This patient support community is for discussions relating to stroke, rehabilitation, ability to eat/swallow, alertness, bowel/bladder control, depression, motor skills, nutrition, orthotics/braces, pain, prevention, senses, and spasticity.
I had a bad stroke, felt like my brain was blowing up. Actually i had multible sometimes 2 a day. Went to hospital, where they did like 3 cat scans, then asked them what they were doing?! Told them i need oxygen! Eventually i passed out. They put me on Abilify, & it made things worse. My eye site started changing colors, walking funny. Way to long of a story. I am on my 1 year aniversary. I cannot control my swelling in , now both of my legs, ankles. It spreading to my eye brows. Got cateracts, glacoma suspect, getting worse, breathing problems.(i hyperventilate, or use high doses of oxygen to help. Losing my ability to walk, unless i use pain med. Require tons of sleep, that i try to fight off, & now i think i have vascular dimentia (dementia). All of this was tried to be covered up, but after the eye specialist moved on, i got the records, & i did have a stroke, , cerebal artery sterosis, peripheal vasculitis, parathesthesias, bad case of ear infection for 8 days.(possibly acoustic neuromy) Also in my feet. Only thing that helps is high doses of oxygen, & rest. Cant do symple tasks. To long on computor, & my right eye vision starts rolling back, & i start to sleep, & fight it off. Getting worse each day. Asked my doctor why dont u just fix me? I think the first time they could have fixed me?(coil) in my brain? Still trying to get me to take anti-spycotic drugs, which cased this mess-up. I am not even spycotic, but it is a good way to cover up their mistakes. So much to this story but trying to keep it short. Pretty sure i am going to die soon. Asked doctor, & he told me everyone has swelling! Started 3 years ago! He would not give me an answer. Asked for referrals, & they refuse. I called brain institute, & mention a neuro surgeon. I called them up, & they go, 'where did u get this phone number from?!!) No we cant see you! I have full insurance. OH, even mentioned myelin sheith damage/cell damage, cause of shower shock. No iniciation! It is hard to do anything. Talking even open an envelope, or wash dishes! I was not like this 1 year ago! I have even gained weight, n i dont eat much. I use to be active body man, with a bmi of 6. Now it is 28! Anyone had similer experiences!?!! What should i do?
Hi, it is difficult to predict the exact outcome after stroke. The etiology of the stroke is important. For example, a small stroke can be caused by simple dehydration. The human brain has great redundancy. In some cases memory is damaged. In other strokes only partial paralysis may be involved, which may disappear. As to whether or not the patient can be "just like they were", the answer is "probably not", however with a caveat. Some stroke patients do appear to have 100 percent recovery. And many regain a great deal of their abilities. If the "stroke" is stabilized, and there is no further bleeding or clotting I would remain optimistic. Continue with physical therapy, this may help reduce the swelling in the legs. The swelling could also be due to other causes like cardiac failure or anemia, check with your doctor regarding this. Good luck with your therapy. Regards.
I just sent you a message, but it came back as to long? Now, i am whipped, & cant see. I cant get a new doctor, they got me as crazy. My heart doctor wont see me, cas he avoided me for over 2 years, since my last 1 retired. Now i just got message from his office, & his nurse is seeing me. My eye specialist moved out of state, after he told me it was my eyeglasses!(got second opinion. My neurolist, only good doctory, that was worried that i might be getting toxix enchopholy, died. No doctor will see me, now, because of last doctor, told Mayo clinic that nothing was wrong with me, dont have strength to finish. I am sorry
I don't believe that no doctor will see you. Time has passed and you have further difficulties. Keep trying to get an appointment with a regular doctor who can then ask for testing or referrals to other doctors. Good luck.
