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Benign positional vertigo
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Benign positional vertigo

Has anyone experienced BPV on armour thyroid?
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I have had BPV, but it had nothing to do with thyroid meds.  Somewhere in my reading, I remember seeing that hypothyroidism can cause BPV due to fluid buildup around the middle ear...sorry I read a ton and have no idea where this came from.

Do you know the technique for eliminating/lessing the BPV?  If not, I'll be happy to go into detail.

AJ
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I'm not sure what BPV is exactly and I've never taken Armour, but I do know when I was on Cytomel, which is also T3, I would get very very dizzy at times....dizzy enough that if I didn't sit down immediately, I would start to pass out.  Is this what you mean?
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Yes.   Vertigo - extreme dizziness
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I didn't know that about hypothyroidism.   I would love more information if you have it on that.   Anything to help this vertigo.
Thanks
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This is going to sound really hoaky - it did to me.  However, it's totally non-intrusive and free, so why not?.  I gave it a try, and I haven't had a major issue with BPV since I started doing it.  I do it at the very first twinge of dizziness, and it seems to work wonders.

Lie on your back on a flat surface.  Turn your head to the left, dropping it toward your left shoulder.  Keep your head in that position until the dizziness goes away.  Moving slowly, return your head to center, so that you're looking at the ceiling.  Once again, don't move until any dizziness goes away.  Now, drop your head to the right as you did to the left before (order doesn't matter here...you can start on either side).  Once again, stay there until the dizziness subsides.  Now, back to center until the dizziness goes.  If you're feeling very unsteady, you may want to have someone help you with the next step, so you don't fall over.  Sit up, and immediately drop your chin to your chest.  Once again, stay there until the dizziness goes away.  Then lift your head up slowly.  If your BPV is really bad, you may have to do this several times, or you might try doing it before the vertigo even starts (at those times of day when it seems worst)..

The theory is that BPV is caused by the little crystals in your middle ear that give you your sense of balance getting themselves into a tempest (like when you shake up one of those snow globes).  This technique allows the crystals to "calm down" and settle where they belong.  In effect, where the crystals settle, your brain interprets as "down".  When they're all flying around that snow globe that's your ear, you get "the spins", like you just had about 10 too many drinks.

The article I read associating BPV with hypo said that accumulation of fluid around the middle ear is what causes the crystals to slosh around more than they should.  If you have other symptoms of fluid accumulation, like swelling, it might be an argument for this explanation.

Anyway, it doesn't really matter what's causing the dizziness, this technique works for BPV.  I hope this works as well for you as it does for me.  I'm anxious to know if it helps you, too.

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Hello again.  I tried the maneuver.    I wasn't dizzy when I tried it.  However I had the dizzy feeling during the maneuver.    I feel okay.  I am going to try it again when I have the dizzies.  I am so pleased to know this and look foreward to self helping myself.   I do so hope it works.  The fluid in the ear makes sense.     You did such a good job of explaining.  Thank you so much
Cathy
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Please keep me informed.  I'm really interested to see how it goes when you actually have the dizzies.  Good luck.
AJ
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I will.  thank you.
I wonder do you have any tips on dieting for Thyroid?    By the way i have ocular migraine.    Possibkly Hemiplegic migraine.  I had several strokes in Jan 2007.  However each MRI (they did several) brain scans too I showed no stroke .  Which lead them to test further.  They found I have a hole in my heart.    Apparently some people who have a hole in the heart with ocular migraine have Hemiplegic Migraine whioch can bring on coma.   Long story.   I have a feeling some of these things are connected.
Take care.  I really do appreciate you help.
Cathy
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I've read a lot about thyroid and nutrition.  However, most of the literature seems to be as frustrating as nutrition literature relative to any other condition...ask 12 people, get 13 opinions.  My sister-in-law is also a nutritionist, but she's seldom able to shed much light on anything that's not within her current "specialty", which I believe is now bariatric surgery.

Yesterday's complete no-no will be tomorrow's magic bullet.  I know nutrition is very complex organic chemistry, complicated by interactions between foods, so I understand, but I don't see a whole lot of merit in chasing the moving target.  So, my nutrition guru has become Michael Pollen.  His advice in a nutshell (he has several books - In Defense of Food, one of the more pertinent) is:  don't eat anything your (or somebody's - maybe on the other side of the world) great-grandmother wouldn't have recognized as food.  Stay away from processed, pre-packaged, cook for yourself.  Be reasonable, of course, but everything in moderation, even moderation.

I'm sorry I know almost nothing about migraine, except that a good friend of mine suffers terribly, so i sympathize with you.  I know how miserable she feels.

