Aa
A
A
Close
Avatar universal
Full Hormone Replacement
Hello,

I am a 21 year old male. About 13 months ago I had surgery to remove a pituitary tumor and I am now on full hormone replacement. For the most part my recovery has gone great. However, I believe I do have problems with either the dosage (.125mg) of my thyroid hormone or the drug itself (levoxyl).

I have an endocrinologist that has been with me since the surgery and they refuse to change anything because my T4 level is in the "normal" range at 1.5.

Every time I see my endo I constantly complain of many side effects. These effects include fatigue, weakness, WEIGHT GAIN of about 40 pounds, decreased sex drive, depression, and some memory loss. Also, blood tests reveal a trigylceride level of 557 with no family history of high trigylceride and I eat a healthy diet and exercise regularly.

I was wondering if anyone had any useful information for me so I could finally feel "normal" again!
Cancel
15 Answers
15 Answers
Page 1 of 1
213044 tn?1236531060
Have your Free T3 tested. MAKE them run the test.

It sounds like you are hypothyroid regardless of what the test results show. Check your Free T3. Check your vitamin D, also, if it hasn't been looked at.
Comment
Cancel
213044 tn?1236531060
Comment
Comment
Submit Comment
Avatar universal
How does Vitamin D relate to the thyroid? I am almost positive I have never been tested for it.
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
213044 tn?1236531060
Vitamin D plays a part in conversion of T4 to T3, I think. I forget at the moment. It also helps aleviate mild depression.

People who are hypothyroid are often low on vitamin D.
Comment
Cancel
213044 tn?1236531060
Comment
Comment
Submit Comment
519035 tn?1348279373
Hmmm I wonder if that's cuz were too cold to go outside ar, lol! Ha sarcastic me : )
Comment
Cancel
519035 tn?1348279373
Comment
Comment
Submit Comment
470630 tn?1235664141
haha thats what i was just thinking. i have an adversion to going out in the cold! i am generally a very cold person and always have a jumper on and the heating! i love sunshine but living in ireland we dont get to see it much!!
Comment
Cancel
470630 tn?1235664141
Comment
Comment
Submit Comment
Avatar universal
Well, I would like to know more about the relationship between t3, t4, and vitamin d, but here is what happened to me. My t3 and t4 is low and my vitamin d wasso low that I am on 50,000 iu one day a week. I started this on oct.17th and this has made a big improvement. I am not so fatigue, depressed, weak, and I am sleeping like a baby!!!!!!!!!!!!! A major difference in 4 weeks. My endo said today that vit d will make a major difference! Yes t3, t4 problems please get it checked!!!!!!!!!
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
Don't know why your doc thinks 125 mcg is a full daily replacement.  I am also on a full daily replacement amount, which was prescribed at 200 mcg.  Also, free T3, along with your symptoms, are much more important than TSH level. In my opinion, any doc who regulates your thyroid med. by checking TSH alone, should be strung up.   FWIW
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
Is the TSH level the same as Free T4 level? I am almost positive that my doctor told me that was there was no point in running the Free T3 test because it wouldn't be accurate with my condition.. Does that make any kind of sense? Thank you for the help!
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Avatar universal
Since your current situation is stemming from a pituitary tumor, you might have other factors involved.

Here is a link to the neurology forum of this website that might help you:  http://www.medhelp.org/forums/neuro/wwwboard.html

Good luck.

Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
393685 tn?1425816122
Ahhhh   what??

I think your doctor should be running the Free T3 - especially if you are telling him you are having all the major symptoms of hypo.

Vit D is a great test to look at too. Maybe Vit B's too.

TSH is different than the FT4 test.

Are you sure that the 1.5 isn't the TSH lab and not the T4 as you say?

Comment
Cancel
393685 tn?1425816122
Comment
Comment
Submit Comment
Avatar universal
Yes my Free T4 level is at 1.5, I am positive because my doctor mentioned that the normal range is from 0.7-2.0 and when looking that up online it matches the range for FT4.

I have an appt. scheduled with another endo on december 3rd and I hope things start to change.
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
393685 tn?1425816122
OK

1.5 can also be a TSH number too.

What is your TSH?

Ask for the Free T3 test.
Comment
Cancel
393685 tn?1425816122
Comment
Comment
Submit Comment
Avatar universal
I am not sure of my TSH number. I called my endo for it and am still waiting for a return call. I was also wondering if my low thyroid symptoms could be made worse by low cortisol function. I am on full replacement of adrenal function with 20mg of hydrocortisone daily. It looks like most of the side effects are similar for adrenal insufficiency and low thyroid function. I have never been tested to see if I am on the right dosage of hydrocortisone. I was wondering if you or anyone knew of accurate tests that could record adrenal function over a period of time.

Thank you!
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
393685 tn?1425816122
Sure -

There are a few adrenal tests -

You may want to look into a 24hr cortisol test done with saliva. I don't know if your insurance will pick up the tab - most don't - but the test is pretty accurate.

There is the urine test and traditional blood lab too. Serum cortisol and ACTH testing can determine some cortisol issues. Those are covered by most plans.

How did you mange to get on HC treatment and not know if really there was an issue?  That's pretty odd?

Yes - your thyroid may not be working with the meds -if your adrenals are not working right.

Usually in Armour patients - this is a sign of adrenal issues when the meds are bouncing back on them.

I take Armour and in the process of getting my adrenals back to working correctly. I really do not know the effects of taking Synthroid and what you may experience if the adrenals are down.

I can't imagine it being anything different though.
Comment
Cancel
393685 tn?1425816122
Comment
Comment
Submit Comment
Avatar universal
Well during my surgery to remove my brain tumor, my neurosurgeon had to cut the pituitary stock connecting it to the rest of the brain, making me a candidate for full hormone replacement.

What my endocrinology team did was just put me on all of the meds.. Androgel, Hydrocortisone, Levoxyl, and Desmopressin. There wasn't subsequent testing done because they felt there was no need to. The only test they did for the adrenals was to see if they were functioning on there own and they weren't. I am in the process now of trying to adjust my dosages in order to be my old self again!
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Thyroid Disorders Community Resources
Top Thyroid Answerers
649848 tn?1424570775
Blank
Barb135
FL
Avatar m tn
Blank
gimel
MI
Avatar f tn
Blank
goolarra
Sisters, OR
1756321 tn?1377771734
Blank
Red_Star
Queensland, Australia
Avatar m tn
Blank
flyingfool
WI
657231 tn?1453836403
Blank
rumpled
Northern, NJ