Thyroid Disorders Community
Autoimmune Hashimotos - now hyperthyroid
About This Community:

This patient support community is for discussions relating to thyroid issues, goiter, Graves disease, Hashimoto's Thyroiditis, Human Growth Hormone (HGH), hyperthyroid, hypothyroid, metabolism, parathyroid, pituitary gland, thyroiditis, and thyroid Stimulating Hormone (TSH).

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Autoimmune Hashimotos - now hyperthyroid

I'm really hoping Dr. Lupo can shed some light on this. I'm a 39 yr old female. I was put on Synthroid over a decade ago when routine pre-op bloodwork came back w/ a high TSH.  I did well on this for about 4 yrs, until I became sick with pneumonia.  That was 6 yrs ago and I have had this strange shortness of breath ever since.  It's gotten progressively worse.  Asthma and heart problems were ruled out by specialists.  During these past yrs, I was diagnosed with autoimmune thyroid - my Anti TPO is always around 50 and TSH always high.  I was noticing that I felt sicker (shortness of breath, brittle hair, hair falling out, palor, muscle weakness, falling/breaking bones) whenever I was ON thyroid medicine.  I'd stop and feel better, and my endocrinologist would yell at me.  So, I'd go back on.  I've tried them all - synthroid, cytomel/lev combo, and armour.  It's the same with all of them.  As time went on, I began having a lot of trouble with choking and swallowing food.  I'd choke at night when sleeping.  I noticed the thyroid meds made this worse too.  Then recently, things took a turn for the worse.  The choking became out of control and I couldn't eat solid food for 3 weeks.  I lost 30 lbs.  I told my regular dr. I thought it was the thyroid medicine, but she wouldn't entertain that thought.  So, I started seeing another doctor - I'm hyperthyroid.  My TSH is 0.03 off of thyroid meds for a month.  I can eat much better, but am still short of breath, shaky, and was put on Inderal for tachycardia for a week.  I'm off of that now, but still can barely walk or do anything because I'm so short of breath.  Whenever I talk, I get that choking feeling and have to excuse myself. My life has come to a complete stop because of this b/c I'm so out of breath all the time.  Something odd that also happened right as I got very sick a few mos ago was my FSH went from a 6.9 to 118.  All I know is that I'm very sick and not getting the help that I need.  The doctors I've seen don't seem to want to look outside of blood tests to determine what is going on with me.  Any advice or suggestions are appreciated.
Related Discussions
Avatar_n_tn
I forgot to add that i have had multiple ultrasounds of the thyroid and they are negative for goiters.  The one report noted that the thyroid was unusually small, possibly indicative of thyroiditis.  The doctors didn't seem to think this was anything to be concerned about (despite my symptoms).  I am scheduled to have a ct of my pituitary because of the drastic change in my FSH over a few months time (per my OBGYN).
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Thyroid Disorders Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Thyroid Answerers
Avatar_m_tn
Blank
gimel
MI
649848_tn?1424570775
Blank
Barb135
FL
Avatar_f_tn
Blank
goolarra
Sisters, OR
1756321_tn?1377771734
Blank
Red_Star
Queensland, Australia
657231_tn?1421251398
Blank
rumpled
Northern, NJ
Avatar_m_tn
Blank
flyingfool
WI