I have NOT been diagnosed with narcolepsy, just did not know where else to put this.
I have experienced EDS since I was a child. My PCP has a chart full of complaints, blood work, thyroid tests and no resolution. Following a near miss with a bridge I was able to get a referral for a nocturnal eximetry read, sleep study and lastly a MSLT. All show negative. Altho in the MSLT I fell asleep within 5 minutes I did not go into REM which I understand elminates the theory of narcolepsy. I do, however, identify with many symptoms of narcolepsy. I've had extensive blood work, all is within normal ranges.
During childhood, teen years and early adulthood I did experience sleep paralysis and muscle weakness with laughter. the sleep paralysis shows up infrequently now.
A common question is do I drink coffee and smoke. Yes, I do. I did not when I was a child and a teenager and this has been a lifetime problem for me.
I work as a scrub nurse and zone out or fall asleep standing at the table. I often feel as though I am going through the motions. There are times I am nearly asleep eating lunch. Driving is a serious problem. I've never been able to get through a movie in its entirety, reading lasts about 10 minutes, Iectures/conferences are impossible to get through. Too many times I've had to excuse myself from an outing for fear of falling asleep.
My diet is healthy and I get 6 - 7 hours of sleep each night. If I go to bed an hour early I will fall asleep but will be wide awake at 2 or 3. If I do fall back asleep I will sleep through my alarm.
I start out for work in the morning and home every night afraid the worst will happen. I must work and public transportation does not exist where I live.
I need help.