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The Chronic Pain Couch User Group
HERE...OPEN DISCUSSION....HERE....
About This Group:

This is a great site for anyone suffering from Chronic Pain or has a Family member or Friend who suffers. A place where you can tell your story, find others with similar conditions or pain, help someone in need, read up on the latest Chronic Pain treatments or simply sit for a while. Chronic Pain as we all know can be debilitating and relentless. It is not prejudice in any way, shape, or form. It can strike without warning and stay for life. The Chronic Pain Couch is a place designed for your comfort, and please note.. You don't have to suffer from chronic Pain to be a part of this community, we offer a variety of other topics as well. I truly hope that you will come and join us. And remember, there is never a need to worry whether or not your post has been read, a member or myself (Molly) are generally available to read and respond to all posts that come our way...... We are always here for you. Together We CAN Make A Difference in each others lives and how we manage day to day in coping with our relentless pain. Warmest regards, Mollyrae, founder of The Chronic Pain Couch.

Founded by Mollyrae on September 22, 2009
775 members
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HERE...OPEN DISCUSSION....HERE....

Good evening!! How's everyone tonight?
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124 Comments
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Pretty lonely out there....Do I have anyone on board yet??
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Here!
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So is there a subject tonight or just open for someone to start?
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I'm here!

I'm kinda disappointed because I had a disheartening appointment w/ my neuro, but I'll get over it.
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Hey, what's up with you ??
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what happened
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Hey! Hi everyone, I actually remembered about tonight!! My badk had been hurting pretty bad today, it was fine up untill I took my dogs for a walk, and then it just started seizing up on me, so now I am sitting here with my trusty laptop and a heating pad...  So how is everyone?
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What happened at your neuro appt.?
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glad to see you Blu.....Glad you remebered...I'm good
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I didn't get a new script for a stronger painkiller, but did get permission to increase the anti-inflamatory I'm already on daily.
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Have you thought about a pain specialist??
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Thats too bad dame_wilbur, sorry to hear that.
And hiya Blu!
Tonight it has hit me I go in for a nerve block in a few days.  I'm soo tired of being messed with that I'm soo NOT looking forward to it
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I need an increase as well, I went back down to 5mg from 15 and it hurts
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Thanks Molly!! good to be here.  Dame, I have a question for you, you don't have to answer if you don't want too, but I was reading your other post and was wondering what happened with the Excederin? Did you OD ?
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OOOO Nerve blocks suck
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It wasn't excedrin.....it was Suboxone and yes, I went into shock...I'll tell you the whole story in a pm
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My neurologist has recommended to me last time i was there, when he perscribed the Fentanyl that I should get an epidoral shot in my back, I am seriously scared of needles, has anyone had this done? is it the same thing as a nerve block?
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I didn't OD on the Excedrin, I just took it so often that I now get REALLY bad rebounds from anything w/ acetominifen.
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Yes, i have done the blocks and they are no fun
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but he thinks that I don't have the ability to control how many painkillers I take and how often.
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EEEKS  don't scare me!  Last time it was a discogram and they claim they did a nerve  block at the same time...  I was in horrible horrible pain after that for a few months.
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I thought that life as I knew it was over....I tried to switch from the Fentanyl to Suboxone and see if I couldn't manage my pain that way...well, I ended up in a hospital room the next day and couldn't remeber a lot of it...It was scary
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I thought I was reading that you had a bad experience with Excedrin migraine? I take that as weel for migraines. Sometimes I need something stronger, like Treximet.. but those are so expensive, even with ins. paying!!

