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1001249 tn?1254701721

Describe your fatigue please and hypothyroidism?

Hi.
I have had untreated hypothyroidism for 10 years or so. I now want to hear how others describe their symptoms of fatigue and breathing problems.
I woke up normaly but after walking 2 blocks or driving 20 minutes i just stopped and did nothing else. I even feel that my body is not able to do anything that falling down to the floor and wait to get some strengh to get to the car or to a taxi which drvies me back home.
I  even feel that I am going to fait, my legs are stiffed and my body almost paralized, my heart is controlled with meds so there is no tachycardia, but i feel that my heart is turned off , as if it does not have enough energy to help me breath normaly.
I was unable to get up from my bed and get to the bathroom I have to shower seated and  my tsh is only 22, I mean is not normal , but others have higher numbers and just seem to have been able to live.
I just do not want to live like this. but I really do not know if it is my heart and I am being misdiagnosed or if you gauys with hypothyroidism have felt the same.
I need some hope.
please help me!!!!!!!!!!
6 Responses
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168348 tn?1379357075
Lack of concentration
constipation needing Miralax and followed by GI for 2yrs
depression lack of energy fatigue
dry skin
joint pain

then after my surgery I ended up on Synthroid and anything below TSH 1.8 ALL this disappears!  They were amazed since my TSH was "normal" for yrs at 2.8 .. yep.  normal they said.  turned out to be subclinical hypothyroidism and proven that all these symptoms go away with 62.5 - 75mcgs of synthroid daily and a new TSH of about 1.3
Helpful - 0
393685 tn?1425812522
Wait .. there is something wrong here...

I see you posted a TSH of 22 - is that a 22.00 - or a .22 ?
Helpful - 0
219241 tn?1413537765
I suffer the same thing. I wake up in the morning, am fine for about an hour or so, then feel the body and brain slowly start to slip. On a good day I can drive to my local shops, but then wander around in a daze. Sometimes coming home is a scary process of mind fog, and non alertness. I can sleep in the afternoon for over 3 hours and still feel tired when I wake up! I feel like I am always sighing and then my eyes feel like lead weights. My chest feels heavy and that heart thing you mention, I get it too. Just today in the shower, I normally get too hot and my heart thumps hard to regulate my body temperature...not today, it was soooo difficult to feel it and it was soooo slow... I had to get out as I was worried it was going to stop! As soon as I moved to get out it went back to normal-ish! My resting rate is around 55 bpm at the moment, which is unheard of for me! I am normally at 75 or even 80 even when I am typing away like now!
I was like this for over 15 years! It is only recently I am the same again, due to falling Free T3 and rising TSH. Like you it is difficult to get treatment immediately.
The TSH numbers are useless with out the Free T3 numbers. If your Free T3 is low and your TSH high then regardless of the actual numbers, it means you are hypothyroid.
I am about to go away on a 9 week holiday and am terrified I will not have the mental clarity to figure out how to get the connecting plane or even REMEMBER to get to the boarding gate on time!
  So Yes, I know how you feel..like death warmed over. BUT hopefully you can get treatment sooner! Ask them to put you on the cancellation list. If any one cancels you take their appointment, it may be as little warning as an hour but I think it is wiser!
Cheers and good luck!
Helpful - 0
1001249 tn?1254701721

Hello again
Tamra and super-sally 888, I have gone to my doctor but my appointment with the doctor will be no sooner than september 10th. however i had some medication from my old prescription and started to take it with the agreement of the doctor, so I am on t4 25mg and t3 too, but I have to start treatment so carefully cause I have heart problems and a defibrillator implanted to avoid sudden death. I thank you very much for your words and just wanted to know if other have felt like this. thanks again
Helpful - 0
Avatar universal
I've never heard of TSH only being a 22. Your TSH levels clearly explains your fatigue. Please take the advice of the very experienced members on this forum and get to the doctor ASAP.

Tamra
Helpful - 0
231441 tn?1333892766
Hi,

please see Goolarra and my response to your other post.  You need to get treatment urgently.

Yes, this is how I felt when I had untreated hypothryoid.  I would be ok for a few hours in the morning and then it was like my body was so heavy I could hardly move.  It was horrible.  I would just have to lie on the floor in my bathroom and somehow find the energy to move again.  All I did was drag myself to work and sleep. I gained 40 plus lbs. Felt like deather warmed up.  My TSH never even went higher than about 4.5 during this time.  And yes, I also felt that if that was all there was to life it wasn't worth living.

Good news is that this will get much better with treatment.  

Please go to your doctor now. TODAY, if possible.  Failure to treat this is life threatening!  This is severe hypothyroid! Do not look at other's numbers.  Only look at your own and how you feel.  Your TSH should be between 1 and 2 (likely).  So you are 10 - 20 times above normal.
Helpful - 0
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