Just really wanted to thank you. I had a few problems with my stroke, & 1 of them, maybe, might had prevented it? Anyway, ur answer probably not, is probably right! For 1, no-one checked for bleading.(problaby to late) They tried covering it up, cas in my take home paperwork, it said DNR!, then Recindered. I never said anything, EXCEPT, "What r u doing to me! This was after the 3rd cat scan in a row, with who knows how much radiation? What they did not know, was i had my brother outside, PLUS 3 ER doctors, & they did not know protocal for oxygen?! (went in for, thought severe cronic (chronic) cluster headaches, from years of over exposier of ppaint, & carbon monoxide poisoning. Then they , after cath. me, told me, OK, we will give u 2 liters! Told them 8-10 liters. They were actually laughing at me, as i was crying, for oxygen. They were not expecting me to wake up, BUT i did, next day, & i was not in neurology(i had an appointment!) I woke up in the mental ward! Asked where my doctor neurolist was, & they go never mind!"HE is out of the picture!) plus not once did he visit me. You r right, i ended up with cateracts, glacoma, & now severe dimentia (dementia). Dimentia (dementia) is so noticeable, i cant do symple things like i use to do. Think, i ended up with of coarse dead brain cells(my myelin sheith) I have no iniciation, to even start a progect, as much as i try, & force myself!. I even ended up with shower shock, & dimentia (dementia), swelling, so noticeble, i forget if i took my daily meds! I wake up from a nap, & no idea what day it is, morning evening, & even where i am! If i try to do a symple notes, & fall asleep, before i get it done, i forget where it is, & so on. Each day is worse, conciderably. (i even use to be a good speller!) I am now afraid to even ask for help, & cant even get mental health treatment! They changed it to somatic fears, & suicidal! I dont panic, & i dont care how much they abuse me, i will not kill myself! I decided today, & hope i do it, is call my realistate lawyer, & maybe he can lead me in right direction. Only reason i am calling him, is i have a note due on my other house, & they cant pay for it. I even found a semi cure, & did what Sara said below, & went to new doctor with my condensed folder. He was a heart doctor, & told me same as ive been hearing for 3 years. You need a nuerolist. I see a neurolist, 7 they tell me i need a cardiolist! THEN!, this NEW doctor actually was upset, that i was using oxygen therapy, & asked me HOW, i got the oxygen?(he knew my previous doctor wolud not give it to me.(before my attacks, then blamed it on the neurolist(newer one) I warned her, & she told Bad hospital. I am not goin to get into that part of story, cas, i want to write Sara also, 7 right now, still am feeling fairly well from a nap, i didnt realize i had taken.(that is severe brain damage, & i found a semi cure, the oxygen) SO, this new heart doctor tried to keep in good form(what ever that word is?) but was quite upset, when he found out i had 2 eight gallon tanks.(WHERE DID U GET IT FROM!) Previously i had asked my PC, FOR THE SCRIPT, N HE GAVE IT TO ME, THEN TOOK IT BACK, & SAID HE WOULD CALL IT IN) I even heard him from the other room! Day later, i called both local companies up, & they told me, no one called in any oxygen? I go r u sure? By this time, 2 months of brain blowing up experiences, i flew my brother up, & i had oxygen next day. Just last week asked for new type, that requires a test, so i dont have to pay for it, & my doctor told oxygen man to ok it with my OLD PC! I found that out, by oxygen co. Then i told oxygen people, the fax number, & everything. By now oxygen man ws getting very nervous, & told me not to worry. "What about my prescription that i need?" Never mind it., I will drop the test off tomorrow. I called the state(ship)organization, & she made things worse. Never, mind wont go there either. got to / or want to writweSara also. LASTLY, I WANT TO THANK YOU! It is hard to beleive, that i get better health care in a 3rd world country! No way, i am capleble of a 25 hour air flight anymore. Thank u, DR. PS, I dont have any therapy either. My therapy was old school, pain meds, & now oxygen. Before that it ws predizone, that also worked. (actually wen i ws in 1st BAD hosp. i ws talkin about, i was on oxygen 24-7, predizone, & suboxone(like a pain med, but for addicts) I wasnt an addict. I dont crave for meds. I pray to get well. Thank you! Steve
