That really doesn't sound like a sun allergy.
Have you seen an allergist?
I wish you luck. I remember the rash I had being totally unbearable.
Not sure about the antibody test. Something to ask Dr. about next visit. My rash is extremely concentrated on waist, stomach and up to under arms. Down to inner thighs, knee area, not outer! I'm definitely not wearing bikinis! Horribly vague, this rash thing. Hard to diagnose. I spent the better part of this spring /summer researching all pool related allergies. Chlorine, Ph, calcium hardness in H2O, also drug/sun interactions. We were considering alternate filter options. Bathing suit material issues. Showering before/after exposure. Nothing really, exactly fit or worked. Finding this web/ forum gives me a new avenue to explore and a little hope for an answer. (going to look for that sunscreen, anyway)
Did you have more than one thyroid antibodies tested? (TPOab and/or TGab) Sometimes one OR the other is positive, not both.
My sun rash was heavy on my upper arms and milder on my legs. Funny though, I was wearing a bikini and always bendign over in the pool with my small kids, yet my back was unscathed!
My Dr. checked antibodies after we saw TSH so high. It came back negative though. So the sun allergy rash was more wide-spread for you? Sun exposed areas? The fact that my rash is not on exposed skin threw me off the sun trail a little. A sun allergy is a big drag,too. Even if I don't swim in my pool, which I have curtailed, I still entertain out there. My new plan is to try new med (not Levoxyl or Synthroid. One I am not familiar with yet. I'll receive it in the mail shortly), research more, in particular, the web link you sent and re-check blood test ASAP. Maybe it's all related. The steroids seem to be working, as you are aware, temporarily. I will hopefully be armed with lots more info when I see Dr. again. I welcome any thoughts or comments out there.
It sounds like it is not the sun, then. I also took steroids for mine, until I found out about the sun allergy.
Exciting news. I found this:
" Thyroid autoimmunity often associated. Administering thyroid hormone may alleviate chronic urticaria in hypothyroid patients with autoantibodies"
Have you had your antibodies tested ever? They are more than likely positive.
A TSH of 50 is way high.
http://www.rxmed.com/b.main/b1.illness/b1.1.illnesses/Urticaria.html
Also, let me just throw this out there, The rash doesn't appear anywhere that is exposed to sun. This time it was not fading as I avoided pool/sun. The D.r Rx'd oral steroid course to clear it up, it's pretty bad. Seems to help symptom, not cause.
Thanks for responding. I had suspected it might be sun related. I tend to stay inside when it's too hot, and spend time under umbrella. Doesn't seem to happen in early spring while I'm out gardening, only after pool. I have followed every lead on pool related topics, chemical balance, pool blogs, etc. and no one seems to have ever had this kind of problem. It started 2-3 years ago ( I'm 46 and have spent many years with no reaction), summer only so you are probably correct. Just frustrated. I hope others with a rash will post so I can get a little more input. This seemed to happen as my TSH levels crept up and are now all of a sudden at, I think I mentioned, 50.4. Rash is the worst yet, I was hoping it might be related to finally get an answer. thanks again.
I have had a skin rash every couple of years that has been diagnosed as PLE- polymorphic light eruption. It is essentially an allergic reaction to the sun. It is also associated with Lupus- which I don't have.
Have you been in the sun?
The only thing that cleard mine up was avoiding the sun until the rash faded and then using a natural sunblock of zinc oxide and titanium dioxide.
I have heard of others speak of rashes related to their thyroid disease. Hopefully they will be of more help.