Well not sure if I have the very first horror story to tell on a FNA but I WILL NEVER----EVER ----EVER go through that again.
The nodule as you all know - is lodged way below near the esophagus on the 'SUPPOSE" lower left lobe that hangs down fron RAI.
9 pokes and still not able to get a sample and an 1 1/2 hour later - I could NOT TAKE IT ANY LONGER!!!!!
Let me start from the time I got in the room. The tech came in and started a routine ultra scan for them to see the actual nodule. She went to get the surgeon who would be doing the FNA. At the time I wasn't all sure what HE WAS TELLING ME, but I will get to that in a bit. The tech mentioned parathyroid blah blah blah.
He tried 9 times to get that sample and could not get in there - I felt my neck cords and whatever else he was probing but tried to remain calm. after that 1 1/2 hour - I SAID THAT IS IT !!!!!!!
NO MORE!!! he helped me up off the table and said to me. Well I told you it was going to be tough to get that because it is so deep. I said Yeah- but I never thought it was going to be this bad. Even tears were running off my face. He claims he said - I TRIED TO TALK YOU OUT OF THIS!!! i SAID YOU DID HOW? HE SAID - I DIDN'T THINK IT WAS A THYROID AT ALL - BUT THE PARATHYROID.
He does not think it is the thyroid at all but on the parathyroid?? a simple calcium blood test could of at least given that a suspecion of it being a parathyroid!!!!
He WAS GREAT . - but I want to kick the junk out of that quack ENT who ordered this.
By the way - the surgeon even stated to the admin nurse to only bill me for the US - not biopsy - I wish I could have him as my doctor. I think this stuff would be over.
IF THE ENT SURGEON REALLY WOULD OF READ THE ORIGINAL ULTRA SOUND (AS HE DEMANDED ME TO GET FOR HIM) HE , AS A SPECIALIST, COULD OF SPECULATED THIS IN THE POSITION OF THE NODULE AND NOT PUT ME THROUGH THIS **** AT ALL!!!! HOW I WISH HE KNEW WHAT AN FNA FELT LIKE !!!!!!
So luckily - the surgeon knows my MD( THE ONE DOCTOR who as helped me) and ordered the CALCIUM AND TPO!!!!!!!!!!! that I WANTED TO BEGIN WITH.!!!!!! I drove right to that office and got it ASAP!!! My MD took one look at my neck and gasped are you swollowing OK?? I said "NO, NOT REALLY!! I hurt by now so bad I could bearly talk - and he gave me a shot of something - right in the butt to knock the swelling down. He knew I was in trouble with it. The bruise has already started and right now - after only 2 hours it is the size of a lime - right in front of my neck!!!
What a waste and I am so ticked!!! and now I DO LOOK LIKE MY KITTY AND NOT HAPPY EITHER That is NO JOKE.
So now I ask all of you. help me understand the procedure of a nodule on the PARATHYROID instead of thyroid. and what happens if my calcium is off. I understand normal calicium means para is OK - if abnormal PARA THYROID is a problem. If abnormal --- then what?????
I can't believe this - even when I was asking to have this stuff ran with that ENT he outright said not until FNA - My luck with idiot doctors. Oh how I wish I could really say the words I want to right now.
Please respond - I feel as lost as I did 5 years ago.
You poor thing - I am so sorry you had such a horrible time!!
I had 3 nodules done at the same time (FNA)...and the doctor doing it said to me, "Are you sure you want to do 3 at once? No one does that...they do one at a time." I can completely understand why you said you would never do it again.....I told them, "Thank God you did all 3 at once, because I would never, ever come back for another after this!"
During the recovery, I found that ice packs helped sooooooooo much. Even a bag of frozen peas (they were easy to maneuver around) worked great. They gave me a Celebrex to take for the swelling and that was it. (Then I had a reaction to the cream they put on my neck, but that's another story!) Thankfully I had prescription pain pills at home, because I needed them. Get a prescription from your doctor if you don't have one already. It really helped me sleep, if nothing else.
I am sorry I have nothing to offer on the parathyroid issue, but I hope your recovery from this is swift and easy!
I am so sorry you had such a horrible experience. From the other posts I have made, you know I don't understand much of this. I had never heard of the parathyroid,but will look at the website you listed.
I hope that soon this will all be solved and behind you and I feel so bad for you. What's next to get you feeling better?
What a great site! Up to date and easy to understand.
I learned a ton of stuff, and it had me grabbing lab reports and looking at results.
Interestingly, a lot of symptoms of hyperparathyroidism mesh with those of hypothyroidism. Kind of scary to find yet another disease that can be mistaken for thyroid disease, and so easily overlooked.
If the surgeon you saw today is correct, Stella, it sounds like a benign tumor and although I didn't read about it, it sounds like they have a less invasive surgery technique now similar to laproscopic surgery.
Spend time reading that link, Stella. It will be well worth your time.
What a horror story! I actually had a bad time too when they did my FNA. When I complained it hurt, the ENDO tried to say he has done them on himself and they did not hurt! I guess it was his way of saying it was all in my head. After my TT, my ENT learned that I had tons of scar tissue in my neck, so when the ENDO pushed the needle downward, it tore the scar tissue. I really don't think these docs know what the heck their doing half the time.
I myself do not know a whole lot about the parathyroids. I do know that if your calcium comes back low then they will do a PTH, intact and an ionized calcium level on you, which these particular tests take about 1 week for results to come back. This will confirm whether it's hyperparathyroidism or not. We just had a patient who had this but her's turned out to be an adenoma and she had to have her parathyroids removed. I seen her incision and it was identical to having thyroid surgery. I'm not trying to scare you, just thought you might like to know what to expect if calcium levels are abnormal.
I had a nurse break a needle off in my arm years ago.....shot blood all the way across the room! (Blood presure was a little high back then). Had a Dr. hit a nerve during a neck injection......felt like somebody stuck my toe in a 220 socket. Had a liver biopsy with too small of a drug dose.....felt the whole thing. Had the blood bank train a rookie on me and she pulled back and stuck the needle in my arm like she was trying to stab a turkey.....hit a nerve that time too.
Getting poked sucks anyway, especially as many times as we've all been through it.
Should have done what I did to a dentist once. He started to work on me and said this might hurt. I reached over and grabbed a handful of his crotch and said "Try not to hurt me and I'll try not to hurt you!" Needless to say, we understood each other's position on that matter.
Again I'm so sorry to know that you are going through all of this. I found the two site above and they seem to have quite a bit of information on the parathyroid and I hope they are a help to all of us, since those daggone drs doesnt know the head from a hole in the ground.
Carman is fair to say that we do get stuck alot. I wonder do they stick us cause they like it and Carman did give a good laugh.
First of all, CarMan, that was funny. But if one of women tried that think there'd be a different outcome. We need our own strategy! ;-)
Stella, I am so very sorry for how bad things were today!! We've all our share of these idiots who don't know what they're doing or talking about, but usually we aren't stuck 9 times in the neck for it. Did they not even do anything to deaden it? Have heard that on here before, but that was a long time ago. Hope the ice and the steroids are helping.
Sooy guys - I am whipped. I got this horrible cold now. DId utah send it to Wisconsin? I really think b/c of the length of the FNA - I just had nothing left to fight off these germs going around and got slammed.
I will try very hard after work - if I make it the whole day - to go over all the information. It is a gut feeling - but I really like it sounds more parathyroid related.
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