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Huge Drop on TSH
My TSH level suddenly dropped from 0.24 to 0.0520 with Synthroid 88mcg in April. My doctor reduced my dose to 75 mcg and my TSH level was up to 0.28. However, I was very miserable with energy with 75mcg. The doctor reduced the dose to 81.5 (split 88, 75 pills) and my TSH level went down to 0.06 (just slightly better than 88mcg), but still far off from the normal range. However, I no longer has hypothryoid symptoms, unfortunately, I have been developing pin/needle and cold water sensation all over my body since.
What causes sudden on TSH level?
Why I experienced severe hypothryoid symptoms when my TSH level is at 0.052?
Is 0.06 dangerous and may cause some strange sensations that I'm experienced?
Is there anyway to raise TSH level without increasing dose?
My data,
T3,Total 89 (76-181)
T3,Free 2.9 (2.3-4.2)
TSH 0.06 (0.49-4.70)
Total T4 10.1 (4.50-12.00)
FREE T4 1.35 (0.71-1.85)
Thanks for any information.
What causes sudden on TSH level?
Why I experienced severe hypothryoid symptoms when my TSH level is at 0.052?
Is 0.06 dangerous and may cause some strange sensations that I'm experienced?
Is there anyway to raise TSH level without increasing dose?
My data,
T3,Total 89 (76-181)
T3,Free 2.9 (2.3-4.2)
TSH 0.06 (0.49-4.70)
Total T4 10.1 (4.50-12.00)
FREE T4 1.35 (0.71-1.85)
Thanks for any information.
The info you related to jnl55 is not correct. You got the usual stuff from the RN and Abbott. That kind of misinformation is one of the main reasons why there are so many under treated hypothyroid patients.
Have a look at these links and you will see what I mean.
http://www.hormonerestoration.com/Thyroid.html
http://www.ncbi.nlm.nih.gov/pubmed/1366242
Have a look at these links and you will see what I mean.
http://www.hormonerestoration.com/Thyroid.html
http://www.ncbi.nlm.nih.gov/pubmed/1366242
Just a FYI, I just talked today with an RN from Abbott Labs. They are the maker of Synthroid. She asked me many questions, lab results too. She said with my symptoms I was overdosed and told me to call my Dr. today, which I did. At Abbott they follow the TSH test. They want your levels to be within the range for the drug you are taking. 0.3-3.0 mIU/L
My Dr. is lowering my dose today. Then she will check me in 6 weeks. It's such a hard thing to get balanced. You may need a T3 added. I take a 5mcg called Liothronine (T3 med)
Maybe a call could help you. 1-800-633-9110 Abbott Labs specialists.
My Dr. is lowering my dose today. Then she will check me in 6 weeks. It's such a hard thing to get balanced. You may need a T3 added. I take a 5mcg called Liothronine (T3 med)
Maybe a call could help you. 1-800-633-9110 Abbott Labs specialists.
How come it has been so long since we heard from you? Sorry to hear that you are not feeling up to par. Sounds like you have never been successful in getting the treatment you need for being hypothyroid. If your Free T3 is typically 2.2, that is far too low for most people. A good thyroid doctor will treat a hypo patient clinically by testing and adjusting Free T3 and Free T4 as necessary to relieve symptoms, without being constrained by TSH results. Symptom relief should be all important, not just test results and especially not just TSH.
Many hypo patients find that when taking large doses of T4 meds like you have done at times, their TSH becomes suppressed and the doctor decides that you must be hyperthyroid, and reduces meds, and you become even more hypo. Don't let them do that. When taking meds, the TSH becomes meaningless. I heartily suggest that you read the link I gave jnl55 above. I think you will find it to be very useful for you in trying to get your doctor to treat you adequately.
As for T3, there are several ways to add T3 to your meds. One is to just add a T3 med like Cytomel, or a generic T3 med, along with your T4 med. The other is to switch to a desiccated type like Armour Thyroid, or NatureThroid, both of which contain both T4 and T3. Whichever you choose to do, it becomes a matter of increasing your Free T3 level until hypo symptoms are relieved. Do you think you can get your doctor to prescribe a T3 type med for you?
Many hypo patients find that when taking large doses of T4 meds like you have done at times, their TSH becomes suppressed and the doctor decides that you must be hyperthyroid, and reduces meds, and you become even more hypo. Don't let them do that. When taking meds, the TSH becomes meaningless. I heartily suggest that you read the link I gave jnl55 above. I think you will find it to be very useful for you in trying to get your doctor to treat you adequately.
As for T3, there are several ways to add T3 to your meds. One is to just add a T3 med like Cytomel, or a generic T3 med, along with your T4 med. The other is to switch to a desiccated type like Armour Thyroid, or NatureThroid, both of which contain both T4 and T3. Whichever you choose to do, it becomes a matter of increasing your Free T3 level until hypo symptoms are relieved. Do you think you can get your doctor to prescribe a T3 type med for you?
Many years ago before being placed on thyroid meds, my TSH was almost 5.0. Just low enough that I had to really work on my doctor for a long time to get a trial of T4 med.
