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Hashimoto's and it all went downhill from there
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This patient support community is for discussions relating to thyroid issues, goiter, Graves disease, Hashimoto's Thyroiditis, Human Growth Hormone (HGH), hyperthyroid, hypothyroid, metabolism, parathyroid, pituitary gland, thyroiditis, and thyroid Stimulating Hormone (TSH).

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Hashimoto's and it all went downhill from there

Hi there.  I am hoping to gain some insight here or even learn from others who have similar experiences.  

Over a year ago I was diagnosed with Hashimoto's Thyroiditis.  I had been feeling very sick overall for about 6 months... hair falling out, freezing cold, heart palps/skipping beats, anxiety, dry skin, and finally breaking out in hives on my body and face as well as facial swelling.  My PCP at the time shrugged their shoulders and said "maybe allergies?"  I went to an allergist and was tested for environmental allergies and it was all negative.  He ran an autoimmune panel and bingo... anti-thyroid antibodies were high!  Diagnosed me with autoimmune hives and told me to go see an endo ASAP.  I have now been on Synthroid for over a year... hives as well as puffy face went away.  We have had to play with my dose a bit but settled on 25mcg for now since 50mcg had my TSH down to .3 and I could not sleep!  I am having another blood test done this month.  

Now for my other issues... Vitamin D deficient despite supplementation.  Endo upped my liquid Vit D dose to 5,000IU a day and will retest to see if it comes up (currently at 22).  Several months ago it was discovered that I had ovarian cysts and recently had a laparoscopy which revealed 3 cysts, adhesions, endometriosis, and a twisted fallopian tube.  So that was all fixed.  An upper endoscopy showed gastritis in my stomach and I cough up blood in my sleep, so I am now on medication for that.  Sigh.....

My health hell:
Hashimoto's dx'd 2010: on Synthroid 25mcg
Vit D deficient: on 5,000 liquid Vit D a day
Gastritis 2012: on Protonix 40mg a day
Endometriosis stage 3 or 4 2012: on Lo LoEstrin FE (newly added)

I feel like the Hashi's is under control for now but honestly I feel like a walking time bomb.  Is there anything I can do to stop this autoimmune cycle or at least calm it down?  Each of my specialist Dr's looks at only that specific problem, not the big picture so I am worried that my autoimmune battle is just beginning. I have had hip pain for months now and periodically have knee pain as well.  I am not overweight and exercise/eat fairly well.  I am worried about MS, diabetes, RA or even Lupus down the line.  I know I need to do something besides popping meds.  Can anyone relate??  

Thank you!

2 Comments Post a Comment
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I forgot to add... I have had thyroid ultrasounds and I have a small nodule they are watching and the ultrasound also showed damage/inflammation from the Hashimoto's.  The thyroid is enlarged.  
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Avatar_m_tn
Many of us with thyroid disease have other issues with autoimmune also.
The medical profession does not have a clue as to what triggers our own immune system to attack us. They just treat the individual diseases, we may be able to help with thyroid, can you post your thyroid test results and please include the ranges provided for each level. Ranges vary from lab to lab, so these are needed. Sorry about all your issues, some members here have similar auto immune issues and may be able to offer help/advice.
Please Pot yor Labs Thank You FTB4
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