Hashi heart palps

[Tristy]

I was put on a beta blocker a week ago to stop the heart palps so I could sleep.  So far it has worked, but my blood pressure has always been on the low side and it seems to be getting lower.  Like 95/62 from 112/70.  They gave me Anbien to sleep, but it only made my head burn inside without the sleep. The beta blocker with Busbar seem to help me sleep. Either that or the weeks without sleep.  Does anyone have any advise on the beta blockers.  I don't know how long it would be safe for me to take it.

[Smilerdeb]

I was on the beat blockers on and off for many years due to sunus tachycardia and bradycardia.
I found Inderal to be the best and because of a very high sensitivity to medications, mine was spaced out in 3 doses a day.
That way I didnt feel like a walking zombie and didnt get the light headed feeling.
It did the job of slowing the heart down and stopping the pals by taking it 3 times a day.
I was on 40mg daily so took 10mg morning and late afternoon then 20mg at night.
See if spreading the dose out helps as it also stops the blood pressure from going too low.
They say not to just 'stop' the beta blockers but to wean off them.
I have done this everytime and have weaned 'down' in dosage in 3-4 days.
Hope that helps.

BY the way, I have a heart murmur from birth and mitral valve prolapse and also had 3 episodes of thyroid storm (in 2 weeks) prior to RAI....no probs since RAI nearly a year ago.

[Tristy]

Wow, that is crazy.  I am 5'0 and weight 120 lbs, and they have me on 80mg of Propranol (Gen. of Inderol)  once a day at night.  I am not sure how to wean off of that. Thank goodness I have it tonight, I am having a slight rapid heart rate with it. Have not slept yet, and I can feel the adrenalin.  Wish I could sleep.  What is the RAI?  Is that radiation treatment?

[Tristy]

May I ask who was there for you when you were having such serious problems - or did you just go to the emergency room a lot?  All of my problems begin in the late afternoon.  Yours?

[goolarra]

My cardio told me there was no problem with taking a beta blocker for the rest of my life.  Since I have a predisposition to tachycardia, and levo exacerbates that, I expect that will be the case.  

BBs really do work, and they do it fairly quickly.   I found that when I first started taking them, they really lowered both my HR (down to low 50s) and BP (sometimes 80-something/60-something).  However, after having been on them for a while, things have moved back more toward normal - HR lower 60s+, BP 110-120/70-80.  I've been on BBs (atenolol) for about 15 months now.  I started at 25 mg, then had to increase to 50 mg as I increased my Levoxyl.  I take mine first thing in the morning with my Levoxyl.  Sometimes the atenolol does make me feel a little "slow", but I can work through that pretty quickly.  Better than tachy and/or palps!

[Smilerdeb]

I was on 40mg Inderal because I am very super drug sensitive to meds and have been for some years.
In regards to the he// times that I never want to even go back too...my boyfriend ended up being with me 24/7 and I always call him 'my angel' as this was a man who knew nothing about thyroid issues and came to my Doctor with me.
At one stage I was seeing my Doc every 3 days.......and in between that..ambulances called and hospital ER's.
I am registered with the Ambulance Service here In Australia that a Mica Unit attends each time I call instead of a normal ambulance.
This was set up by my Doctor (thank Gawd).
On the day that I was diagnosed with Graves, my boyfriend was diagnosed with Diabetes II.
So we basically supported each other.
We have both been to he// and back and both leaned on each other for support and I could never ever find someone who is as patient as my 'angel' is.
I had Graves Rage bad, I told him many times to get out of my life and that he deserved someone 'normal'. I cried so much, I screamed at him..'why me?'.
When I look back on it all now I know I was a total downright biatch.
But he stayed around to see me through all this and we are still together after 3 1/2 years.
2007 and 2008 were the pits for me.
Tristy..my life has never been a bed of roses. My Husband committed suicide 18 years ago and I found him hanging by the neck.....it took many years to get over that.
Then I had a de-facto who was abusive. I gave him marching orders after 7 years and then 3 years after that, I met Robert (my angel).
I had suffered with Agoraphobia for 26 years and he supported me through beating it.
Then when I was given my life back...Graves struck me with a vengeance.
I refused to live a life of he// any longer so learnt all I could about this debilitating disease (believe me..many times I nearly gave up) but since RAI (radioactive iodine) and TT, I have got myself back on track and got my levels stable.
I have returned back to fulltime work and guess what?
I am still breathing!.
Dont ever give up on the thyroid issues...yes they can be hell and yes they can try and destroy yr life but the first step to wellness is to get EVERYTHING & EVERYONE NEGATIVE out of your life.
I lost friends, my kids thought I had OCD because I was on the computer 24/7 researching Graves and Hyperthyroidism.
They always said I couldnt go one hour in a convo without mentioning the word...THYROID.
They just didnt understand.
How am I now?
I am good ...yes I get days when I get tired, yes I get days when I get the odd ache......but I am alive and am now finally enjoying life.
I will NOT let Graves rule my life.
I have back the 99% of me that I once was.
Yes I am now 5 kgs heavier than before diagnosis but so what!
There is light at the end of the tunnel ....and the most important thing to remember is ....it starts with YOU.
If you are positive with yourself then you are on the road to wellness.
My Darling Robert has been to he// and back with his Diabetes and I have been there for him as he was there for me.
Family???
My kids are all grown up....they didnt understand but do now and I had and still do have a most amazing Doctor.
I fired my Endo after the 2nd visit.

Sorry for such a saga and a book written here but I stay on this forum to help people as much as I can.
What worked for me , may not work for others but when you have thyroid issues...you will try anything.
Believe me, I have been there.
If I can help one person here then I am happy as there were 2 people here who helped me..Stella and AR_10.
They gave me back my sanity when I was at my lowest.
I owe them both....to stay here and hopefully help others.

[goolarra]

Thanks for telling your story.

Hell and back for sure.

I've been trying to send you a note or PM for a couple of weeks now to thank you for the heads up a while ago.  I also have a question for you.  I can't view your pictures, send a note or PM.

[Smilerdeb]

I have just invited you as a friend....that should do it lol :)
Hugs and Thankyou x

[Tristy]

I am truly thankful you guys are here, for sure.  Thyroid problems are nightmares and a sick joke on the body!  I wish I had my life back already.  I am glad you guys are back on track.  Thanks for all your help and advice.  The doctors where I live are overworked and seem a bit lacking in the attention/sympathy/time area.  I feel like I am being over medicated. The doc finally cut my BB in half.  Blood pressure was down to 89/55, my feet were getting cold.  Heart rate was still 65 to 75, barely changed. I think my adrenalin levels are still too high.  I was given Anbian to sleep, but it only kept me awake with my head burning.  Odd.  Not taking it again.