I tried to make it clear that you do not need to worry about your TSH while taking thyroid meds. TSH or inadequate TSH does not cause symptoms directly. The predominant function of TSH is to stimulate the thyroid gland to produce thyroid hormone.
I think you can gain some valuable info from this link, written by a good thyroid doctor.
http://www.hormonerestoration.com/Thyroid.html
One of the best parts of the paper is. "One day, this delusional TSH-based thyroidology will be abandoned and physicians will go back to diagnosing and treating thyroid insufficiency by clinical criteria--according to the patient's signs and symptoms first, and the FT4 and FT3 levels second."
I think when your med is adequate and your Free T3 is increased enough to relieve hypo symptoms, the tingling may disappear. Another possibility is low B12. Hypo patients are frequently too low in the ranges for Vitamin D, B12 and ferritin, which is a form of iron. I suggest that you should request to be tested for those three at first opportunity. When you have those results, please post, along with ranges, and members will be glad to advise further.
I tried to make it clear that you do not need to worry about your TSH while taking thyroid meds. TSH or inadequate TSH does not cause symptoms directly. The predominant function of TSH is to stimulate the thyroid gland to produce thyroid hormone.
I think you can gain some valuable info from this link, written by a good thyroid doctor.
http://www.hormonerestoration.com/Thyroid.html
One of the best parts of the paper is. "One day, this delusional TSH-based thyroidology will be abandoned and physicians will go back to diagnosing and treating thyroid insufficiency by clinical criteria--according to the patient's signs and symptoms first, and the FT4 and FT3 levels second."
I think when your med is adequate and your Free T3 is increased enough to relieve hypo symptoms, the tingling may disappear. Another possibility is low B12. Hypo patients are frequently too low in the ranges for Vitamin D, B12 and ferritin, which is a form of iron. I suggest that you should request to be tested for those three at first opportunity. When you have those results, please post, along with ranges, and members will be glad to advise further.
you day ' a souirce of T3 wa added to your meds. what please is this magic med? My FT3· has been lowish foir years no matter what dose of levothyroxine i take and i have tried from 150/day to 0/day for six weeks each with every level in between. My TSH went up and down but FT3 stayed down at around 2.2. The highest it got was 2.83 but this was after three months with NO levothyroxine. Of course in this test my TSH wen up to 5.5. So I went back to the pill. Talk about a yo yo. And becuase of heart meds coreg, rythmol, crestor i do not know what symptoms are due to the levo dose or to them. Hopeless situation. Nausea, fatigue gut ache, dizzy, fatigue for at least two hour every day. And not a single night for 4 years without two or three hot spells which take an hour so to cool off. I'm 85. The golden age they
Thank you so much for your information. My doctor told me the important numbers are TSH and T4. He pointed out that he has helped me increased T4, but did not mention about my T3 in the low range. I will be looking for a new doctor.
Is your TSH level ha always been this slow? My doctor did not bother to address why my TSH suddenly dropped significantly. Is it something that I need to concern about? Are the pin/needle, at times, cold water sensations are related to my TSH drop or a symptom of some kind of cause (or illness) of the TSH drop?
Is your TSH level ha always been this slow? My doctor did not bother to address why my TSH suddenly dropped significantly. Is it something that I need to concern about? Are the pin/needle, at times, cold water sensations are related to my TSH drop or a symptom of some kind of cause (or illness) of the TSH drop?
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After starting on thyroid meds, TSH is even less useful. I say this because taking enough thyroid meds frequently suppresses the TSH below range. That does not mean that you have become hyperthyroid, unless you do have hyper symptoms, due to excessive levels of Free T3 and Free T4,which is not the case for you. There are numerous scientific studies that support this.
My own TSH has been around .05 or less for 25-30 years now, without ever having hyper symptoms. In fact I had lingering hypo symptoms, even though I was taking 200 mcg of T4 med, until 5 years ago when I found this Forum and learned about the importance of Free T3. Hypo patients taking significant doses of T4 med frequently find that their body does not adequately convert the T4 to T3, resulting in a Free T3 that is too low in the range and causes hypo symptoms. For info, scientific studies have shown that Free T3 correlated best with hypo symptoms, while Free T4 and TSH did not correlate at all. So, my Free T3 was tested and confirmed as low in the range, and a source of T3 added to my meds. Now I feel best ever.
A good thyroid doctor will treat a hypo patient clinically, by testing and adjusting a hypo patient's Free T3 and Free T4 levels as necessary to relieve symptoms, without being constrained by resultant TSH levels. Symptom relief should be all important, not just test results, and especially not TSH results. If your doctor is not willing to treat clinically as described, and you cannot persuade him of the info given above, then you need to find a good thyroid doctor that will do so.
At the minimum, if there was a med dosage at which you felt good, that is what you should go back to. In addition, since hypo patients are frequently too low in the ranges for Vitamin D, B12 and ferritin, I highly suggest testing those as well, and supplementing as necessary.