Hello Dr. and to those who read and can hopefully offer advice-
I went to the endo today and they have said that I have Hashitoxicosis. Over the past 8 weeks I have had a TSH of 13 and now, it's down to 3.6. MY FT3 is rising, as is my FT4. Right now, I guess I am just worried. What if I keep swinging from hypo to hyper? I have yet to see the hyper side but I'm sure it's coming, unless this next lab reveals that I stay put at 3.6 TSH and the other Free T3 and T4s are normal.
I had antibodies tests done:
Thyroglobulin 417 range <20
Thyroid Peroxidase <10 range <35
Thyroid Stimulating Immunoglobulin(TSI) 88 range <130
Thyrotropin Receptor Antibody/Thyroid Binding Inhibitory Immunoglobulin(TBII) <.3 Range 0-1
Still have to get Blocking TSH Antibodies done.
Over the past few weeks, TSH has gone from 13 to 11 to 6 to 3.6.
FT4 has gone from .66 to .72 to .86 (range .7-1.4)
FT3 has gone from 2.6 to 2.7 to 2.9 (range 1.7-3.7)
I definitely have Thyroglobulin Antibody, but the others appear normal. My doc says that TSI is not what it should because even though the range is less than 130, she says in healthy individuals, it's generally 20 or less.
Does anyone have any experience with this? Does it go away? I feel like I should just have surgery and get this stupid thyroid taken out. It sure is causing a lot of trouble.
How long does Hashitoxicosis generally last?
I found some articles on Hashitoxicosis out there but usually in a passing reference.
One good definition I found was: Hashitoxicosis (3-5% of cases) refers to the presence of chronic lymphocytic thyroiditis PLUS hyperthyroidism. These patients have high antibody titers as seen in Grave's disease. In fact, this disorder probably represents superimposed Grave's on Hashimoto's. RAIU is normal or elevated. Treatment is as for Grave's disease.
I have also seen sights that say everything from "it's temporary" to "it needs surgery"
There are a lot of articles on PubMed that may give you some good things to talk to your doctors about.
Go to: http://www.ncbi.nlm.nih.gov/
and do a search on "Hashitoxicosis"
Wish I had some answers but I don't but maybe some of these medical journal articles will help you and your doctors make a good decision for you.
BTW: *IF* (and only IF) you do decide on the surgery, the vast majority of us in the "necklace club" will tell you it is the easiest surgery we've been through.
edit: I have noticed that I am a little bit more sensitive to light these days, but I don't have bulging eyes or anything like that. Sometimes my eyes are dry but that's about it.
"Swelling in the orbital tissues which causes the eye to be pushed forward -- referred to as exophthalmos -- which can make Thyroid Eye Disease sufferers appear to have a wide-eyed or bulging stare."
^^Is that very common?
I went to that page and just started crying. :( I don't want my eyes to look that way. :( :(
Is there anything you can do to prevent this TED from happening?
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