I have a history of hyperthyroid, celiac, and unexplained nighttime seizures. My wonderful endocrinologist has left the area and I have noone to whom I can talk and who I have faith in their answers. So far I am just getting the brush off.
Before my hyperthyroid was diagnosed, my bilirubin was steady (but hi) at 1.8. For the next 3 years, while being treated for hyperthyroid, it dropped to normal range. I have been off treatment for hyperthyroid for about 18 months.My bilirubin was recently measured at 2.2 (hi)
Hyperthyroid was diagnosed in the beginning of 2008. That summer I also started allergy shots. Seizures started about 9 months after hyperthyroid was diagnosed. I stopped allergy shots in case there was a connection. Celiac was diagnosed about the time of the first seizure, but no connection was made.
I started allergy shots again in late 2009. The next seizure came a few months after that and several occurred that winter. In the winter of 2010-2011 I had repeated seizures. and stopped the shots in May 2010. No shots, no seizures until the last week of December 2011 I had a flu shot. I had a seizure just over a week later.
My seizures tend to occur in the colder months.
Blood tests now show
T Bilirubin 2.2 H (0.1-1.5 is normal from my lab)
MPV 11.3 H (7.4-10.4 normal)
TSH 0.337 L (0.380 - 4.710 Normal)
Anybody have any ideas what I should ask my doctor and where I should go to get some answers?