molly I would like to hear about your experience
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Discoggrams are much more painful than a nerve block...nerve blocks are very uncomfortable
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ppl...don't mind me spelling tonight...can't find my glasses
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Just because of the Excederin? He thinks you can't control yourself? that's weird!
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Blu..I will send it to you via PM
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I have had the epidural shots and they were not too bad.  They gave me some sedatives and numbed up the area so didn't really feel any pain at all.  Was a little stiff and sore for a few days but other then that, it didn't help my pain.
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It's paintired, I FINALLY found you:-)  SO sorry to read about Dames's disappointing neuro appointment:-(  Blue's pain! AND  Shellshocker  WOW!  A Nerve Block huh?
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my spelling is awful too when it come to typing on my laptop!! I have no idea why, it's not like the keyboard is any different!!
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Hi Paintired
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I look at keys LOL.....
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Welcome Paintired! I was wondering if anyone else was going to join us~! How are you feeling ?
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yeah, Excedrin has acetominaphen in it, along with caffeine and some other stuff. You really need to be careful how often/much you take of any OTC med, just like any prescribed thing. They just didn't explain that to me in time.
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Anyone see the grammy's
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yeah they think it is going to be my miricle cure.  I'm a little skeptical but i guess at this point I will try anything as I don't want another major back surgery.
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I PRAY nerve block works for you. Where are they doing it?
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Yeah, well he's also a very cautious doctor in general. I think he might have been burned in the past with a different patient, so now he's uber careful with addiction/rebounds.
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huh.. .maybe i won't get the epidoral shots then.. I am very leary about it bacause about a year ago, I had cortisoid shots in my back and all those did was cause MORE pain than i was already in! And when I told the PM doctor who administered them, she just shrugged and said "well, the pain isn't prom the shot, I don't know what caused it "  I couldn't even walk my legs hurt so bad!!
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I'm feeling pained as a matter of fact I was thinking I wasn't sure I'd be able to last long tonight.
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I'm pretty nervous whenever they say that something is going to be a miracle cure, cuz in my case it's usually a bust after getting my hopes up.
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didn't watch the grammy's. I always' mean to watch that stuff.. but surprise, sursrise, I ALWAYS forget!
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Some Doctors have a fear of opiates and just don't prescribe them. It's maily the older Doctors...I have a very young Doctor and prescribes well
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Evening all,posting from my Blackberry at Costco. Just had a less than pleasant steroid injection in my left elbow.  Picking up prescriptions, may not be able to keep up between my big fat thumbs and the rubbish 3g coverage here. I'm at 6/10. Pain, with my elbow bloody throbbing.  Can't wait to get home from some dinner of percocet. Hope u r all as well as can be expected?
-Brian.
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I don't believe in 'miracle cures' personally....  you're right dame.. it just gets your hopes up
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How about you?  How are things going?
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Hey Brian...sorry to hear of the pain...ouch. I'm glad that you could make it
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me too.. i have a younger neorologist... he's been so great about everything
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Hi Brian, good to see you
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I don't think that I would hook up with an older Doctor ever again...They don't seem to be up to the lastest in pain therapy
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They are doing it in the nerves coming out of L4-L5-S1 and anywhere else they can fish around in and find something that produces pain and then numb it.  Then if that works I will go in for a nerve burning.  From what I've read most people just have the nerves grow back or other ones take over.  But atleast my little pmp is a sweetie and will enjoy my jokes (and cussing) while he does it!
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im ok, my back has been hurting today, I'd say about a 7/10.. thanks for asking, it started hurting after I took my babies for a walk
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Brian...SO SORRY to read of ALL the pain and unpleasantness:-(  I hope they hurry up and home is SOON for you.  Have a restful night plus a soothing bath.  We'll talk with you soon.   Julie:-)  Oh, BE CAREFUL and STAY SAFE!!!!!!!
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yeah, my doc's older and more conservative when it comes to opiods. It's frustrating because I fell that Demerol helps the pain more than anything else I've tried. So when the pain gets that bad, I end up going to the ER and getting an IV of it.
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By the way, hello and how is the your new grandson?
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OK, so here it goes.....My Story of what happened with the Suboxone.....

As you know, I have been using the Fent.Patch for over a year now. I started at 75mcg's and crept up to 100mcg's over that year.  Now mind you, I don't quite know what was going through my head at the time...well in part I do. I was so tired of my Husband and Son telling me that the Fentanyl was ruining just about everything about me. My Son and I had a discussion about whether or not I could live with a lesser pain med and I thought..well maybe I could. I've never tried. At that point, my Son had offered me some Suboxone to ease the w/d's and steer me in a different direction. ( possibly just Oxycodone would be enough).....man, what was I thinking.....

last Wednsday during the morning hours I took the patch off and started the process. (keep in mind that my Doctor knew nothing about this).

The day went quite well, nothing major to speak of and even into the night was alright. I awoke around 9am and still felt alright and then early evening fell and I was beginning to get pretty uncomfortable. I decided that it was time to take the first Suboxone Tab. 8mg sublingual. An hour went by and still felt horrible so I took another 4mg. MISTAKE!

The Suboxone set in gear high speed w/d's....everything all at once. My skin was burning so bad that I was tearing at it. I couldn't breath very well, I was shaking so bad that I could not get up, everything was blurry, the sweat was streaming down my face and I was screaming in pain. Thank God that my Husband was here. He called 911 and the Paramedics were here in minutes. At that time, my BP was 200/110 and my heart rate was 140. They didn't take time to assess me, they just whisked me off in the Ambulance and the driver went a high speed. It felt like the cot was going to come rolling over around every corner.  This next part is when everything started to get really bad...and I thought what I'd already gone through was bad enough.

Upon entering the ER I started convulsing....it weird because I knew what was going on, I just couldn't stop it. I managed to vomit and then proceed to soil myself...how embarrassing. I wasn't given drugs to counter act my W/d until my drug test came back from the lab. I had told them that I don't do street drugs but they wanted to make sure. As I had said...it came back clean. I was then given drugs to stop the w'd's. They gave me Ativan, Narcan, more Ativan and finally Fentanyl. I don't remember the rest.

