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Odd symptoms persist...
Answered by
Mark Lupo, M.D. - Thyroid Nodules, Thyroid Cancer, hyperthyroidism, hypothyroidism, Thyroid Ultrasound
Thyroid & Endocrine Center of Florida Sarasota - FL
Questions in the Thyroid forum are answered by Mark Lupo, MD. Topics covered include Goiter, Graves Disease, Hyperthyroid, Parathyroid/Calcium Problems, Thyroid Cancer, Thyroid Nodules/Cysts, Thyroiditis, Thyroid & Pregnancy, Thyroid Stimulating Hormone (TSH), Thyroid Tests, and Thyroid Surgery.

Odd symptoms persist...

by aireamdh, Oct 29, 2006 12:00AM
I began last year with TSH of nearly 57 and antibodies of 8800. Have posted before and hope your input can be of further assistance. Am currently recently ( 3 weeks ago)  placed on .125 mcg synthroid. This was increase from .112. TSH had gone up from 1.87 to 2.8 last blood work. Currently noticing more anxiety, especially in am.Also general feeling of "out of sorts" and adrenaline "rush" This seems to improve as I get up and move about Always wake with this, also odd vivid dreams which began last November and persist, never had those before to this extent. Have had bouts of anxiety thru the years, but not this severe. Had craniotomy 5/12/05 for benign meningioma. But these symptoms seem to have begun and been exacerbated  w/thyroid problems. Also, as happened yesterday, tried for a liedown mid afternoon. Felt physically shaky, my hands went numb, and feet were burning.Gave up and got up.  Have had some of this before, but yesterday was the limit. Are there any tests I can suggest at next f/u to either internist or neuro?? Very much want to get to bottom of this as it has severe negative impact on my daily life right now.  

If this helps, in addition to synthroid, also Tenoretic , half of 50/25 each morning. Ativan 1 mg, 2-3 times day as needed. Would like to not need that. All other meds spaced far from synthroid.
Also having GYN issues right now, to give "big picture". Just over 3 infections ( UTI, yeast, bacterial) had to change antbiotics for UTI from bactrim to macrobid. Reaction to macrobid endedday early.Scheduled for hysteroscopy this week, uterine polyps.  

by Mark Lupo, M.D., Oct 30, 2006 12:00AM
Keep TSH around 1-2.  Not sure about other symptoms -- pheochromocytoma can do this but it's very rare....Low B-12 can cause burning/numb feet.
Member Comments (5)

by CCGirl41, Oct 29, 2006 12:00AM
To: aireamdh
I get the same adrenaline rushes when I wake up, mornings. Mine too settles down once I'm up and moving but at first when Im still in bed, I can stretch and it sets off adrenalin rushes.
The Dr. will come along and aswer you and may suggest 'anxiety' as a possible cause but if you're like me, you can tell it isn't really anxiety, just feels like it.
Something is messing with our adrenalin and I wonder if it is antibodies or leftover hormone we take that kicks in only after we wake up?
I look forward to the Docters answer on this one.
If you do get a chance though, I'm curious if you get this with the stretching too after waking up?

by aireamdh, Oct 29, 2006 12:00AM
To: CCGirl
It seems to kik in just as I am waking. As for the handsnumbness, the neuro has told me there are neuropathies associated w/ autoimmune thyroid problems, this does not seem to be connected to any anxieties. It used to occur for hours at a time during day and night, so in this regard I suppose thats better.  About what I call the "fire ant feet" , I had high hopes that had finally gone.  But it has reappeared.

I just hate waking this way every day.  Hope you are feeling better soon :)

by Free Bird82, Oct 29, 2006 12:00AM
Hi!  Same with me.  Heart palpitations in AM.  I am menopausal at 42, so this may have something to do with it.  ARe you?  Also, since the thyroid discovery, it seems that EVERYTHING for me is messing up bad.  Previously a very healthy woman, now feel like I'm dying.  New Dx:  GERD.  I have gassy belch & heartburn.  Upper GI revealed  a wide esophagus with occasional GERD.  I am on Protonix + take a multivitamin.  I wanted to ask the Dr., but you seem to take other meds.  I take Synthroid ON IT'S OWN at 5:30am.  No food, coffee, etc. for at least 2 hours.  Then a Multi-vitamin at  approx. 12:30pm & my Protonix (acid reducer) at 5:30PM.  The Protonix will definitely interfere with the Synthroid if taken at the same time, but will it if spaced out enough? I imagine that many Hypothyroid patients have various other illnesses that require medication, so there must be a way to take other meds while the Synthroid.  I mean, if we have to take it for the rest of our lives......Any input would help too, & I hope that I helped out.  In reply, again, I get the anxious feelings more so since diagnosis & on Synthroid....OH YEAH, each new dosage of Synthroid I get EXTREMELY real-like dreams.  Frightening at times. Not sure how or if this is related.....

by aireamdh, Nov 06, 2006 12:00AM
To: Everyone/UPDATE
Not sure if this will be significant, helpful,  or even read by anyone but told my internist of these continuing symptoms,including the odd bad restless wakenings. I also said I need you to listen to me and take this seriously, which he did. I was concerned he might have reached a point of throwing an antidepressant at me and having done with it.I did not want to begin a search for a new doc at this point. In any case, he ran a plethora of blood work. Turned out my iron level is what he called "significantly deficient"  Normal values being between 20-55%, mine is at 9 %. He wrote that he suspected that my "early morning restlessness-like symptoms" may be a sign of this deficiency.  Recommended 325 ferrous sulfate 2x day (blech but ok) to be spaced at least 4 hrs after synthroid. Generally he includes the actual lab report, but seems to have forgotten this time. Next to thyroid is circled Normal and he wrote "perfect". I have a call in for specific answers to that and other results. Would like to know why such a low iron level, altho have read several spots that hashimotos can be a factor in itself, thru poor absorption.
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