Allergic to all Hashi meds

[mandy24]

I have been prescribed all of the Hashi meds and my heart palpitates, my pulse races, and I am wide awake or sleep only 3 hours.  My neck is tense and it is more miserable than the lethargy and depression of being one of the walking dead with Hashi.  Have you heard of this and do you have any suggestions or solutions?  Thanks, Mandy.

[mandy24]

The thyroid supplementation you refer to, can you tell me what it is and what dose?  I happen to already be taking 50 mg. of trazodone, my internist suggested upping the dose, I have been on it for 12 years, but am not sure that trazodone and the 13 years of estrogen (premarin) isn't aggravating the whole chemistry of the thing.  I was happy for myself to learn someone had solicited someone to take an interest in this devastating life altering disease and our specific dilemmai, but sad to know you know the anguish of the catch-22 problem.  Thanks.

[BeckBeck12]

I have awful spells of not sleeping well, high anxiety and nerves bad which make me awfully irritable.  Then I would switch after a few months and be depressed and sleep 10 or 11 hours a day.  

I went to a psychiatrist at Shands Teaching Hospital at the University of Florida, thinking I was bi-polar.  What it turned out being was an "organic affective syndrome", which means my thyroid condition is causing both problems.  The psychiatrist at Shands is looking for time and grant money to study this problem with people with thyroid disease.

I am on thyroid supplementation which doesn't help with the sleeping problems.  The psychiatrist put me on trazadone 50 mg for sleep which really helps.  When the problem is extremely bad I can take more.  It seems this is an antidepressant which for depressed people is taken at a much higher dose and they take it every day.  I take it only to help with sleep and it makes me drowsey and keeps me asleep for much longer than the normal 3 hours.  Might be worth looking into.

[AR-10]

Glad you are going to stick around, and thanks for being a little more specific.

You really need to get a printed copy of test results for TSH, free T4 and free T3, as well as antibody tests. People here are statistic freaks. ;)

I hope Dr. Lupo has an answer for you.

Welcome, and good luck.

[mandy24]

I have reset my password and can now access the board.  Thanks for your concern.  :)

[mandy24]

Thank you for your suggestion.  I will ask him about my problem.  :).

[mandy24]

Thanks for your reply.  I have tried varying amounts of synthroid, levithroid, levoxyl, armour T-3, I was no a beta blocker to try to supressed the heart palpitations and racing pulse even on a half of the most minute doses of these medicines, and just can't tolerate them.  A different specialty doctor said that I might have an enzyme problem in my stomach that doesn't let the meds pass through but that they accumulate.  I usually feel find the first day and then only sleep 3 hours, if I repeat by the third day I am spaced out and feel more disabled than when I experienced the untreated thyroid symptoms.  All the above meds were at the lowest doses.  All were tried taking an entire lowest dose tablet, then down to a quarter of a tablet and the intolerance would be hit before the week was through.  I am so sad because I don't know if there is an answer, unless some else has conquered this problem.  I have lost my name and password, so you may reply to ***@****.  Thanks for your concern.  The blood levels were near borderline with a fluke .8 on one test that the doctor and I thought was a lab mistake, but he said I had a small amount of elevated TSH which meant I had to have Hashimoto's Disease.  Any thoughts?  All my female relatives on my mother's side, her and her two sisters and mother have Hashimoto's Disease.  And, they started early on the meds and didn't have trouble.  There's might have been worse.

[alysmum]

I'm sure someone will have some info for you - just hang in there for a few days.  Some very helpful people can only check these out every once in a while.  Also, you might want to post this quest  to Dr. Mark Lupo -- click on "thyroid" under "ask a doctor forums" (Related Forums) on the upper left of this page.  And If you post the answers to the quests above, someone might identify with info.

[AR-10]

If you stick around for a day or two you might get five or six replies, and the answer you seek.

Which of the "all" meds have you tried?

What have your blood levels been when you had the various symptoms?

Maybe it is the disease and not the meds?

[mandy24]

Apparently I am in the wrong place, I have had no responses, please remove me from this forum.  Thanks.  Mandy.