I had RAI treatment for thyroid cancer on Sept 7th. The side effects have been unreal, I have been trying to figure out whats going on with my tongue It is dark down both sides and the discoloration is under the skin. Also I now get bloody noses from everything drying up, and because of this I am have anxiety attacks I dont feel like I am getting enough air in my lungs. How much longer before the back and arm pain go away? I am a hair salon owner and I had to go back to work on Sept 14 so it has been difficult. It seems to get better then get worse again.
These symptoms are not typical post RAI -- see the doctor who gave you the treatment. Common (about 10-20% of patients) symtoms are nausea, vomitting, neck pain, salivary gland irritation, headache and dry eyes. Nose bleeds, dark tongue, arm/back pain are unusual and need evaluation.
Wow! You're definitely an unusual case. I had RAI in April and I didn't experience anything afterwards. Did you speak to the doctor regarding all these issues you're having? Try to hang in there and good luck.
I had my RAI on Sept 7th also. On Day 4 and 5, I had jaw pain and a slight swelling of my face. After that, no pain, but for the past 2 weeks I had a salty taste in my mouth; almost like I ate a spoon of salt. Now that seems to be getting better. Now my only problem is that I'm very tired but I think that's because I didn't get my synthroid dosage regulated yet. I hope you feel better soon.
Don't let the doctor tell you that you are crazy. Make them help you. I had RAI in April and ever since then (starting that night) I have chronic diarrhea. No matter what I eat I get it. Everyday. The doctor told me that it is not related, but how can it not be? I also have major brain fog and my TSH is less than .03!
You are absolutely right! I had RAI in 2002, and have a host of symptoms I NEVER had before, but the doctors keep telling me it's not related to my thyroid or the RAI. I could never gain a pound, no matter what I ate, even after early menopause his at age 44. But when they killed my thyroid, I gained 50 lb in 3 weeks! But that had nothing to do with thyroid/RAI, right? My doctor LAUGHED at me because I had gained weight! And I was eating very little, at that point.....Grrrrr!
For me, Armour has made the difference. I'm still slightly heavier than I want to be, but I can stay awake all day, and work productively, and still have energy to do things in the evening.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.