Thyroid Cancer / Nodules & Hyperthyroidism Expert Forum
Can't Get Right Thyroid Treatment
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Questions in the Thyroid forum are answered by Mark Lupo, MD. Topics covered include Goiter, Graves Disease, Hyperthyroid, Parathyroid/Calcium Problems, Thyroid Cancer, Thyroid Nodules/Cysts, Thyroiditis, Thyroid & Pregnancy, Thyroid Stimulating Hormone (TSH), Thyroid Tests, and Thyroid Surgery.

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Can't Get Right Thyroid Treatment

Diagnosed with Graves Disease 11 yrs ago (34 yrs old). My older sister also had Graves disease.  I had radiation ablation therapy.  2 years after I started a very physical job & that's when the nightmare started & continues.  Started with muscles spasms & migraines.  Strong family history of migraines (mother, both sisters) everyone focused on the migraines. I tried to explain to everyone these weren't my "typical" migraines.  It was muscle issues & then went to a migraine. I have been to many specialists& treatment too numerous to list.  Various doctors have micromanaged my thyroid levels & changed my thyroid medication too many times.  Even with slight drops of medication, my hair falls out.  Levoxyl was my 1st med.  4 years ago I was changed to Synthroid.  I still felt bad. Added some Cytomel.  Still didn't feel right.  Finally I had an endocrinlogist prescribe Armour this past March. Symptoms worsening. I can't even carry in a gallon of milk from the car because it causes me muscle pain,spasms, burning & leads to a headache. I currently had whole blood work up at a fibro clinic to check for many items, viruses, yeasts, infections (NEG) along with typical bloodwork.  My T-4 FREE is 0.9 & my TSH is 14.78.  I am positive that is what the TSH is. Thyroglobulin Antibodies is 23 which they told me was "not that high". Thyroid Peroxidase Antibodies is 16. Immunoglobulin M is 297.  I have muscle spasms, pain which is worsening, headaches, IBS w/constipation, mild TED with vision problems, severe depression, leg cramps, high cholesterol  sleep issues, etc.  My husband is active duty military & is currently deployed to Iraq so I am left to struggle with this myself.  I will admit It is my fault lately that I have not gone for another thyroid test.  I am so miserable & overwhelmed I barely function.  Any help or comments on my blood levels?  I was told that my blood levels woudl be more difficult to read since I'm on Armour?  Is that true?  Thank you for your time.
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The recent TSH is too high -- I know you have tried multiple different things, and it does not appear that T3 (cytomel or armour) has been helpful.  So would pick a brand of T4 and stick with it -- closely monitoring to achieve a TSH around 1.0 consistently -- it may take some time for things to settle down and assuming this is all thyroid related (as you have had testing for other causes), then there are really no other treatment options besides trying to fine-tune the T4 replacement.
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Mark Lupo, M.D.Blank
Thyroid & Endocrine Center of Florida
Sarasota, FL
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