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Fibrous Dysplasia and Endocrine disorders
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Questions in the Thyroid forum are answered by Mark Lupo, MD. Topics covered include Goiter, Graves Disease, Hyperthyroid, Parathyroid/Calcium Problems, Thyroid Cancer, Thyroid Nodules/Cysts, Thyroiditis, Thyroid & Pregnancy, Thyroid Stimulating Hormone (TSH), Thyroid Tests, and Thyroid Surgery.

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Fibrous Dysplasia and Endocrine disorders

Hello, I have read from numerous reputable websites that fibrous dysplasia is associated with various Endocrine problems.  I have been diagnosed by MRI as having a benign lesion of the calvarium measuring 4 centimeters and though not certain is most likely monostatic fibrous dysplasia.  However it is non-deforming and contained within my skull.  

I am 28 years old and have never had the ability to grow a mustache at all as there are no folicals there, or a whole lot of facial hair at all for that matter except on my chin (baby faced).    However I dont appear feminine or anything like that.   I was wondering if this could be some evidence of a particlar Endo disorder...

Also I have been screened with a metabolic panel however, my doctor still hasnt figured out why I have a racing heart and palpitations, and frequent sycope, and chronic daily headache syndrome.  I have had an EKG, Echo, and chest xray all normal.  MRI and MRA of brain normal.

I have a very good doctor at a University hospital but I believe he thinks I'm a bit of hypochondriac since I repeat my visit 4 times in 6 months searching for answer to my illness, so can you tell me if there is any test to look out for with my symptoms   in addition to the above questions.

Thank you for your time
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I am not sure I can add much - the usual hormonal testing would be testosterone & LH/FSH to look at male hormone production.  Thyroid needs to be screened with TSH and T4 (not just TSH).  I don't think that the condition is associated with pheochromocytoma which can cause palpitations and syncope and headache -- but this can be tested with plasma free metanephrines.  The syncope and heart rate abnormality may be a vaso-depressor syncope which a cardiologist tests for with a tilt table test.

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