Hashimoto and Chronic Urticaria (hives)

[kdcdcd2]

In 1994 I was diagnosed with Hashimotos Thyroidits...then I was told that the Hashimotos turned into Hypothyroid...now for the last 9 months I have been diagnosed with Chronic Urticaria or hives. I will wake up with hives head to toe and am miserable but then by midafternoon the hives go away and come back around 8pm. I have seen a Dermatologist who says I need to accept the fact that I will not know what is causing the hives and to treat the hives (allegra and zantac) I have seen the Allergist who wants to check for an autoimmune disease which I don't understand because Hashimotos is an autoimmune disease or problem I thought. My thyroid doctor says there is no link between the thyroid and the hives and has taken a leave of abscence from his practice. I am now very frustrated and feel like I have to settle with no answers. Does anyone else have these issues?? or does anyone have any thoughts about this??

[mlr3475080]

I do! Your doctor like mine, is an idiot. There is definately a link! Your autoimmune disease means your body is attacking itself. Something else has happened. Listen to your body. Get an ultrasound of your thyroid!

[Cynnieb4]

I definately agree, was doing research on that yesterday. Before being placed on thyrod medication I noticed as I was becoming normal, or somewhat that I have severe allergies now. My dad claims its the cats. Well, it might be. But it also states that when your out of balance it will cause these problems. . MY sister on the other hand refuses to go get checked, even tho she has a goiter and chronic hives. Claims she doesn't have any symptoms although she to has put on a tremendous amount of weight in the last few years. Hashimotos unfortunately runs in my family, and once you have that you are unfortanately at risk for many others. suggestions, have you been checked for celiacs? By the way she is on zyrtec for hers. She gets them from head to toe if she doesn't take them

[Rainydeb]

Hmmm...I broke out in hives recently. Doc said "you're allergic to something." Geez, think so??? I have Hashimotos. Thyroid looks like "swiss cheese" sayeth the Endo. Any way, I don't know if the hives are related, I just hope it never comes back. It was extremely miserable, and the steroids did nothing that I could tell. Itching was severe, and different than just an itch, hard to explain but the itch felt like it was under my skin where I couldn't get to it, and skin burned. Also, I started losing my voice. The only thing that helped was an oatmeal bath, believe it or not, which I finally tried out of desperation. It was almost instant relief. Try it. Can't hurt.

Yeah, most doctors seem to be idiots in my experience. If you listen to them, they will make you feel like you are an attention seeking nutcase.

[mlr3475080]

I used to take Zyrtec..put me to sleep, but the itching under the skin thing, most likey sweeling. I blow up like a balloon, gets in my lungs,,, ya its awesome lol, welcome

[Hashimama]

Do NOT let them tell you that there is no connection between Hashi and hives....print some of the hundreds of comments from all of us out there with severe chronic hives!!!  I had severe hives, angiodemia, anaphalaxis, and tons of hair loss in 2002.  When they finally found out that is wasn't an allergy, but low TSH, I was put on Synthroid.  The hives went about 75% away.  Then I went to an immunologist who put me on Singulair and Zyrtec.  Then they went away.  Now here I am in 2009 and they are back.  Currently I am on Singulair, Zyrtec, Levothyroxine (of course), Hydroxyzine, Prednisone, and about 6-8 Benadryls a day.  Still they come back......   I am seeing an endo at UCLA in a few weeks and I am praying he can help me.  My poor kids are tired of me being TIRED!  Hang in there, you are not alone!

[Harriet55]

I'm a 54 year old woman who has been diagnosed with hypothyroidism and has had chronic urticaria for almost 3 years now.  I've been to several general practioners, an allergy doctor, skin specialist, immunologist, and gyno...and no one seems to know what's going on or care to do testing to find out.  I've been on Levothryoxine, benodryl, zyrtec, xysal, prednisone, Zantac, Atarax, etc...and I still have the hives just about every day from head (angiodemia) to toe.  I have a hard time sleeping because I wake up in the middle of the night itching.  I'm afraid to go to sleep for fear I will wake up with them. After reading this site...I'm going to try Synthroid instead of Levothryoxine and see if that helps at all.  

Just a little history that might help: About 24 years ago when my youngest child (of 2) was 4...5 years old I developed hives for about a year...but they weren't as severe as they are now.  Whenever I had a sinus infection or other bacterial infection and was on antibiotics...the hives would disappear.  I went to many allergy specialists at that time but none of the doctors wanted to give hormone tests, as I wasn't diagnosed with hypo until about 5 years ago.  The hives just disappeared and didn't reappear for 24 years.

