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Hashi with Fever and Diarrhea?

I was diagnosed with Hashimoto's about a month ago.  For the past 2 months I have been having diarrhea and fevers everyday.  I have had multiple tests done including a colonoscopy last week and a cat scan yesterday.  Other then a polyp (adenoma) everything is normal.  I was told the adenoma would not cause these symptoms.
My endocrinologist said that Hashimoto's would not cause a fever and diarrhea, but they're running out of possible tests to do and I'm starting to think this is all related to Hashimoto's.

Also, I've been on Levoxyl for 4 weeks now and feel no better. How long should I expect it to take!!!
I'm really getting discouraged.
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Avatar universal
Thanks! I'm going to have them retest me for it. My alkaline phosphotase was 185! But as I said, one is from liver and one from bone. They tested both and mine is from bone, and all my liver functions are ok.
They were very quick to dismiss it because I had been breast feeding and said that would cause this to be high.

Thanks for the info and I'll definitely have it retested.
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Avatar universal
Your parathyroid and calcium function both look good. I would definitely pursue the high alk phos.

:) Tamra
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Avatar universal
I would definitely pursue the high alk phos. I do believe poor liver function could cause fever. Also, have you had a Lyme test? My alk phos is low 18-22. Docs said they only worry when it's high, so they do nothing.

Low D is common with Hashi but is also highly common with parathyroid disease. It wouldn't hurt to test the parathyroids because of bone breakage, but I've also heard that alk phos levels could indicate bone density.  

When was your last calcium test? The parathyroids are next to the thryoid lobes. We have four. They control calcium. Parathryoid disease causes high calcium in the blood (but low in the bones). Basically, the parrathryoid ***** all of the calcium out of the bones and dumps it in the blood. Hashi or thyroid disease, should not affect parathryoid function. It is a separate disease. Parathyroid disease should also not cause fever. The tests for parathyroid disease are PTH and both serum/ionized calcium. See below website:

http://www.parathyroid.com/parathyroid-symptoms.htm

:) Tamra
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Avatar universal
I dug around a bit and found some more test results which my endo ordered, here we go:

T4 - .62 (normal range 0.61-1.12 ng/dL)
TRANSGLUTAMINASE AB (IGA) - normal
Parathyroid Intact - 41 (normal range 12-65 pg/mL)
Calcium - 9.3 (normal 8.5-10.4 mg/dL)
MAGNESIUM SER 2.4 (normal range 1.5-2.5 mg/dL )
PHOSPHORUS SER 3.4 (normal range 2.5-4.5 mg/dL )

I do not see any results for T3. Should I make them test mine? Is that important?

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Avatar universal
Oh, and no; I can't tie anything to food or vitamins. The only things I take is the Levoxyl and Caltrate and this was happening before all that.  
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Avatar universal
As far as I know, they have only tested my TSH and the anti bodies, results above.  I've had every other blood test possible.  I had a very low vitamin D and told I had a vitamin D deficiency and given 50,000 units of Vitamin D to take once a week along with Caltrate.

They have not tested my T3 and T4 as far as I know and nothing has been said about my parathyroids. What's that?

As for the alkaline phosphatase, they did a test and it can either be high from liver or bones and mine was the bone (which they automatically thought it was because I recently stopped breast feeding).  

I'm working through this with an infectious disease doctor who is the only one that I have found to be helpful through all this.

I'm still having daily fevers and diarrhea; thankfully through all this the inf. disease doc ordered a colonoscopy to test for Chron's or IBD and they did find a polyp which turned out to be a precursor to cancer.

I'm 30 years old, and I feel like no one takes me as seriously because they think I'm young. I have a 10 month old daughter and work full time; it's getting really hard to manage both through all this.

I'd love to have some ideas of what tests to as for next!
Thanks everyone!
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649848 tn?1534633700
COMMUNITY LEADER
What other thyroid tests have been done besides TSH and TPOab?  Free T3 and/or Free T4?  I *do* hope they aren't dosing your thyroid based only on TSH.........

I don't think your fever is caused by Hashimoto's either.  Have they tested for  infection and/or virus?  

It usually takes 5-6 weeks for the thyroid med (Levo) to build in your system, so you get the full effect but it's possible for you to start feeling some minor effects sooner than that.  When I first started on thyroid med, I noticed within the first week that the bags under my eyes were gone and my skin wasn't feeling so scaly.  As time went on, I began to notice other effects, but it can take a long time for you to "get better". I've been at it for a year and 1/2 and I've just recently (past couple months) begun having more good days, than bad........

Has anyone thought to look at your parathyroids?  Was your blood calcium checked?  How about vitamin D?

I just did a quick search and found that elevated alkaline phosphatase could also be from poor liver function.  
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Avatar universal
That is high for a Hashi. Do you eat anything before getting flush? Take any certain vitamins?

:) Tamra
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Avatar universal
My initail symptoms were fever (99.5) and diarrhea and extreme exhaustion. This started in August.  I went to my PCP on Sept. 2nd after having been woken up at night with diarrhea.  After many blood tests, I went to a GI specialists that said my thyroids felt full. My TSH W REFLEX test results was 12.16 (normal range 0.28-3.89).  This sent me to the endocrinologist who did an ultrasound and said I had holes in my thyroids (there was a more technical term) and after another blood test my THYROID PEROXIDASE ABS was greater then 1,000 (normal is less then 35).  I have had some other blood tests that have come back off such as my alkaline phosphotase (from bone) that was very high, but they thought that was because I breast fed until August 28th.  

My normal temp runs around 97.5. I do feel flush as well, but everyday, around 11 AM I start to feel feverish and I take my temperature, and sure enough, i have a fever of 99-99.5.  My endocrinologist said that she doesn't think this is because of Hashimoto's, but after so many tests and no answers, I'm starting to think it has to.

I have been tested (blood work) for Lupus and Celiac Disease and they came back negative. Do you think it's possible that it would be a false negative? It's hard to say since so many Lupus symptoms are close to Hashi's symptoms.

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Avatar universal
How high is the fever? Are you flushed, or do you really have a high temp? The flushed feeling with diarrhea is normal for early Hashi. Fever would not be normal, and you'd need to get further tests to rule out another issue such as Lupus or Celiac Disease.

You might just be going through a hyper spell. Although two months is a long spell. Maybe longer than normal. In the early stages of Hashi, we swing from hyper to hypo. Sometimes those thyroid nodules leak excess hormone. My worst hyper spell lasted two weeks. I lost about 13 pounds.

It should take several months for the Levo to kick in. You will probably need med adjustment several times.

or....

When did you start the Levo? Around the same time you started the fever/diarrhea. Maybe your body does not like the synthetic hormone and you need to try another brand or just get off synthetics and get on a dessicated thyroid med like Nature-Throid.


:) Tamra
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