily activities of living. You need to get a second opinion for sleep apnea considering your symptoms. Have you checked your blood pressure and blood sugar? Day to day stress and strain can cause soreness of body. Short outings on weekend or family get-together can make you more active. Do morning-evening walk, stretches, have nutritious diet with lot of water or other liquids, have hot shower and listen to soft music before going to bed, these can be soothing to mind and body so it may be of some help. Few sessions of massage therapy can be beneficial. Keep updating of any visit to Neurophysician and sleep specialist. Take care.

[snoozin61]

I was the same way several years ago.  I honestly thought by the time they diagnosed me I would be close to death.  Getting up was an effort, suffering so many symptoms you have described.  Blood work was normal.  Finally one doctor mentioned MS and referred me to another, who mentioned fibromyalgia and then referred me to a neurologist who ordered a sleep study.  When I went back for the results (expecting it to be nothing like everything before), I was actually relieved to hear that I had "narcolepsy".  I had "dazed" while driving and had 3 accidents.  I'm just lucky not to have killed anyone.  I've been on medication for yrs. now (did have to change meds a couple of times), and enjoy life to the fullest.  PLEASE GET CHECKED!!  If that is your dx,  you will get better.

[Suri123]

Hi MsRiggo, hope you are doing better? I do feel you need to relax for sometime and get investigated thoroughly if not seeing any improvement in your sleep. Are you on any long-standing medication for any reason? Recently have you changed you sleep pattern? Massage therapy might be helpful. Till you feel improved, better not to drive unattended. Do consult your doctor and update on your progress. Take care.

[Suri123]

Hi snoozin61, how are you? Thanks for having shared your valuable thoughts. How is your sleep these days? Is your doctor regularly followed you up? I feel sleep apnea might be the cause, so need to discuss with your doctor to get treated along with the narcolepsy. What medications are you on now for your sleep problems? A repeat sleep study can be better to know the current status and to make a update on the drug. Stress can worsen things further so try to relax and keep physically active. Take care and share your thoughts.

[CharmieB]

Have you seen a neurologist?  Maybe suggest to your doctor that you want a sleep study.  I was sleeping all the time, taking naps, would blank out while **** things, etc.  All laboratory work was normal, EKG normal, my thyroid was a little high but not enough to be on any medications.  I suffered for 18 years.  I finally went in for a sleep study and was diagnosed with narcolepsy!  Narcolepsy is really rare, but at least a sleep study will rule out or confirm narcolepsy, sleep apnea, restless leg syndrome, and probably other conditions as well.  

Good luck!  

[Suri123]

Hi Charmie, how are you? Hope you are able to get good sleep now. How many hours of sleep you are putting in now? Have you been prescribed any medication for narcolepsy? Did your sleep study suggest any cause? I do understand how hard it will be to have a disturbed sleep cycle and disturbed routine daily activities. Keep physically active by doing morning-evening brisk walks, regular stretches and gentle massage. Frequent out door activities might ease narcolepsy as you tend to keep yourself active. Take care and share your thoughts.