Good luck with the BPV.
AJ
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My sentiments exactly.     And thank you again.

I tend to love fat.    Butter!  Well we have had a love affair since I was a child.  

I like your writing style.    I recognise your talent in your emails.
I am a playwright and poet.

As far as BPV I will let you know how I progress.   I am truthfully a little fearful of it.  The exercise.    Yesterday I didn't feel too well after a session.  
Keep our chin up as they they.
Cathy

  
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Now don't go getting politically incorrect on me!  Isn't it illegal to even write the word "fat" without a circle and slash through it?!  Butter is a wonderful thing.

I wish I could write fiction.  Unfortunately, I can editorialize from here to eternity (and I do), especially when I'm really passionate about something, but fiction completely escapes me.  I envy you.

Well, if it doesn't help you, or makes you feel worse, that's no fun.  Don't push yourself.  You might talk to your doctor, also.  There are over-the-counter meds that will help with some of the secondary symptoms, like the nausea.  They're basically motion sickness pills.  The problem with them is that you really have to take them BEFORE the nausea sets in and they tend to make you drowsy.  Don't do this without checking with your doctor first.

I hope you feel better.

AJ
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I had it for a week immediately after surgery.  It was awful along with a migraine headache.

C~
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Avatar_f_tn
Hi Mrs. Butterfield!

My experience was similar to CitChatNine's.  I had BPV seven years ago, just after an extremely stressful move (FL to OR, our house, my mother's house, my husband's business, and toss 9/11 right down in the middle of it all) and a change of elevation from 58 ft to 3300 ft.  It was suggested that the elevation change might have been a co-conspirator.

Anyway, my point being that just because you have it for a while, you shouldn't think that it's moved into your living room for the duration.  Mine's gotten progressively better.  Now, I get the very rare twinge, and I usually just tell myself to move a little more slowly for a while, sit down to do some stuff rather than bending over with my head half upside-down.  

It's not forever!  But is sure is miserable...
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I am moving slowly.  I went to dentist today and told him to be gentle when he put the chair back.  It wasokay no dizziess.  

I still can't believe my neuro who flipped my head from side to side  quickly a couple of weeks ago.  .   I don't even do that.    Iwill just take it slowly for awhile.

My thyroid meds are out of date only by a couple of weeks do you know if they ar e still okay to take?  

I ordered something that I see Soman takes  "Fatigued to Fantastic"  Do you know anyhting about it?
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That's on the positive side.

I don't know about the date on the thyroid meds.  I also don't know what you're taking.  I know they do say that levothyroxine is supposed to be kept at  cool room temperature and out of direct sunlight.  I don't know about any of the others.  

I don't know anything about the supplement, either (batting zero today!).  But if Shomon takes it, it should at least be compatible with thyroid meds.

Have the spins been at bay for a few days?
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Yes they have a bit.   Interesting.  I hate to get myhopes uptoo soon.

Do you take supplementsI?             I take Armour thyroid.   I should check on my throid link.
I think my migraines and vertigo are all linked somehow.

One of my friends wrote a poem.  It begins "Life is a gift, open it"
Isn't that just beautiful.  By Gloria Gersten.

We have to go for a spin sometime!
Thanks.
Cathy
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This is an interesting thread! I've recently gone to my primary because I was having extreme vertigo with extreme fatigue and very low BP. I have an enlarged thyroid with several nodules but my levels come back normal. 5 of my family members have hypothyroidism, including my father. He is sending me to en endo and a neuro this month. He feels I may have a disorder called POTS - posterior orthostatic tachycardia syndrome. My sister was diagnosed with it years ago, but her new neuro said it was either orthostatic tachycardia or migraine syncope.... she also has MS and possibly Lupus.
I will have to ask about BPV.
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Avatar_f_tn
Well, we'll try to ignore the little accomplishments...best not to jinx anything!  I always knock on wood when I refer to my BPV in the past tense!

I don't take any supplements.  From what I've read and what my sister-in-law, the nutritionist, tells me, they don't really work all that well.  You really want to get all your nutrition from your food.  Lots of cases where adding a supplement doesn't have the intended effect, but making sure the vitamin or whatever is in your food does.  Taking supplemental X will increase the amount of X in your body, but it may not have the desired effect of lowering your risk of heart attack or cancer or whatever that eating X does.  Just my opinion.  Nutritionists are as confused as the rest of us.

No spinning for us!  We have to come up with a better word as that one is strictly taboo!

Good luck.

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Try the maneuver described above.  As I told butterfield88, what do you have to lose?  It's totally non-invasive and free.

