OMG - I just had my synthroid increased to 125 mcg and I am having awful leg cramps/pain. All day it aches just like you said especially if i am resting. And I can't sleep now - I just took four advil to see if it stops. Both my hands and my feet are very sore too. HELP anyone that has any ideas on what to do.
I believe your RLS may be related to the Cytomel you are taking. I had my thyroid ablated for Graves in 2005, and utilized every possible dose of synthetic LevoT4 from 25 mcg to 125 mcg in the stabilizing/therapeutic process, with no neurological side effects. I talked my Dr. into letting me go on T4/T3 therapy about a 15 mos. ago (at a similar dosage to the T4 alone), and I started getting nighttime RLS about 10 mos. ago.
I haven't found any comments on any blog or forum about RLS related to Levo/Synthroid usage, but have seen several correlations with Cytomel. I'm now going to try Armour in hopes I won't have to take a handful of pharmaceuticals to function and sleep like a normal person in their 30s. Good Luck.
Neuropathy! Is that the name for it? I have had the hardest time trying to describe what I've been going through. But I guess with a TSH as ridiculously high as mine had gotten, I should expect some weird symptoms as it comes down. Thank you all for the responses.
I stopped the cytomel yesterday and I think the neuropathy has gotten a little less severe. I was able to sleep last night so hopefully that is a step in the right direction. I love the cytomel because it allowed me to feel better pretty quickly after having a TSH of 210, but I guess maybe it was too much of a good thing? I just hope the synthroid builds to a therapeutic level quickly. I don't want to get too hypo again while I wait for it to build up in my system.
Does anyone know how quickly your TSH can come down on cytomel? Can you really go from 210 to .5 in just 7 days or does it come down more slowly?
Thanks - I'm new to all of this and its hard to get solid information.
Alissa
Wow is right!! I thought mine was bad at 145 when I had my RAI. I had forgotten about the restless legs last year when my tsh was coming down. I don't recall it lasting for very long. I do however, remember how nasty it felt being so hypo and was amazed at how fast my tsh came down. Lots of symptoms though. I remember my joints aching horribly.
What AR said couldn't be more true. Your poor body is going through a lot right now trying to get your tsh down. Good luck to you!
Had anyone tested your for RLS? From what I understand it is pretty simple.
Wow. 210. I'll bet 75mcg a day of Cytomel knocked that down fast.(Not to mention the Synthroid)
I haven't had leg neuropathy. Maybe stopping the Cytomel will stop the leg problem.
With a shift in your hormones of that magnitude, you are bound to get some symptoms, and neuropathy may be one. I get sensory overload to varying degrees when my levels shift.
Hope it stops bothering you.