HELP ME!!!!

I have been on levoxyl for 3 month and losing quite a bit of hair still. I have hashimotos and doc wanted to start treatment to see if it would help my prior symptoms (hair loss, brain fog, interrupted sleep). When is it supposed to stop the hair loss?? My question for you all is if I stop taking this medicine(I wouldn't do so unless dr says it's ok) will the hair loss get even worse? It seems that the hair loss is worse on the medicine. I'm only 36 and my hair is getting so very thin around the bangs and temples!! I used to have the thickest hair of anyone I knew!! I need some advice from you all!!!!

[Thindy]

I forgot to add that I have quite a few short hairs that fall out. Is that a good sign of the medicine starting to strengthen the hair and new hair will grow in it's place that is stronger? Hopefull I am making some sense. I go see my endo in 3 days for the first time since starting Levoxyl.

[DarlaLOU]

I am not sure, it seems to differ from person to person. Sadly, I don't think any of us will have an answer for you. I know when I am off my meds I lose hair dramatically. My hair is finally getting thicker again but still falls out alot. Like you, I used to have this super thick, long, rich hair and now it is thin, dry, brittle and I get so crazy about it. Mine has never gotten worse while ON meds, but again, I think it differs for everyone.
Good luck!
Darla

[shaerich]

Thindy, I have been on levoxyl for 3 months and my hair is falling out by the handful.  I also had super thick hair... it's the only feature I ever had confidence in b/c most women would love to have as much hair as I had.  I wish I could tell you it will get better but it's too soon in my treatment to know that.  I do know that I saw a new doctor last week and she said that it was time to try something else b/c I shouldn't be losing this much hair still.  She added T3 to my levoxyl... no improvement yet, but it's been less than one week.  She said 8-10 weeks should show a difference.

Now... that being said, I also FREAKED out about my hairloss in the beginning... did some searches online, joined a couple yahoo threads and it seems to be pretty common to see hairloss with thyroid meds.  While the literature says that "rarely" people will lose hair in the first few months but it's USUALLY temporary, I have found in my research about 50/50 on people who say that the hairloss stopped vs. people who said the hairloss never got better.  TIme will tell.

I am sorry you're going through this.  It's very frustrating and scary.  I get pretty bummed when I think about how my favorite barrett now just slides out of my hair (it was my favorite b/c it was the only one I'd ever found that would hold ALL my hair without breaking... I've had it since I was in highschool... back in the early 90s).  Now those barrets that would only hold part of my hair can easily hold all of my hair... it's depressing.

[Thindy]

Thanks for your comments. It's always encouraging to know you're not the only one going thru something like this. That's what I like about this forum-we can all share our experiences and feelings and other people listen and respond. It's very therapeutic at times for me!! Shaerich you need to let me know if the T3 helps you eventually. I sure hope it does!!

[myliljay]

I too am on levoxyl.  I just started a month ago. My hair had just started falling out before I started taking the levoxly and it still is coming out by fist fulls.  Its annoying to look on the bathroom floor and see bunches of hair or even gross when its clumped up in the shower drain.  Let us know what the endo tells you at your appt.  Good luck to you.

[shaerich]

I will absolutely let you know if T3 helps, or if I find ANYthing that helps.  Please do the same.  This stinks!

[Irina007]

I've been on levo 50 mcg for 2 months - my hairloss is EXTREME. I have subclinicl hypo at 4 TSH - now its at 1 ..still extreme hairfass!

[gimel]

Your post will be noticed by more people and therefore get more response if you will start a new thread under your own name.  Just click on the green Post a Question box at the top of page and post your questions.

[Irina007]

Thank you ;-)