Hashimoto's...swinging from hyper and hypo

[momto3girls]

Hi There,

I was diagnosed with Hashimoto's a year ago, tested positive for antibodies and very symptomatic of hypothyroid with elevated TSH.  Soo, dr. put me on levoxyl 25mg and now up to 50mg for the last 6 months.  

Here's my question.  I have these periods of time where I will have rapid heartbeat, shakiness, panicky, etc. for maybe 2 weeks and then periods of fatigue and constipation.  I should mention there are times where I feel perfectly fine.  Now is it possible to swing from hypo to hyper if you have Hashimoto's thyroiditis?  I feel like a train wreck it happens.  Can someone offer me any insight?  My endocrinologist says it's not my medicine and to see my regular dr. even though he hasn't tested my levels in 6 months.  Thanks so much.

momto3girls

[patty1970]

The symptoms you are talking about are the same ones that my Endo said if I ever had them to call him ASAP, because it can be that you are taking too much medicine and they need to test you and give you the right dose of medicine, as it has been mention above you need to get tested and see a change Endos because there is no need for you to feel like that, ( i know your pain i went with out medication for 4 months have  2 little girls 5 and 4, i know the hell you are going thought) see if a diferent Endo can see you and fight to get tested, if you live near Baton Rouge, LA. the name of my endo that is a great doc is Dr. Gary Field phone number [phone], hope you get the care you deserve you are in my prayers, God be with you, Patty.

[momto3girls]

Nope, I've not been tested in over 6 months but my endo's reasoning is that I've been on the levoxyl for this long so it's not the medicine.  Good idea, maybe I will just go to my GP and let him order the test and go from there.  I just hate feeling this way, like I'm walking around in a fog, dizzy, rapid heartbeat and just weird feeling.  It's so bizarre.  To answer your question, yes I had an ultrasound done maybe 3 years ago that was ok.  My endo says that he could see my thyroid from across the room before I started medicine so I'm assuming it was inflammed.  Anyhow, I feel frustrated.  I just want to feel stinking normal.  I have 3 girls to take care of and it's really interfering now with my life.  Thanks for your advice!

momto3girls

[AR-10]

You haven't been checked in six months and your Endo didn't order tests?

My GP would order tests every three months.
Your GP can do the same, and should be. We should all be getting at least a TSH every three months.

To pinpoint your problem, have a TSH and a Free T4 when you feel really hyper, and do the same when you feel really hypo.

See if you really are swinging, or if your levels are similar.

Have you ever had an ultrasound of your thyroid?  

[Nuch]

I was diagnosed 2 years ago & I have rapid heart rate, tingling in the finger tips, palpitation & can't sleep well. I tried synthoid for 4 weeks & I thougt I was going to have a heart attack. My heart was beating at 120 bpm just sitting down. Had many cardiac test done which all came back neg. Good luck & if you ever find any out let me know please.
Nuch

[Jessi63]

Sounds to me like you need a new endo.  There are a lot of educated individuals on this site that I think can help you.  Hope you get a helpful reply soon.