I got a total thyroidectomy June 26, 2012. My endo felt I didn't need RAI, so I didn't get it done. Today, during a visit I asked my doctor what the follow up plan is and he said to get a whole body scan. Does anyone know if getting neck ultrasounds and monitoring tg is just as good as getting a whole body scan? If so, I would rather save myself from getting unnecessary radiation.
I had my total thyroidectomy in 2004. Following my RAI, I had a whole body scan. I see that you didn't have the RAI, and it isn't always recommended. From what I understand, thyroid tissue can be found elsewhere in the body, so a whole body scan is something I would definitely do the one time. Since my surgeries and scan, I have not had another, only follow up lab work on a regular basis, and yearly ultrasounds. So, that scan may be the only one you'll get. That said, I am not the expert by any means. I hope you get some more educated responses! Maybe I'll learn something as well :)
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