Hello, I have read from numerous reputable websites that fibrous dysplasia is associated with various Endocrine problems. I have been diagnosed by MRI as having a benign lesion of the calvarium measuring 4 centimeters and though not certain is most likely monostatic fibrous dysplasia. However it is non-deforming and contained within my skull.
I am 28 years old and have never had the ability to grow a mustache at all as there are no folicals there, or a whole lot of facial hair at all for that matter except on my chin (baby faced). However I dont appear feminine or anything like that. I was wondering if this could be some evidence of a particlar Endo disorder...
Also I have been screened with a metabolic panel however, my doctor still hasnt figured out why I have a racing heart and palpitations, and frequent sycope, and chronic daily headache syndrome. I have had an EKG, Echo, and chest xray all normal. MRI and MRA of brain normal.
I have a very good doctor at a University hospital but I believe he thinks I'm a bit of hypochondriac since I repeat my visit 4 times in 6 months searching for answer to my illness, so can you tell me if there is any test to look out for with my symptoms in addition to the above questions.
I am not sure I can add much - the usual hormonal testing would be testosterone & LH/FSH to look at male hormone production. Thyroid needs to be screened with TSH and T4 (not just TSH). I don't think that the condition is associated with pheochromocytoma which can cause palpitations and syncope and headache -- but this can be tested with plasma free metanephrines. The syncope and heart rate abnormality may be a vaso-depressor syncope which a cardiologist tests for with a tilt table test.
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