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Frustrated by conflicting reports!!
by Kristy4, Apr 25, 2008 10:24PM
Ok so I found out I had 3 nodules on my right thyroid in September last year - because my TSH was 0.22 (0.35 - 4.50). at the time the ultrasound report said the nodules measured 0.7cm, 1.7cm and 1.1cm in maximum diameter, no increase in vascularity. I had a RAI scan which indicated that there was "mild patchy reduction of uptake" and that the nodules were most likely cold and "findings could be due to Hashimoto's disease or primary hypothyroidism" - go figure! I had a biopsy on one of the nodules - which was not ultrasound guided and the result was "colliod rich follicular lesion with a benign patern". My specialist said that the FNA's are not 100% accurate but it is as accurate as they can get with out removing it so he sent me for a repeat biopsy in 6 months - which is now. So 2 weeks ago I took myself off for the ultrasound and the report says that the largest nodule is 1.9cm no measurements of the other ones. No increased vascularity. Then the ultrasound they did 3 days later when I had the biopsy said that it was a 2.5cm vascularised isoechoic inhomogenous nodule!! - again no mention of the sizes of the other 2. Then on Thursday - 1 week after the biopsy my specialist calls me and says it was inconclusive you need to go for another one! I am so frustrated by all this it is stressing me out if the people doing the ultrasounds can't even figure out the size and type of nodule it is what the hell is the point of having them! and if the biopsy isn't actually accurate whats the point of having that! I'm just exhausted from all this.
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Don't you just love "inconclusive" biopsies? My FNAs/punch biopsies were SO painful, too -then the doctor told me they were basically inconclusive, but suspicious for cancer. I had a TT almost 3 weeks ago, and I'm glad I did - inconclusive biopsy, but it was cancer. Some people here have even had biopsies come back benign, but there was cancer in the gland. It's amazing to me.
Are all of yours ultrasound guided now? I hope so - that does increase the chances of them getting accurate samples. I have no real words of wisdom for you, just lots of empathy. Good luck.
I really wish there was an easier way to tell what is growing in our thyroids without needles or knives. Sounds like it may be time for a long, hard chat with your doctor and ask your specialist what he/she would tell you if you were their family member (that usually gets a more honest answer).
Sorry - hang in there. This stuff is *so* frustrating.
Utahmomma
papillary carcinoma '03
recurrence and RAI '06 and possibly '08
three sisters with papillary carcinoma, another sister and a daughter with atypical (precancerous) thyroid
I was a basket case.
Truthfully - I am waiting for another ultra sound. We'll see then -
MY FNA was unbelievable-- 9 pokes and jabs and nothing biopsied either!!! Goof balls!!! -- I will wait and see if this thing changes or not - if it does show change - I WITH UTAH!!
NO MORE FNA'S -- take the darn thing out!!!! THIS IT!!!
Thanks for your comments. I'm glad to hear I'm not the only person that is going crazy because of this and doctors and specialists think they can say just wait and see and you will be ok with that! Well lucky - I think - for me my specialist called me on Saturday morning!!! and said as the second biopsy has also come back inconclusive - (at least this time they got something more than blood though) we will need to discuss thyroid surgery! at least once its out I will have some peace of mind!
All the best to you all.
Regards,
Kristy.