Where is the Chronic Fatigue Syndrome Community here???

[sammijo]

You can go to my profile for more info. on me...I am trying to find what this is called...I am sleeping up to 18 hours at a time...I am still so tired and hurting I can stand to be awake. This is ridiculous I can't do anything I don't have the strength. My calves and legs look like I have been working out for years... I Will fall asleep at a drop of a dime...for no reason. Anywhere...sometimes I wake up typing here on the computer...it doesn't make much since when you read it though, lol. (not really funny). I can't work I can't even play..boreingggg. If anyone knows what my symptoms may be..if you could just let me know something it would be great. Maybe Chronic Fatigue Syndrome??? Thanks for your time
sam

[Suri123]

Hi sammijo, how are you doing? Hope your sleep has improved a lot better by now and you might have even quit smoking as you had determined to do it? Is the doctor regularly followed you up for your sleep apnea and other illness? Are you taking any medications presently? Stress need to be overcome and as I had said, yoga and meditation is good means. Do continue exercises or get massage therapy. Hope you might have gone through the CFS forum also. Take care and update on your progress.

[pennst8r]

hey, I was scanning the forums to see if you had gotten your CFS forum yet. I noticed that the fibromyalgia forum now is the fibromyalgia/CFS forum. You have a forum now! Congrats!

Take care

Penn

[pennst8r]

I was looking for a particular topic that was not available on MedHelp. I sent them a message requesting that they start one, and they did! You may want to try that. I looked around the topics for you, but could not find it listed in any of the more general topics. I was surprised, since it is not uncommon.

I would request that they start one.

Penn

[OneDayataX]

Sound like MONO to me!

[Suri123]

Hi sammijo, thanks for your reply. How are you? Your determination to quit smoking is really great and highly appreciable. Can you give some information about the other illness and if you are taking any medicines presently? You need to have patience and relax most of time. Relaxation course like yoga and meditations can be tried if you can spare some time. A change in place and short outings with family can be helpful to relax and bring down stress. Physical therapy and massage therapy should be tried for couple of weeks. Follow a healthy sleep cycle regularly. Keep updating me if you get your sleep study and the advice thereafter. Take care.

[sammijo]

I did not quit smoking and reduce the tremendous stress I was under ... I was having so many lung infections ...  it has been 3 years, I still smoke, sometimes more than other times, stress related of course ... I did quit for about 5 years many years ago...I will quit again, I know I am getting ready mentally for it, so I know it is time.
sam

[Suri123]

Hi sammijo, thanks for your notes. Sleep apnea is usually caused due to an obstruction in the upper airway due to a floppy soft tissue interposition that stops breathing and reflex effort to breath without person being aware. Commonly seen in men with a family history, obese individuals, women nearing menopause - hormone related and abnormality in airway track. You may get more information regarding sleep apnea by going through the link sent to you. Do not get desperate as there a treatment options, hence It is better to see your doctor and to get a sleep study done and update on your progress.

[Suri123]

Hi, how are you? You seem to be severely stressed due to the sleep disturbance and loss of interest in your routine daily activities. How many hours you used to sleep early and what was your routine. You might be probably having excessive sleep due to sleep apnea. Obstructive sleep apnea could be a reason for you to wake up number of times at night, many times you may not even be aware of it ending up having excessive daytime sleep because of fatigue, feeling unrefreshed, daytime sleep attacks at your workplace. Added to this, stress can be a trigger. Modafinil can be used for the treatment of narcolepsy. Please go through this link for more info http://www.emedicine.com/neuro/topic522.htm It would be better to consult a sleep specialist and get a sleep test done before you chose to take any drug. Keep updating your thoughts. Take care.