It's a little comforting to know that there are other people like me...I haven't encountered anyone with this disease in my life.

Does anyone have sleeping problems and what do you do for it?

Are there any itching remedies?

Thank you for listening.

[jcorky]

Hmm I'm 61 year ood female, who was diagnosed with hashimoto thyroiditis. i was placed on synthroid 25mcg for 3 months the50mcg  then 100 mcg  and now 150mcg,with i n 3 months after being on synthroid  150 mcg , i developed a bad case if hives.like everyone else they come and go  some thimes they're so big it will take up my whole arm.been on attaract,dolopin tagament an xytal , predisone,  and a medrol dose pack,nothing work, my dr,gave me a topical cream there is four creams mix together. thy cream works fast, but unfortunately they came  back, the cream is clobetasol cr/ 60 gm eucerin 60 gm  menthol  1.5 gm / prudoxin  cm  30 gm..stoped the itch  and it dont make you tired..i hope this help some,

[sweetnsassie74]

Hello. I posted on the websire in July. I have done alot of research and went to my doctor. I have been diagnosed with Hashimoto's and have had hives pretty bad since Febuary. One of the this I had found while researching the relation between hives and Hashimoto's was a trial study. I tried and and have not had any hives. What a difference in my life with out them. I was miserable.
Medications like benadryl or atarax are labled a H1 histamine blockers. Meds like zantac, pepcid or tagament are H2 histamin blockers. I take 25 mg of atarax in the am along with a pepcid. In the pm, I take another pepcid. Coincidence or not since I have been doing this combination my hives have gone away. Just thought I would share this.

[jgleas]

I have had hives off and on for 5 years.  Some lab work was JUST done and it shows that I have some high anti thyroid antibodies.  So now I am being diagnosed with Hashimotos.  I am amazed at the other people who are going thru the same thing I would love to chat and exchange storys with any one of you that is willing.  Thanks!

[Vanilabnicecream]

It's so great to read everyone's comments and know that I am not alone. I was diagnosed with hypothyroidism in May of 2009, just a few months ago, and put on a low dose of synthroid to treat it. Then in late June, I started developing hives around my sides and mid-section. Then over the past three weeks, they have covered my entire body head to toe. They are all over my face and everything. They are itchy and annoying, and I'm now experiencing some swelling on my legs as well. My thyroid doctor hasn't suggested anything for them.
I saw an allergist a week ago and she put me on allegra in the day time and zyrtec at night, and I'm also on a nose spray called Veramyst. The hives have never gone away completely save for the three days I was on a steroid. Today they are as worse as ever. I just want them to go away forever. And I don't know how to make that happen....

[jgleas]

I know.  It is SO hard.  I have them head to toe as well.  everyday 24 hours a day the allegra never gets mine to go away either,  I am on steroids again right now but like you said it only works temporary and my doctor wants me to take them daily but everyone knows that isnt healthy but at the same time its the only thing that works,  I am going to see a rheumatologist in october which i have to drive almost 4 hours to see.  Maybe that will proove to be healthful I have no idea,  DO you have your lab work info?

[kaytor]

I have had hives almost every day of my life for 11 years.  The first time for 3 1/2 years then a 7 year respite, and continuing now for 8 years.  The only way I have survived without ramming my car into a pole (too afraid I would survive and not be able to scratch my hives), has been with Zyrtec.  I also have Hashi.  The only thyroid I can take is Naturethroid.  I have a scale of 1 - 10.  I am usually at about a 2 every morn when I wake up and they clear by about 9 a.m.. There have been some 10's!  When I tried Synthroid they immediately went to a 5 or 6.  The first bout with the hives I went on the Candida diet and they eventually went away.  Didn't know if that is what it was because every expert seems to think that they mysteriously just go away.  I have recently discovered that I cannot tolerate gluten, and since I have stopped my stomach feels better and my hives continue at about a 1 - 2.  My next approach will be to try to heal my adrenals.  It is a slow process but I am hoping something will help.  

[itchinginLA]

hi, I too, suffer from daily hives(8years) and was diagnosed with hashimotos disease 3 years ago. I had a partial thyroidectomy but since my surgery my bloodtest show my thyroid levels within normal range, therefore my physicians will not prescribe synthroid. I am extremely tired and can fall asleep at most anytime during the day. I am very involved in my community and  chair numerous special events. I work in marketing/pr which requires a great deal of energy,  but the daily hives and extreme tiredness are beginning to wear me out. IF anyone has any suggestions, I will  greatly appreciative. I take daily H1  and H2 antihistamines. Its good to know that I am not crazy. I just wish we could all find the answers to our health conditions. Best of luck to everyone