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I know enough to know that I don't know enough.
Here's the scoop...
22 month old son, sacral dimples, chronic constipation, bladder instability.
Tests: MRI tethered cord inconclusive, suspect occult tethered cord.
Bunny trail after MRI: found cystic teratoma.  Surgery: benign teratoma attached to tailbone and rectal wall.  Removed teratoma, tip of tailbone and was able to keep rectal wall intact.
Ultrasound & Urodynamics with bladder instability diagnosis.
Meds:  Miralax for constipation, Oxybutnin for bladder instability.
Next step: consult with Dr. Puccioni, Omaha.  It's my understanding we'll be discussing surgery for occult tethered cord.

If you are still with me after reading all that...
What do I ask?  I've read up on occult tethered cord.  I need to be my son's advocate and feel like I'm going to fall short, unless I have a better feel for what I should be asking.

Thank you, in advance, for letting me pick your brains and taking time to answer.
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620923 tn?1452919248

  Hi...U may want to join over in the Chiari forum where others also have this condition....I had the sacral dimple at birth and a umbilical cord hernia and nothing was done, nothing was ever told to me until as an adult I went to Drs and found out I had tethered cord....I have yet to have surgery for it, but did so for chiari....

See a Chiari specialist as they r well experienced with all chiari related conditions and TC is one of them.

http://www.medhelp.org/forums/Chiari-Malformation/show/257?controller=forums&action=show&id=257&camp=msc
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Thank you, for the suggestion on joining the Chiari forum.  I'll be doing some reading on Chiari and will ask Dr. Pucionni about it.  
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620923 tn?1452919248

  Glad u will be joining us as many of these conditions r related and we do have others with this condition that already had surgery...so u can get diff view points.
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