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Scoliosis
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The spinal cord is the part of the nervous system that relays messages to and from the brain. Discuss topics including spinal stenosis, spinal cord injury or damage and treatment methods.

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Scoliosis

I am a 19 year old female with scoliosis and a left curve of 31 degrees,
I wore a boston brace for 1 and a half year
My curves are suspected to be worse, going for X-ray in a few weeks haven't had one in 2+years

although my back is ribs and hips are defiantly more unaligned

Here is my most recent X-ray it is lying down though so my spine is straighter and is not a full spine X-ray where they can measure it. (Also it is backwards my curve is to the left ) I go for full X-rays Wednesday, just thought Id show you though, It looks more than 30 degrees but obviously I am not a dr. Any thought, comments appreciated I am quite nervous!
11 Comments Post a Comment
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3109210_tn?1342664082
wow forgot to put the picture up lolhttp://25.media.tumblr.com/tumblr_m72ikxjDNo1rash0io1_500.jpg
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having issues lol here is the link hope it works!
http://25.media.tumblr.com/tumblr_m72ikxjDNo1rash0io1_500.jpg
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620923_tn?1439824912

  Hi...I was able to see ur MRI of ur spine and the  curve from ur scoliosis, but  I really do not know how to advise u...the only thing I can think to suggest is  have u had a MRI of ur Lumbar spine to rule out tethered cord?

I know u also have chiari and TC is a related issue and is y many with it get scoliosis....I have a slight curve, nothing like urs....but it is there and I do have the tether.

Also Ehlers-danlos may play into this and all should be ruled out.
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This is just an X-ray, I have not had updated MRIs yet I also don't know if  I have chiari we are looking in to it, thanks for the advice, right now I am just waiting for dr. appointments.
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620923_tn?1439824912

  Oh ok....I was under the impression u had the Chiari dx already.

Well do get the full spine MRI....lumbar, thoracic and cervical.....and of course the brain MRI w/wo contrast...if they see a herniation u want them to look for a CSF obstruction as well as a syrinx, they can be newhere in the spine....

If u have tethered cord, it is not always seen on a MRI, but u can have an indication with the brain MRI if u have an elongated brain stem it points to it big time....having scoliosis is yet another possible indication.

Keep me posted on what u find out.


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3109210_tn?1342664082
Hey everyone,
Just got back form the dr. My thoracic curve has gone from 30 degrees to 42 degrees In 3 years!!! My doctor recommended surgery, but first I am going to Barrow Neurological institute to try to find out why it has progressed so fast when I am done growing. Also it sounds like if I decide to have the surgery it will be pretty soon like the next few months. My parents have to talk about it first. I want it, but my mom and dad seem really scared. Anyways here is the X-ray ( it is backward on here due to my laptops camera)

http://25.media.tumblr.com/tumblr_m7...h0io1_1280.jpg

Finally, finally I can become straight, and fixed, i have been waiting forever!!!!

so happy and relieved
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http://25.media.tumblr.com/tumblr_m7ddbn6Sfa1rash0io1_1280.jpg

here is the link hope it works
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620923_tn?1439824912

  Sounds like u r making good progress and u r happy...so I am happy for u.

Do keep us posted and what u find out at Burrows : )
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THANKS!!!! when the dr was telling us about the surgery my mom was like do the parents get to be anesthetized too? (as it is like a 6 hr surgery) lol
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620923_tn?1439824912

  LOL...I am sure my DH would have liked that as my Drs told him approx 4 hrs and it was closer to 7.5.....that drove him crazy....waiting is really hard.....there is nothing then can do.

What I did and suggest to others going in for surgery to have a phrase to tell someone in recovery, so they can report back to the others that u r ok......

My DD could not be at the hospital the day I had surgery, so I told my DH to tell her something he had no idea what I was saying, but it made sense to her and made her feel better....

See if there is something u can say at this point so it can offer comfort while they continue to wait as they can not come and see u ......

Just an idea that may help : )
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3109210_tn?1342664082
Very good idea thanks :D
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