severe jaw pain, tongue cramping...

[goldygirl]

When I was 9 years old I was invovled in a head on motorcycle accident in which my left jaw was crushed. During reconstructive surgery an infection was introduced and I lost my jaw for about 2 years while they doctors battled the infection. It was finally rebuilt using a rib graft. A lot of cutting was done on my face and neck. Now at the age of 50 I am experiencing severe jaw pain in that jaw, neck pain on that same side, tongue cramping and severe tongue pain. I cannot turn my head to the left and the pain is excruciating. I know I have a lot of nerve damage on  that left side where the ijury occured. But everyone I have seen, from oral surgoens to dentists to doctors' are stumped at what is causing this and no one will treat me. I also have severe swelling on that left side and my mouth becomes lopsided during these attacks of swelling. I have been checked for infection in that jaw and don't have one. I do have cysts and what I have been told are " major issues" in that jaw and my neck. I don't know what is causing this? Or who treates it?

[goldygirl]

I did find out what all the pain in my face is..Its called a facial migraine. I had never heard of such a thing! So if that helps anyone else out there who may be suffering with this.

[goldygirl]

Thanks..I will check that out. Its very hard to find medical help for this.

[scottma]

seeing a tmj specialist or manual medicine practitioner such as osteopath or chiropractor, who may help you. dental school or medical center may have orofacial pain department.

[goldygirl]

I still coudn't find anyone

[goldygirl]

Thank you Scott, I will check that out

[scottma]

Please visit american academy of orofacial pain(AAOP) web site. There is a member directory, which you may find the nearest one.

[goldygirl]

There are not any  specilists in that category where I live. its been a real problem.

[scottma]

Seeing an orofacial pain specialist is advised.