I have Wolfe-Parkinson-White syndrome.  It's a congenital heart defect that causes me to have superventricular tachycardia (PSVT). I've had it all my life, but I'm really struggling with it for the first time because levothyroxine exascerbates it something fierce.  Is POTS an auto-immune condition?

You should ask your doctor about the BPV.  One clue that vertigo is BPV is that it gets much worse when you move your head around.  
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I took vitamins for at least 20 years - include Vit E and co Q10 plus many others.

  When I had a perforated appendix two years ago I stopped them cold turkey.   Then six months later I had several strokes which was thought to be from the congenital hole in my heart (I didn't know until then I had one  -- a hole that is not a heart. Ha!)     It is the general thiought that if one is taking Vit E (which thins the blood) stopping cold turkey could throw a clot.     I have to take Asprin every day since then to keep the blood thin.    I find that interesting since I took a blood thinner  (vit E)  for years and then stopped.    I don't know,  it is tedious all the information out there. I guess one has to feel it out for ourselves and how we feel.     I do know I felt bettr on them.
  
I want to go to a local health spa - it is vegan.   I am somewhat a vegitarian but not totally.    i went years ago and felt like a million bucks when I left there.   I also lost 9 lbs.

You are right no spinning fo us
Cathy
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I have fatigue - High bp - extreme vertigo.  I keep reading about ms being associated with migraines.   Totally confusing to me.  How does one know one has ms?  
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Your're absolutely right - it is sooo individual.  And it seems you're damned if you do and damned if you don't.

A while back I started taking glucosamine for my arthritis.  It didn't seem to be doing much, but they say you have to be on it for a while, so I kept taking it.  A couple of months later, I had a cholesterol test.  I had been exercising, dieting, etc. and thought the cholesterol was going to be really good ( I had been being such a good girl).  The results came back - up 100 points from the last test six months earlier!!!  I've been an analyst all my life, and I've found you ask yourself 'what did I do differently' and 99 times out of a hundred you don't have to ask yourself anything else.  I wracked my brain...nothing.  Then the next morning, as I was popping the glucosamine, it hit me.  I got on the internet to try to find a connection...no studies linking the two, but enough people asking the same question I was that I knew I wasn't the only one.  I stopped the glucosamine, redid the cholesterol two weeks later - back down 100 points.  Pretty remarkable - I didn't even know cholesterol could move that fast.

Exercise definitely helps, all other things being equal.  Just start out really slow.  I don't know how old you are, but I'm 57 (soon to be 8), and 'no pain, no gain' definitely no longer applies!  Too many of the pains set in and then never leave or creep away very slowly.

What does your doctor have to say about your fatigue?  Are you having regular thyroid blood work?  Has the doctor suggested any vitamins?  Are you on any meds for other conditions?  Anything for the high BP?  Some of those can make you feel fatigued.  Think about interactions.

AJ

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Avatar_n_tn
I'm on Synthroid 150mcg, and recently ended up in the ER (Sept 08) with what I thought was a virus as I had uncontrollable vomiting along with extreme dizziness.  I was diagnosed w/vertigo.
It was this episode that lead me back to my endo, only to discover I still have nodules on my right lobe that have gotten bigger - see earlier post today re: RAI x 2 & removal of lobe****

This thread has been very interesting and I appreciate the above info on the exercises to relieve the vertigo symptoms.

Good Luck to you!  P.

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Most of my sister's MS was based of symptoms but they did either an MRI or CT Scan on her brain and found the lesions that are common in MS. I don't know a whole lot about it though because I've been busy trying to figure out what's wrong with me...
My sister and I both run low BP. Mine has been as low as 90/54, my sister's runs lower sometimes.
We're both rather slight. She's only 5' 4" and maybe weighs 98 lbs. I'm 5' 7" and average 108 lbs. (Don't know how that relates to anything, but being thin with low BP isn't all it's cracked up to be!)
I get my vertigo when my BP drastically changes, like tonight, it's 105/66 and I feel it, the other day 114/48 and about 2 weeks ago it was 83/68 - those were big changes and it makes me feel totally off. The time it was 83/68, I had the chills like you get with a fever, turns out my temp was only 96.3 F. I see an endo on the 20th see if he can shed some light on all this. I do know the thyroid acts as a thermostat and that could explain the low body temps and the hot flashes I've had for about the last 15 years! (I'm only 42 - I have not been perimenopausal for 15 yrs!) I don't know if any of this thyroid stuff is the cause of the BP & vertigo issues or not. I see a neuro on the 28th to try and figure that out....

I will try the vertigo exersizes... when the grand-daughter gives me the time!
D.
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