i was born without a THYROID GLAND, WAS ANY ONE ELSE BORN without one?

i was born without a THYROID GLAND, WAS ANY ONE ELSE BORN without one? just curious?

[ShannieK]

So do you take meds?  that intrigues me.  NO unfortuanatley I wish I didn't have one, but that's intresting.  I've heard of them being taken out, but never of being born without one.

[crys26]

My daughter was born without a throid gland.she is 9 years old now. she sees a specialist in charlotte once every year.Right now she takes .75 synthroid

[marjalo]

Yes, babies are occasionally born without a thyroid gland, and if left untreated, the infant will suffer permanent damge through a condition known as "Cretinism". If thyroid medication is given (and must be taken throughout the lifetime of such an individual), then the infant will grow up normally.

[ninechars]

i was born without a thyroid glad and am on 250 MCG of synthroid.  i am interested in talking with others.

[CaraGirl]

Hi

I came across your comment, Yes I was born without a thyroid gland, born 1978 was caught at 28 days old. they first gave me synthroid and found out that did NOT work for me, they then put me on Levothroid=levothyroxine.  I now take .175 sometimes a .2
I am now 27 years old and have a 6 year old healthy daughter, something they said would never happen.  I am what you call a medical miracle for this condition, I had very wonderful parents who made sure I didnt have the look of mental retardation and education to make sure I became something better. If you have any questions contact me ***@****. I am curious to know how old you are?

Cara

[PATTI4C]

Hi I just read your comment, I WAS 2 WEEKS OLD WHEN THE DR.DISCOVERED THE PROBLEM, I HAVE BEEN TAKING SYNTHROID EVERY SINCE, ALTHOUGH I'M UNSURE OF THE DOSE BACK THEN, i NOW TAKE
.175Mg, and I am 34 years old But i was always told it was a Freak Accident and was not common, Because when i became pregnant with my first child i was concearned ,My doctor told me not too worrie! Now I have a 15 year old son & a 6 year old
Daughter with no signs of trouble!!!!

  You can add me to your YAHOO messenger list if you have one, I WOULD LIKE TOO GET TOO KNOW SOME ONE ELSE  LIKE ME !!

OR ANYONE ELSE ON HERE
THANKS FOR YOUR REPLIES

pATRICIA LEDOUX OR ***@**** or add too buddy list if you like? patti4c on buddy list

[ninechars]

i had made a post earlier, but didn't leave any of my history or contact info!! oops!!!

they discovered mine when i was around 2 weeks old (i'm 26 now).  i've been taking synthroid/levotheroxine ever since.  i have a 4 1/2 yr. old daughter and she is perfect!!  i don't have any major issues from it, but damn, i wish i could lose weight!!!!  

if anyone would like to chat, my yahoo! id is evita_is_here .  my email addy is ***@**** ....    it would be excellent to chat w/ others!!!!

[Remysangel]

I just read this comment searching for information on people born without a thyroid gland. I am 20 years old and was also born without a thyroid gland. I have never talked to anyone else that was born without one and was really excited when I came across this website. It was found out at 3 days old and I have been on levothroid for 20 years now. I am really interested in what will happen some day when I want to have kids, and if having no thyroid gland effects that. Or if there is a possiblity any of my kids will be born without one. How rare is this... condition? -Nicole

[Kaylee4C]

Hey peoples. I found this topic while searching for it on a search engine and was very excited! I have never met anyone else born without a thyroid gland. I was born without one too.
Was discovered at around 28-36 days old. That's when my body was slowing down.

I take synthroid every morning before school. One hour before or two to three hours after eating with a full glass of water.

Kaylee

[camaleonte]

I am seeing many female responses, but I am interested to talk to males who were born with no thyroid.  Research I have done has shown huge differences in how men and women with hypothyroidism develop over time, and it seems that men have many more serious health issues later in life.
I am curious, because my brother will be 25 soon and his health is quickly depleating, and though six months ago he was fine, he is now being told that he could die.  He is taking 300 MCG synthroid, but his thyroid level is still in the 80's.  I can't find any research on males older than 30 who have no thyroid gland, and fear that that is because there aren't any.  I have also read research that no males with no thyroid graduate high school, which I'm also interested in.
If you have any information it would be greatly appreciated.
Thanks!
Lauren

[camaleonte]

oops...if you have any info. you can email me; ***@****
Thanks!

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My son will be five months old on the 10th and he was born without a thyroid gland....for those of you born this way and looking for support please look for a group called born without a thyroid gland on Facebook ..it is a group combined of parents and children born this way and I have found lots of information and support!

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