Hi Sara! I actually feel a lil happy, cas i am going to get myself to call my real estate lawyer, only cas the people's note is now due, so i will see if he can steer me in right direction.(still feel like a fool, but im goin to pay him to look at my newist file with pictures of me dieing.(but if i do oxygen it helps so much! (read above letter to DR.PADELER, above) OK, I DID WHAT U SUGGESTED, since u had a good point, time had gone on for sometime, plus i called the state agency up. First i just wanted u to realize i moved up here for better health care for me, & my baby. Once the state found out, all these problems started, didnt know it was goin to go this far! Went to court to begin with 4 years, ago for a divorce, & state got involved for about 24 hours.(We r 1 of the only 5 stated in USA, that does not have equall parential rights) So THE woman, always gets the baby, even if she is unfit. I''''M not getting into that, except, i didnt realize i was going to be denied medical care my first 3 months. Her lawyer, became governors lawyer, now congress woman! I openned a can of worms, when i posted a story on corrupt DCF, & how they kidnap innocent children. Post on line, under VT. DCF. If only i knew about it during my divorce!(want to try to keep short, so also try to read other answer above that i mention) I figure why not try again, so i went to new heart doctor, showed him everything. He goes i am not a neurolost! I had gone to 3 diff. neurolist. They told me, not a heart doctor! Then, told him, i can controll it with high doses of oxygen. Nice guy, BUT U COULD SEE, when he got upset, & was actually shocked, that i was able to get oxygen? "WHERE DID U GET , & HOW DID U GET OXYGEM?!!) OMG(JUST WASTED ANOTHER FULL WEEK OF NOTE TAKING!) T hen i really knew when, he goes, I dont think u had a heart attack, even! I told him, ya, u, & 8 other cardiolist.(tryid covering that up, cas i use to be very very fit, & ER sent me home with a massive 99 percent blockage. Well in cardiac rehab, nurse made a mistake, & confirmed it, say, wow, THAT WAS SOME HEART ATTACK! Then, FINALLY found older cardiac doctor, who actually care for me!(but during divorce he retired. was getting old, but ws coarced, cas he would had sent me a letter in mail. Also the only doctor to make sure i dont lift weights. Always would ask, cas it took 2 years to get rid of some of the muscle mass. This new doctor then said, go ahead, & lift weights. (i HAD DONE IT, 3 years ago, after first seeing him, but after a few days, of push-ups, i got another heart attack, & had to cancel my upcoming appointments with him, cas i was on predizone treatment, & then i got the stroke, that the other hosp. tried to cover up. I even find it hard to believe, but more important what they did to me mentally(actually from the stroke)
I am starting to get tired, & pain behind my neck bone(sign of an attack, but nothing to worry about) so, forgot what i ws talking about, BUT, the dimentia (dementia) is SO bad. OH, now i remember. told him, i cant get mentel health, & he shrugged his shoulders!(they r also connected to hosp!) Last time, i saw them , they changed their report on me, to somatic fears!(i got my records. there not fears, it all on paper, & everything had, or has happenned, except, they even added suicidle! NO WAY I AM I SUICIDAL, & I WOULD NOT GIVE THEM THE PLEASURE!(plus dont think i could even do it!) So, ON MY WAY OUT, I GO, (STILL IN GOOD MOOD, BUT SERIOUSLY TIRED!) i ASK HIM(sorry cap letters) 'wHAT ABOUT MY DEAD BRAIN CELLS? He told me they r dead, they wont get better. Then he made sure to say, well come back if u need me. "OK, DR. thank you very much") You, know Sara, at lease i know my hypothesis on oxigen DOES work!, & went i got home after passing out, i went online, & sure enough, OXYGEN, NEW FINDINGS, & STILL LEARNING. Thos buig tanks. My eyes r starting to close on me. that means instead of fighting it, take a nap! You have been SO, thoughtfull! Actually want to thank all 3 of you, the 3rd person, ws Ken. I tell you, if i didnt have these 2 houses, i would not be in this trianglle of 3 states. So tired, & just dont want to lay down, but cant do anything like this anyway. Staying awake, with 1 eye, open, just causes more damage(i think?!) I got a new outlook on life, hopefully. Ive dodge a lot of bullets, gotton everything in life , even perfection, BUT it did take its toll on me. Again, want to thank everyone & look forward to another tomorrow! Steve
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