Aches and pains

[path123]

Have had TT - 1/2 out in April other in May.   Have had loose stool for weeks every a.m. - (takes me forever to get ready! ha!) - now have begun experiencing muscle aches - back of thigh - foot, arm etc.  Supposedly my thyroid
meds are "in line" with how the endo wants them - I feel tired all the time (when I get up in the a.m. sometimes
I could just go back to bed) no energy.   How long will this last? - Also have started to "whine" about every little thing - I never used to be a whiner!  Help please.

[path123]

Thank you so much - upped my calcium/mag/vitamin D supplements and feel
a lot better - aches are not as severe and not all the time.  I also lost one of my parathyroid glands in my second surgery... so we will see.  I was on mega calcium
at the beginning - had high calcium level prior to surgery - then when I started having
the "tingling" (face/hands/feet) and called the surgeon - her office said it "must be something else" 'cause my blood calcium levels were normal - right, normal levels - but not normal for me! - since I had a high calcium level to begin with when my levels dropped, I was experiencing symptoms of low calcium - duh!!  I was told that I should just go see my regular Dr. and find out what was wrong - Back then I also increased
my supplements and the tingling got better - I just had not experienced the aches and pains before - so didn't put 2 and 2 together.  Whew!!  Too much to know!  Ha!!  Thanks again for your input!

[path123]

Thanks to all - I went ahead and upped my calcium and magnesium
supplements myself - seems to have helped with the "aches" -- am not
experiencing quite as many or all the time.  Yeah!!!  Thanks again for
your input - I will post my bloodwork levels when I get them.  Appreciate
your help!!

[logansrun]

Your Calcium is to low! eat Tums EX (loaded with calcium) they absorb better into your system, quicker than the supplements they put us on. We pee out a lot of our calcium too. So what we take doesn't always stay in our system.
Eat 5 to 10 tums see if the tingling goes away. It won't go away completely, but it will help.
I had a TT 2 years and  6months , 1week and some hours ago.....It was brutal right after and still is. they damaged my parathyroids and left me with SEVERE Hypocalcemia (low Calcium) which causes numbness and tingling in my face (right side is worse), hands, fingers, feet, legs.. It's been horrible. But the tums really do help. put them everywhere! Car, work, purse. Eat until the tingling subsides! it works! now I know how a drug addict feels!

Double your Calcium intake for a couple days see if that helps! take 1000mg a day..you won't die. More constipated yes!
Tums.....Tums......Tums.................
Suzanne

[logansrun]

Hi, funny you should mention aches and pain. It probably is your thyroid medacine, to low, but the drs want to increase your meds slowly. And we can't get out of our own way and they say see you in three months.
I had a TT 2years, 6 months, 1 week, and 10 hours ago......they damaged my parathyroids and left me with sever Hypocalcemia (low calcium) which causes tetny (severe muscle spasms) because of the calcium. My thyroid levels and calcium levels have never been on the same page. Always needed more but had to wait and was told to give it more time. I've been to 5 Endocrinologists (and settled with the 5th one in Boston).
Double up your thyroid medacine! take two instead of one! see how you feel! try if for a day or two or three. You won't die, nothing drastic will happen to you. If you double it and notice a change great. If nothing! you didn't feel any better.
Check your calcium  levels to!  between the two they suck tyring to regulate them!
call your PCP and ask her to order the tsh and calcium levels when ever you feel off more than usual. When your calcium is low  you feel like crap!
And we pee out a lot of our calcium( your body doesn't always absorb it) even with calcitrol(vit d to help the body absorb calcium), So we take what we are supposed to take, but we never know what we will hold.
Drs don't know everything! you know your body! and it's not always us!
You'll get better at playing the game! call your Drs, switch Drs, talk to people! and if nothing changes, keep looking! keep reading, keep going! it's hard!
And while we just want to feel better, we can barely get through our day! the drs don't get it! and we are the freaks!! It's all in our heads! when it's not!
It's not an easy fight, but don't give up! it's very discouraging at times, but somehow you will find what works for you. Getting there is the hard part!
keep in touch if you like. I would like to see how you make out. I think we all know everyones frustration to a point. that's why we are here.
best of luck!
Suzanne

[Emmy4337]

If you can get the endo to check the Free T3 & Free T4 he will have some labs to look at and if they are low may be willing to up the medicine or add T3 (cytomel).  Doctors love lab results! Good Luck!

Some will not look at the frees and don't believe the conversion problems.  Tell him to look, you are paying and want to know ,and if they are fine you will discuss other potential causes.  You just want to rule this out before checking other causes.

[path123]

Thanks again - I told the nurse just that - if the Dr. doesn't listen then I'll find another who will... (I sound pretty tough - must be pain induced strength!)  My sister told me to use the "treat my symptoms" line - I also loved it!!

[magpieannie]

Don't you just love it when they say that? LOL!   I like your comeback though! You just keep that up and maybe the endo. will begin to listen. If he doesn't then find a doctor who will.

[path123]

I'm on 112 of Synthroid - was reduced from 125 about 6 wks. ago - called endo and just had bloodwork rechecked yesterday - the nurse said the endo believes that my aches/pains and tiredness must be from something else 'cause I'm exactly where she wants my levels to be -  I told the nurse that the endo needs to treat my symptoms and not just rely on my bloodwork... we will see.  Thank you so much for your response.  I also continue
to have tingling in my hands and feet.  Post TT is lovely!!!

[magpieannie]

Free T3, Free T4 and TSH labs please with reference ranges beside each result. Emmy is correct about the  conversion issues for people who have no thyriod gland. My daughter is almost 10 and born without a thyroid. She could not convert enough of the t4 (storage hormone) Synthroid to the active hormone t3 that the cells must have- This can affect just about everything when too low. Lots of muscle and joint pain can develop along with many other hypothyroid issues.(like emotions and fatigue) Get that FReet3 level checked along with the other teast and get a copy of labs and post here and we will be glad to give our experienced opinions.  

[Emmy4337]

Have you had your thyroid levels checked yet post surgery?  It sound like you may be undermedicated.  When you have them check it is best to get TSH, Free T4 & Free T4 checked.  Many doctors only check TSH.  When I am not getting enough T3 I have all the aches and pains of hypothroidism as well as depression and weight gain.

What medicine does your doctor have you on?  Synthroid?  You may just need more though.  Often the doctor will adjust you levels up slowly so you don't go hyper.  Some people do not convert T4 into T3 well and need a T3 supplement (Cytomel) or to get on dessicated thyroid medicine (Armour, Nature Throid or ERFA).

If you post your last test levels, including the ranges, others here will pop on and let you know what they think.  Good luck!