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Thyroid Cancer, Nodules & Hyperthyroidism (Expert Forum)
After RAI
Answered by
Mark Lupo, M.D. - Thyroid Nodules, Thyroid Cancer, hyperthyroidism, hypothyroidism, Thyroid Ultrasound
Thyroid & Endocrine Center of Florida
Sarasota - FL
Questions in the Thyroid forum are answered by Mark Lupo, MD. Topics covered include Goiter, Graves Disease, Hyperthyroid, Parathyroid/Calcium Problems, Thyroid Cancer, Thyroid Nodules/Cysts, Thyroiditis, Thyroid & Pregnancy, Thyroid Stimulating Hormone (TSH), Thyroid Tests, and Thyroid Surgery.
After RAI
by hashisgirl, Jul 15, 2007 12:00AM
Dr Lupo,.
I had what I thought was only Hashimotos disease for years recently diagnosed as having Graves coinciding (Autonomous Functioning Tissue with Graves antibodies).
I had RAI 131 8 weeks ago. Over the last 18 months was on doses of synthroid 175, 200, 250, off for 9 weeks, 75, 88, 132, 137, off for 27 days for RAI, one week after RAI was on 68.5 for 5 days, then full dose of 137, had labs and was reduced to 100 three weeks ago. I seen in one of your earlier post a lady was on 300 and reduced to 150..you told her she probably " hit the wall" and would need to get used to the change. I feel like I've hit that wall per se too many times over the last year or so. My body, my mind, anxiety , the pain , my periods, digestion everything is whacked... and have also been diagnosed with intermediate diabetes, endo feels this may clear up when thyroid remains stable for a while. Will I ever feel normal again? How long after RAI can you experience hyper symptoms, and can the antibodies Graves or Hashis continue to make you feel bad after the thyroid is gone? How long before the anxiety leaves? I would like to add a B complex vitamin to see if that helps, .
I had what I thought was only Hashimotos disease for years recently diagnosed as having Graves coinciding (Autonomous Functioning Tissue with Graves antibodies).
I had RAI 131 8 weeks ago. Over the last 18 months was on doses of synthroid 175, 200, 250, off for 9 weeks, 75, 88, 132, 137, off for 27 days for RAI, one week after RAI was on 68.5 for 5 days, then full dose of 137, had labs and was reduced to 100 three weeks ago. I seen in one of your earlier post a lady was on 300 and reduced to 150..you told her she probably " hit the wall" and would need to get used to the change. I feel like I've hit that wall per se too many times over the last year or so. My body, my mind, anxiety , the pain , my periods, digestion everything is whacked... and have also been diagnosed with intermediate diabetes, endo feels this may clear up when thyroid remains stable for a while. Will I ever feel normal again? How long after RAI can you experience hyper symptoms, and can the antibodies Graves or Hashis continue to make you feel bad after the thyroid is gone? How long before the anxiety leaves? I would like to add a B complex vitamin to see if that helps, .
Doctor's Answer
by Mark Lupo, M.D., Jul 15, 2007 12:00AM
, Jul 15, 2007 12:00AM
This is a tough case -- when I say/said 'get used to the change' I probably meant that the dose change should have been slower but she may be forced to getting used to the change.
Your case is tough -- this is hashitoxicosis and the I-131 will hopefully have ablated the thyroid's ability to over-produce (due to stimulation by the 'graves antibodies'). It may take 4-6 months to see the full effect so keep testing frequently and adjust the synthroid accordingly but it may take 6-8 months for the dust to settle.
Your case is tough -- this is hashitoxicosis and the I-131 will hopefully have ablated the thyroid's ability to over-produce (due to stimulation by the 'graves antibodies'). It may take 4-6 months to see the full effect so keep testing frequently and adjust the synthroid accordingly but it may take 6-8 months for the dust to settle.
