This patient support community is for discussions relating to Speech and Language Disorders. Topics include, but are not limited to: Aphasia,
Apraxia,
Autism and Communication, Developmental Dyspraxia, Motor Speech Disorder, Orofacial Myofunctional Disorders, Paradoxical Vocal Fold Movement (PVFM),
Tongue-Tie (Ankyloglossia), Voice Disorders
I have a few questions:
1. Do you have any reason to suspect hearing loss? Does she seem to understand you as well as before? You may consider getting her hearing screened.
2. Have any other areas of development regressed, like motor skills, feeding, potty training, etc?
As for #1, the funny thing about "understanding" is that many children LOOK good at understanding almost everything. Young children are GREAT at following your eye gaze, body language, or pointing to know what you want. They also "assume" based on the most likely scenario what you want them to do. For isntance, if the child is holding a ball and you say, "throw the ball!" they might not really know what you said, but they know they're supposed to DO something, and the most likely thing to do with a ball is throw it.
That said, you can check your child's comprehension by giving directions like, "get the book" without looking at the book or pointing. Or tell your child to do something different with an object they play with a lot - instead of "put the baby in bed!" say "put the baby on the table" Use words you're pretty sure she should understand but give as few cues as possible to see if she's truly comprehending your language, or just using strategies. Also try calling her name softly, playing music, or rattling a toy behind her and see if she turns to look. Gradually do these things louder if she doesn't seem to hear you.
If you find that she has some trouble understanding you when you use fewer cues, the first step is hearing testing. The second step is being evaluated by a speech pathologist.
If the answer to #2 is yes, I would talk to your pediatrician right away to rule out more serious problems.
Good luck!
If her understanding seems fine and you don't suspect a hearing loss at all, and she is only USING fewer words, I would try to see if behavioral strategies help first. She might just be realizing that grunting and pointing works just as well as speaking did, so it's not "worth it." You can make using words more "worth it" to her by making speech more of a necessity. When she grunts and points, say "I can't understand you, you need to use words." If she doesn't respond, model the words for her. Tell her "Book. Say, 'book'" She might just be in a sort of stubborn phase where she knows she can get what she wants without using words.
Other than hearing loss, there are a number of things that can cause such a regression, autism spectrum disorders included but certainly less likely than some of the others. The important thing to focus on is getting it checked out sooner rather than later, and if you don't think the doc is being thorough enough, get a second opinion. Parents who follow their gut instinct often are the ones assertive enough to get the best care for their children!
You HAVE to do your own research, if you are not proactive and keep bringing up possiblities, the professionals will try to stear you toward audiology and psychological causes. Listen to your intuition.
They kept telling me it could not be Apraxia, because Oral (large motor control) and verbal (minor) go hand-in-hand and cannot be seperated.
I kept bombarding them with my own research and finally found a great SPL at Childrens Hospital Pittsburgh (which is the center for research and treatment of Apraxia.)
My son is now almost 5 and is talking at a 3 1/2 year level, but he IS talking and is completely understandable to peers and adults. He will be attending mainstream kindergarten next year with NO assistance.
You have a long road, but get a support group, listen to your intuition and be a warrior!
I do think my son's Apraxia (learning disablity) was triggered by vaccinations. He hit every milestone early and was talking before 18 month vaccinations and then 95% or his speech evaporated after the fever went away.
My son is also considered on the road to recovery and the SPL's are amazed with his progress, which I credit to the intervention. His former pediatrician said right before we switched, that because of his fast language progression after starting the diet, he must have been misdiagnosed. But she agreed with the diagnosis of Severe Apraxia and told me to prepare myself for the possibility of Special Education for the Hearing and Learning Impaired! I REFUSED to give up, did my own research, and now he talks well enough to go to mainstream kindergarten!
Also talk to your doctor about spacing out her vaccinations. If they don't listen, start asking your own questions.
There may be a genetic link through mitrochondrial DNA, but again I think there is a range of differences in the DNA make-up. Some children with autism have other specific DNA abnormalities, and it seems to be suggested that some children on the spectrum have some DNA differences with either mild symptoms of mitochonrial Dysfunction, or no symptoms whatsoever.
You will probably never find a doctor who will admit to this, but vaccines ARE positively linked to Autism and behavioral disorders exactly like your daughter's! There is treatment that is successful for some children - it's called chelation.
I have completely stopped vaccinating my children because of the horrors I discovered once I began really researching them. The info is out there - all over the internet. Look it up and see if it rings a chord of similarity with your daughter's symptoms.
Don't forget a bottom line that drug companies profit billions of dollars because of vaccines, and there are way too many conflicts of interest among high-paid drug company staff and organizations like the CDC. There is no solid evidence that vaccines are effective anyway.
Here is a documentary on vaccines that is very educational:
http://cryptogon.com/?p=3592
There are many different types of approaches, strategies and therapies out there. There isn't the evidence out there that vaccines = autism, because if there was, we could all take the drug companies to court. Some children do have adverse reactions to vaccinations, but many parents recognise that their child had autistic behaviours BEFORE vaccination. For other parents the onset of symptoms is usually at around age 3 which is when the vaccination is administered. That doesn't mean it caused it. If they had delayed the vaccine the child would still show autistic behaviour.
Ask your neurologist and other professionals involved with your child about therapies, or contact a national Autistic organisation in your country and see what they have information on.
There is much more clinical evidence that sound therapy and physical movements that improve brain structure and development have much greater and permanent success.