I awoke the next morning in a private room feeling exhausted and run over by a truck. The Doctors had evidently put 125mcg patch on my back to bring me back up to speed. I was given 5 patches and quite a bit of 15mg Oxycodone and sent home.

NOW....I have to face my Doctor. OMG...what is he going to say? I can't even fathom it. I have asked my Mom to go with me to help explain my family circumstances and why I did what I did. Oh, my Mother and my Husband  also ripped my Son a new *******. I guess it wasn't really his fault...I took the Suboxone.

So there my friends. That's the story. I was told by the ER Doctor that the Fentayl is such a potent drug that the w/d's are from Fentanyl are the worst he's ever seen. He said that he would NEVER prescribe it to his patients unless they were end stage cancer patients.  Somehow, I believe him......I am now going to ask my Doctor to get me off of the Fentanyl and put me on a pain med that's not so dangerous. I can live with a little added pain.
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Do you have an option of finding a new doc?  One who might be more receptive to RXing some stronger pain meds?
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Grandson is great
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My Primary is an older guy, in fact he has been my parents doctor ever since he started practiciing, he's a good Dr. don't get me wrong, but he does not care for my neurologist bcause he thinks he gives out the narcotice a little to liberally...  But I day, he's just understanding about my pain.. He suffers from Migraines as well, so he knows something about what I am going thru!
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It's good to know that Doctors suffer too....they can understand pain....
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I find it very frustrating that we sometimes have to choose between safety and a lack of pain. I understand why we have to make that choice, but it's so annoying that we can't have both.
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Hi Jackie, this is bloody impossible with my phone!! Ill keep trying tho. Hows the weather in Wisconsin tonite?
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By the way Molly, how is your new grand son?
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Grandbaby is great...I can't get enough of him

Wisconsin is COLD tonight
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Oh wow you did have a horrible sudden w/d!  Yeah that sounds like an instant Narcan injection.  I used to be a paramedic and when we found heroin overdoes we gave them narcan.  Give a little too much and instant W/D! which wasn't pretty
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Shell....I had a lot of everything...I was never so sick in my life and will NEVER do that again....I have a great Doc though....he understood.
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That sounds horrible! i'm so glad you are OK now!! scary stuff, so is everything cool with your doctor? I forget, areyou still taking Fentanyl now? or something different?
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I can't blame you there.  The IMPORTANT things we do for our children are worth the pain we experience.  I felt SO MUCH pain in my neck for so many years just to see and experience the joy with my children.  EVERY second was worth it:-)
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Molly, u r brave telling ire story
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speaking of cold, how is the weather effecting all of your pain levels? There have been a series of storms here and it's been awful on my head.
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Yes how is the fentenyl going now?  Are you weaning or did you start on another med?
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it is cold, but not as cold as it was the last 2 days!! but it's supposed to snow tonight, at least where I am, just flurries, nothing exciting!

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I'm still on the Fentanyl....My Doctor was very cool about it. He knew that I had poor judgement on that day. We talked for about an hour and he kept my meds about the same.
He wants me to decide what I want to do next, either stay at my dose or reduce...it's up to me
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YES. SNOW IT IS.!!!
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I get awful migraines when there is a change in the barometric pressure, and the bone-chilling cold  makes my everything hurt, especially my back and knees.. sometimes I feel like i'm 90 yeasrs old!
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I've been a wisconsinite my whole life
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My last time in they suggested I should decrease down for a bit and then up it so I'm not soo tolerate.  Or just start weaning down and trying something else.  I'm going to talk more about it with him on the 3rd with my procedure as I really want off the stuff..  75 lbs lighter now and still going.  I'm the incredible shrinking woman!
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I feel brave tonight brian....
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I don't think that I will tolorate a decrease. My Doctor and I will work on it on the 11th
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I want to lose some weight!

