Aa
Endo not THE ONE like I thought she was!
Faxed my TSH's to the endo and she looked at them, then had her nurse-who btw is an idiot- call and tell me that it is still in normal range and I don't need any more thyroid. The nurse also told me that the 125mg I am taking is a large dose already and it shouldn't need to ever be increased?! HUH?
Tell you what, I'm about ready to go to my PCP and beg him to just keep me below a 1.0. I think he would do it, at least when I tell him I don't feel good he listens to me and doesn't treat me like a stupid child.
Just about the time I think I found a good one she pulls this **** on me. Would like to go mess up her thyroid and see how she likes it when the dr tells her, "No, I don't care how you think you feel the numbers are still in range." Grrrrrrrrrrrrrrrrrrrrrrrrrrrr She doesn't think I can feel hypo going from .93, where I felt good, to 1.39, where I feel like **** again.
And this is the person my PCP thinks is going to check me for diabetes and treat me for it. I don't think so!
Sorry, just had to gripe again, nobody else understands it but my chicken club buddies. lol
Dac
Tell you what, I'm about ready to go to my PCP and beg him to just keep me below a 1.0. I think he would do it, at least when I tell him I don't feel good he listens to me and doesn't treat me like a stupid child.
Just about the time I think I found a good one she pulls this **** on me. Would like to go mess up her thyroid and see how she likes it when the dr tells her, "No, I don't care how you think you feel the numbers are still in range." Grrrrrrrrrrrrrrrrrrrrrrrrrrrr She doesn't think I can feel hypo going from .93, where I felt good, to 1.39, where I feel like **** again.
And this is the person my PCP thinks is going to check me for diabetes and treat me for it. I don't think so!
Sorry, just had to gripe again, nobody else understands it but my chicken club buddies. lol
Dac
Maybe look for an Endo that specializes in diabetes and hope you get lucky. I found one and he seems to be more up to date on alot more then my previous Endo dr. and more willing to listen to me and work with me (and I'm not a diabetic).
I am kind of hard to manage because my TSH levels can go up and down considerably w/o changing my dose. I am very sensitive to little changes too. When I had to find a new Endo dr. it was like starting all over trying to prove that I know when my levels change. I went so far as to tell my retiring endo dr. to write it down on my progress note so that I could give it to my new dr. - he didn't really believe it and I am in the process right now trying to convince him. My current TSH is .042 and I don't feel well (tachy and arrythmias) - maybe he will believe me now.
Make sure that if you go to see a new dr. that you lay it all out for him/her that first visit. Let them know that you want to see him/her not a nurse and that you know where you feel comfortable with you levels. Hopefully they will let you know if they would be willing to work with you on it. Good Luck
Cheryl's right, we know when we feel bad. You must be new to all this so I'll give you a tip; don't ever tell a thyroid patient it's psychological. Too many drs and endos try to pigeon hole us as depressed instead of having a thyroid problem. And believe you me, WE know the difference. Most of us on here have been doing this for quite some time.
This is not me bashing you, just letting you know, we don't, as a whole, appreciate that comment very much and neither will you in a short amount of time in dealing with these drs.
This is not me bashing you, just letting you know, we don't, as a whole, appreciate that comment very much and neither will you in a short amount of time in dealing with these drs.
Well, thanks, honey! I was just ignoring her b/c I figured she's new to this and well. . .I just really don't care what she thinks, I know different. But thanks for standing up for me.
HUGS!!
Dac
HUGS!!
Dac
I beg to disagree .... a whole point is enough to make a huge difference in the way some people feel with their TSH. My normal w/o Synthroid was 2.8 or something like that and after the fact (after my thy ca diagnosis and ensuing Synhtroid) they realized I was subclinical hypothyroid all along and many of my issues improved with Synthroid bringing me between 1.0 - 1.7 vs. 2.8 !!!!!!
A few #'s lower or higher in tenths of a hundred can be psychological but a whole point (100 tenths) may make a huge difference to some people.
When I get more hypo by about 5 tenths of a hundred (closer to TSH 2.0) I get more constipated and the better my TSH is the less constipated I become AND FOR THE FIRST TIME IN 2.5 yrs my constipation is gone and guess what .. it went away from TSH 1.7 and TSH 1.5 so .2 of a point was the breaking point for improved symptoms.
Cheryl
A few #'s lower or higher in tenths of a hundred can be psychological but a whole point (100 tenths) may make a huge difference to some people.
When I get more hypo by about 5 tenths of a hundred (closer to TSH 2.0) I get more constipated and the better my TSH is the less constipated I become AND FOR THE FIRST TIME IN 2.5 yrs my constipation is gone and guess what .. it went away from TSH 1.7 and TSH 1.5 so .2 of a point was the breaking point for improved symptoms.
Cheryl
Yeah, Utah, I know I can always find all of you in my corner. That's what I love about all of you!
Thank you all for your support. I am taking this to my endo and telling her all about it!
Love,
Dac
Thank you all for your support. I am taking this to my endo and telling her all about it!
Love,
Dac
Dac
Scream and yell - we are here for you (we are the ones in the corner in our tinfoil hats rocking back and forth in case you didn't notice us at first). :-)
Love ya
Utah
Scream and yell - we are here for you (we are the ones in the corner in our tinfoil hats rocking back and forth in case you didn't notice us at first). :-)
Love ya
Utah
I am being supressed for cancer recurrance and I am on 250mcg of sythroid. My tsh last time was .299 or something like that and the dr. then increased me to my current 250mcg. I remember back when my tsh was 3.0 and I felt horrible. He couldn't understand why because if I was a normal thyroid patient, he wouldn't do anything for me he said. Obviously that was too high for me.Before my cancer diagnosis, I didn't have thyriod dysfunction and my tsh was 1.3 and I felt fine. I never even knew what a thyriod did! (I knew very little) He is trying to get me as close to zero as possible because I am at high risk for cancer coming back. Doctors need to get info from the latest research.
what an idiot!! Every body feels different at different levels whats normal for me may not be for you.print this stuff out from the forum and hit him and the nurse over the head with it.gaaaa I feel for you sis. I hope your pcp can help you out on this.
Let me know about the diabetes too.
love Venora
Let me know about the diabetes too.
love Venora
Some of it can be psychological. Ranges fluctuate daily-you aren't going to get the same number every single time.
Go to a different endo if you don't like this one.
Go to a different endo if you don't like this one.
I agree with you that a point can make a difference with how you feel, but I am almost the opposite of you. My doctor thinks .5 is good for me and I hate it! I feel too spastic, hyper and out of control. I like to be at 1.5 which is where I feel best- but the doctors all seem to think normal range is normal. It's not!
So so sorry ..... what makes them think one # is magically the best # over another when you are symptomatic and the other # feels better? My Endo goes by how I feel and the #'s game ...I am so sorry .. you trust your instincts and keep looking...........C~
Sorry the Endo was a disapointment.
Why is it the doctor always uses a nurse as a buffer? Sometimes I feel like I'm being treated by the nurse. I think they do that so you can't argue with them.
Your idea of using your PCP may be the best idea at this point.
You'd still have to find an Endo for Diabetes, but there seem to be more of those to pick and choose from.
Good luck with whatever you decide.
Why is it the doctor always uses a nurse as a buffer? Sometimes I feel like I'm being treated by the nurse. I think they do that so you can't argue with them.
Your idea of using your PCP may be the best idea at this point.
You'd still have to find an Endo for Diabetes, but there seem to be more of those to pick and choose from.
Good luck with whatever you decide.
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