Am I going to just drop dead?

[tisatenn2005]

Hi i am set to have another blood test ran in June. I have tsh of .33 and tsi of 135%. they think i have graves and will recheck blood to see if levels reg themselves or get worse. So we will see. But I was hoping for any info on what to expect from people who have been here. I have chked the sites online and its just a cold analogy, and not a true experience that someone has had. Anything would be great. Thanks Chrystal

Anyone online today? I would really like to be in touch with some people who have this and gone through it. I feel very alone and scared. I know there are others out there. I am feeling fine right now. I have no goiter or eye problems. Havent had any palpatations since 2 weeks ago on that tues, and I did have a weird thing about 2 nights ago. I woke with a strange shaking in my head. Like a slight tremor or something. I remember having the flu years ago with a bad fever and having felt like i was shaking thats the only way i can explain this feeling. So anyhow was hoping I could hear from you others and what its like for you. thks Chrystal

[Tajma]

I understand your fear and I have had four test between October 2007- March, 2008 and my TSH has been <0.001 and my Free T4 level is 5.51. I have been feeling very sick since diagnosed with Graves Disease. I can only tell you some of the symptoms I have gone through such as:

Frequent bowel movements
Tremors
Tachycardia
Insomnia
Confusion
Dizziness
Restlesness
Trouble concentrating
Profuse sweating
Extremely Hot (despite cool temperatures)

[Tajma]

I forgot to let you know I have lost over 20 lbs since my diagnosis, hair loss, sore throat, and my muscles hurt a lot.

[tisatenn2005]

I have lost 80 lbs this last year hair loss but thats MINOR. and i have palpatations and sometimes this weird tremor thing posted above thats all so far. Chrystal

[authrjenn]

Everything you are complaining of, I experienced before my TT, in January 2008.  Tremors are not uncommon and drive me crazy. I dislike all of the symptoms, but I hate to gain weight. Since I switched from Levothy to Armour, my joints hurt because my levels are low. I will have to call and get the doc to increase my pills from 60mg to 120mgs.

[tisatenn2005]

Whats a tt?

[Tajma]

Hi, thanks for the response but may ask what is "TT" and do you recommend it for me.

[pep88]

Can't comment on the Graves, but I did have a "TT" (Total Thyroidectomy-removal of the entire thyroid), for cancer.  Many here with way more knowledge than I, especially on Graves.  I wish you luck with your journey.  Keep us updated.

[tisatenn2005]

Hello all, thanks so much for your posts i hate feeling alone in this and it helps to hear from others. Chrystal

[Tajma]

Thank you for the advice and I will keep you guys updated.

[TheCarMan]

What Tajma gave as symptoms are classic signs of Graves.
Be there, done that.