i'm born ans raised in Wisconsin, used to hate it here, but now, I can't imaging living anywhere else, well I've always wanted to live in Seattle, cause it rains there alot,  and  ILOVE the gloomy weather
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yeah, barometric pressure changes are REALLY bad for my migraines. I've had that problem since I was a little kid. But it's gotten worse with age.
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What I am doing is seeing if I can tolorate a 75mcg patch. I just cut a quarter of it off per the Doctor. We will get my opinion on the 11th.....So for so good. The 75mcg seems to be working well
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congrats on the addition to your family
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Where in Wisc. do you live...I'm in Madison
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So I take it you don't have the patches with the resiviors? since you can cut them
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I'm fine once it's raining, but it's the change between that and the clearer skies that is the hard part.
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I live in Waukesha. do you know it? it's about an hour west of Madison
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I do not want to say anything to scare you. My previous Pain Management doc was NOT good! I just changed Pain Management doctors because of nerve blocks AND a 4 nerve burn in my neck he did that has caused MORE damage:-(  I just got a CT scan last Thursday and MRI both with and without contrast. I see the new Pain Management doctor and her husband who is an Orthopedic and Neurologist Surgeon this Thursday. I have seen them once already and they were AMAZING, so far. As long as you have confidence in your physician and know he/she is knowledgeable about what in the world they are doing, I say GREAT! I just pray for no more pain!!!!!!!!!!
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I don't have the resivoir kind...I use the matrix patch so that I can cut them
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YUP! Same here...  stupid weather!
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Yes. I know where Waukeshaw is...lived in wisc my whole life...we have vacation home in Red Granite
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Molly, we're practically neighbors!!
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Yup, you me and Tuck
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Yeah I've agreed to the nerve block since that is shorter actting.  I'm not sure yet about the actual burning.  I just have not found enough research to show it is beneficial.
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I LOVE going 'Up North' my parents used to own 2 cottages on Fence Lake, in Minocqua, God I loved it there! Man I would give anything to have those back again
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does Tuck live close by? Imean, I know she's in WI.
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Oh, Minoqua is beautiful. We often go to Land-O-Lakes to my Husbands Aunts cottage on Big Portage Lake
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Tuck lives in Reedsburg
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I've heard both positive and negative on nerve burning...mostly good though
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Night everybody..hurting!  I've got to go lie down.  Take care and I hope EVERYBODY has much less if not NO MORE pain!

Julie:-)
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I was only about 5,6,7 when they had the cabins, but I remember I went up there about 9 years ago, and I could not BELIEVE how different it was! I hardly recognized it! it was so built up and stuff
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nerve BURNING? I haven't heard about that. That sounds like it would be really painful.
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NITE PAINTIRED TAKE IT EASY AND REST
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By Pain!! hope you feel better

jackie
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I think they put you under to burn nerves
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nerve burning doesn't sound very fun
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I'm fading fast. I think I'm gunna go and crash for a bit.
See you all next Monday,

~Dame
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I agree but I have heard that your no longer in pain in that particular area
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Thanks Dame for coming tonight...take care friend, see you nest week
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you know what bothers me? I have been married to my husband for 2.5 years, and he has never ONCE asked me about my accident, I mean, he knows about it, but he has never asked, same goes for my family, they don't ask,  it makes me feel like they don't care,  like it wasn't a big deal,

I want to talk with them about it, I don't want to keep it bottled up, for 10 years, can you believe no one as asked me to talk about it? isn't it natural to get that stuff out there, and talk about what happened?  I have 10years of emotion and feelings bottled up, and no one cares..
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It's 8pm for me and time to go myself. I give myself an hour sitting at the desk...No laptop I'm afraid.

Night to all of you and thanks for sharing your stories....

Peace~
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by dame
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Men are like that......Mine is tooo, that's what were here for
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So that leaves just me... great.. no one to talk to,
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Night all, I'm going to go lay down for a bit as well.  Take it easy and may all your pains be less!
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OH Blu......We can chat tomorrow silly
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well ,I hope you feel better! have a good night!  see you on the morrow!
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Bye friend
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Hey Brian, if you come back, everyone left, looks like the discussion is over, wish you could have been more present, hope you are feeling better and your pain lessens!

Bye
Jackie
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Hey....NOT ALL men don't listen ladies!!! I just got home from Costco. My elbow is SO freaking swolen!!! Never been like this before. Anyone else here still?
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no, everyone left already, they were hurting, , i';m still here, this thread is getting annoyingly long
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i would like somone to talk to, would you be interested in starting a new thread?
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I am So Sorry I missed this discussion last night. I really want to attend these open discussions. 7PM is an awful time for me. We eat a late supper and than there is Dad's after dinner meds and treatments. I am never free to 8PM. But next week I will do my best to rearrange my schedule so I can be here.

Molly you are close but I do not live in Reedsburg, Wisconsin. I live on a beautiful Lake between La Valle and Mauston, Wisconsin. I am just 20 minutes from Wisconsin Dells, Wisconsin. The Waterpark Capitol of the USA.  

Dustybrown is from the Milwaukee, WI area also. And Missing_me is also from Madison, WI. There are several more but their screen names escape me. So there are a lot of us Wisconsinites on this and the PM Forum.  

It is a Winter Wonderland here today. The snow is gently falling on the majestic pines out side my sliding glass doors with the lake as a back drop, it is breathtakingly beautiful!!!!  
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I was close...I gave a general description...I was going to say in the Dells area..LOL.....

Hope to catch you next week buddy
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