XYREM HELP PLEASE SOMEONE!!!

[julie1224]

I am onXYREM i have been for over a year.  I have had so many problems with it.  everyones answer is to up it.  so  now i'm on 4.5mg 2 times a night.  The first dose does not make me tired but when i take the second dose i am hypersexual, sleep walk very loopy.  the other day i took my second dose at 2:30 am and awoke at 7:30 came down stairs went outside to smoke and sat on the swing I couldnt stop myself from swinging when i went to get off the swing i fell forward hitting my side and face against the stone garage.  then i came in the house went to get a drink and threw up.  All this time i felt extreamly drunk!  I sleep walk on this, turn on the gas stove and dont remember and the gas was on all night till my husband woke up.  I do all kinds of crazy stuff.  One night I though i was ok and tried to drive and wrecked in my drive way thank god because i dont know what could have happened if i got on the road.  I dont really think when its happening to me but either remember in the morning or get bits and pieces that come back to me.  I dont know what to do I was off for about 2 months at which time my dr discharged me as a pt because i wasnt following his recommidation to take the med.  not me psyc dr has put me back on it because I cant sleep.  was origionally dx as narcoleptic.  but now when im off the xyrem i have insomnia.  which i dont understand if i am narcoleptic?  Please give me some advise on what i need to do concerning this med and what i can do if i stop it where my sleep is concerned.  When i'm on xyrenm i can stay awake all day, but when i'm off i can not sleep at night and sleep all day and totally exhausted.  PLEASE HELP!

[SeanG12830]

I was taking ambient and I was driving and cooking and doing weird things like going to take more ambient... one night I sleep walked and took 15 more pills! my wife called 911 and they took me to the hospital. I don't rember a dam thing. so my doc put me on xyrem and in the morning my fist supply is coming to my house. I am a little nervous about starting it because of all the stuff I read on the net. but I got to try. I am bipolar and have a lot of sleepless nights. I hope this works.

[SleepyMe_IISYSS]

I am instructed the same for my Xyrem issues ... 'Got a problem?...Increase the dose'  Grr!

Matt

[julie1224]

I have told them my symptoms and the response is always to increase my dose.  I dont think thats the answer.  Is there another medication that i can take that will knock me out but give me the day time effect of the xyrem.  I take multi meds, celexa 40mg, ativan 2 mg 3 times a day ,geadon 40mg 2 times a day. v.b12, fishoil, metformin 500 mg 2 times a day, crestor 10 mg, wellbutrin 200mg, vyvanse70mg, and estradiol 2 mg.

[Dr Santos]

Hi,
How are you? Are there other medications that you re presently taking? Sodium oxybate or xyrem is a very powerful central nervous system (CNS) depressant and it is only used as prescribed. This medication is indicated for narcolepsy and decrease symptoms such as daytime sleepiness, unwanted daytime naps or sleep attacks, and nighttime awakening. Side effects may include drowsiness, dizziness, nausea, vomiting, stomach pain, diarrhea, increased sweating, or headache. Sleepwalking is one very rare serious side effect. While medication side effect varies from one person to another, it is best that you inform your attending physician about these symptoms and any additional symptom for proper evalaution. Take care and do keep us posted.