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Is this TMJ or neurological? Can It really be this severe?
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Is this TMJ or neurological? Can It really be this severe?

If you read my other post..( Which I have been undiagnosed with weird/painful symptoms for almost 2 years now )
http://****.com/2011/12/introduction.html



I have tingling in my face
numbness
severe pains in my head/neck
my jaw pops
my ears hurt and feel like they are burning
I have severe facial pain in my cheeks, chin etc.
base of skull hurts
throat sometimes feels like I cant swallow...
hurts to chew
hurts to open my mouth really wide

I do grind my teeth at night because, when I wake up it is hard to get them apart.

For two years ( starting december 2010... ) Ive seen a lot of neurologist and one ENT
had so many mri's but focused mainly on my HEAD.

I just went to the dentist after 8 years of not going and they said it could very well be TMD/TMJ.
Although, my dentist didnt really do any clinical tests or excersizes to properly diagnose it.
They didnt show me anything on the xray though, she said that I had two impacted molars
and two baby teeth that had not came down....also have to take meds for it being infected.


My question is, would TMJ really cause all of my pains or should i still focus on neurological things?
I do see a oral surgeon sometime next week.
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8 Comments Post a Comment
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Avatar_m_tn
You probably have both tmd and neurological problems.seeing an orofacial pain specialist is advised.
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1983417_tn?1326420470
Sadly the pain of tmj makes you think its way more serious than it is. I actually suffered from a 5 month tension headache because of my tmj-this headache never left. The pain had me believing I had a tumor or neuro problem! My nuerologist put me on pills and I'm doing a whole lot better now. If u have daily facial pain and skull tightness your prob suffering from tension headaches, suggest it to your neuro and damnd you deserve relief! I'm still in the process of finding a proper tmj specialist though :/ best of luck to you
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1983417_tn?1326420470
P.s- I've had tmj symptoms since 07, if untreated yes I strongly believe you can suffer from this for far too long
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Avatar_f_tn
Yes TMJ can cause all of those things. Unfortunately I know this via experience. Thankfully I only have some of those things now because I had successful surgery about 10 years ago now.

One thing that would likely help is some physiotherapy (sometimes called physical therapy). While you are at the oral surgeons ask them who  they use post surgery (only go to a specialized therapist not just anyone out of the phone book). They can help loosen the joints by teaching you exercises and using things like ultrasound.I would also inquire about a night guard for the teeth grinding.

Also not all oral surgeons (oral and maxilliofacial surgeon is the official terminology) are created equal. Some just deal mainly with pulling teeth. A good bet is if your surgeon does some teaching at the University. My oral surgeon posts his information, education, etc. on his website.

Before going for any type of jaw surgery always get a second opinion and inquire how many of this type of surgery they've done.

If it is TMJ there is a lot that can be done so you may be able to find some relief. I would also try to get a referral to a pain specialist. They can help you learn how to manage the pain better.

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1166456_tn?1310011517
hoping that i can get answers and relief. I hate feeling this way every day of my life pretty much for the past two years.
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Avatar_f_tn
Every thing I read from your life is like a mirror image to mine,which has been horrible living through the past several years.. I have had four teeth extracted IV surgery by my Oral Surgeon...TMJ/TMD also.. I used to grind my teeth.. Have fibromyalgia and been gong through migraines too. please consider looking up Hemiplegic Migraines.. you may find similar symptoms as I have with that additional to everything else.. my youngest child is 5 months old and have been having complications after my first epidural..Currently laying in the hospital bed on day three waiting to finish the lower portion of my MRI/MRA and EEG exacerbated my migraine and mouth/jaw issue more so.. Ruled out Thyroid and B defiency.. MS hopefully being ruled out tomorrow.. horomone issues/polycystic ovarian syndrome and many other things..But my anxiety usually is what makes these symptoms worse.. everyday life stress and I have four older children and doing my best with a
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Avatar_f_tn
with a baby and going tough times.. Lost my left side functions in my hands and left leg.. vision shimmers nd think after having my  epidural then month later  had my tubes ties.. after that resp infection which lasted three weeks and finally my four teeth extracted IV and have been looking up  anesthesia complications after the surgery.. (memory loss ect) too much anesthesia actually and complicated my symptoms. So hope you'll get everything if  you haven't yet worked out and thank you for writing..Cause I'm not alone. :)
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Avatar_f_tn
I had TMJ and fortunately I discovered early on a chiropractor can adjust your jaw to properly align it. After an exam the Doctor took an open mouth x-ray and discovered my jaw was out of alignment and I my occipital nerve was compromised due to my bone mis-alignment.  Both cause the symptoms described.  No drugs, No surgery, No nerve blocks.. Just correction of the problem.
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scottma
taipei, Taiwan