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Hyper goes hypo?? HELP
by tsimmu, Aug 27, 2007 04:07PM
Okay ... I'm at my wit's end. I apologize for the long post but thought I shoudl give everyone the complete story. Been to my GP, endo, neuro-ophthalmologist and neurologist and still no answers. I was recently diagnosed with Graves Disease (due to proptosis in my left eye). I've been hyper for over two years. I'm dealing with the eye issue but my recent blood work shows that I'm euthyroid..
Here's my story:
5 weeks ago ... got off tapazole (for my hyperactive thyroid) after being on low dose for two years. At this time I also started taking mucomyst eye drops in both eyes (4-6 times a day) and Restasis eye drops twice a day.
3 weeks ago ... joint and muscle pain, numbness and tingling started ... moved all over my body but starts between my shoulders in my back and travels throughout. Started getting mild fasciculations (twitches) all over my body but only during periods of rest.
Two weeks ago... discovered mucomyst is a sulfa drug (I'm allergic). Stopped the mucomyst. Two days later ended up in ER with horrible case of hives and difficulty swallowing. Gave me prednisone and sent me home. Had MRI of brain and eye orbits ... nothing significant found but some mild swelling of my sinuses.
This week ... Muscle fasciculations are constant (only present during rest) muscle/joint pain and numbenss has subsided some but flares and is intense for short periods in my legs mostly. Also having hard time swallowing (lump in my throat feeling) and my voice is hoarse/weak with an occasional sore throat. Also experiencing facial tingling and numbness that comes and goes.
My endo swears nothing is wrong with my thyroid because blood work would show it. Since MS has been ruled out ... this sounds a lot like ALS? No history of ALS in my family. I'm a female, 41 years old. Or maybe peripheral neuropathy?
Or yet another option ... aseptic meningitis from the sulfa antibiotic I was taking for over three weeks. Last time I took a sulfa drug was for my ulcerative colitis seven years ago. That resulted in severe joint pain and muscle weakness ... all that subsided once I stopped taking the drug.
All this stress has resulted in complete loss of appetite. My neurologist suspects aseptic meningitis and wants to wait and see if the fasciculations, numbness, and intermittent myalgia subside. We did a lyme disease test at my insistence but my neuro seemed over confident that it's not lyme (test results are pending).
Can any/all these symptoms be attribuatble to my Graves Disease?? My gut says this is all thyroid related -- but because I'm euthyroid (all blood work normal), I can't find an endo willing to consider it.
I've never been hypo before ... are my symptoms consistent with hypo? My neurologist said the fasciciulations might also be thyroid related.
Any thoughts/ideas would be appreciated. Thanks!
Tsimmu
To:
Here's my story:
5 weeks ago ... got off tapazole (for my hyperactive thyroid) after being on low dose for two years. At this time I also started taking mucomyst eye drops in both eyes (4-6 times a day) and Restasis eye drops twice a day.
3 weeks ago ... joint and muscle pain, numbness and tingling started ... moved all over my body but starts between my shoulders in my back and travels throughout. Started getting mild fasciculations (twitches) all over my body but only during periods of rest.
Two weeks ago... discovered mucomyst is a sulfa drug (I'm allergic). Stopped the mucomyst. Two days later ended up in ER with horrible case of hives and difficulty swallowing. Gave me prednisone and sent me home. Had MRI of brain and eye orbits ... nothing significant found but some mild swelling of my sinuses.
This week ... Muscle fasciculations are constant (only present during rest) muscle/joint pain and numbenss has subsided some but flares and is intense for short periods in my legs mostly. Also having hard time swallowing (lump in my throat feeling) and my voice is hoarse/weak with an occasional sore throat. Also experiencing facial tingling and numbness that comes and goes.
My endo swears nothing is wrong with my thyroid because blood work would show it. Since MS has been ruled out ... this sounds a lot like ALS? No history of ALS in my family. I'm a female, 41 years old. Or maybe peripheral neuropathy?
Or yet another option ... aseptic meningitis from the sulfa antibiotic I was taking for over three weeks. Last time I took a sulfa drug was for my ulcerative colitis seven years ago. That resulted in severe joint pain and muscle weakness ... all that subsided once I stopped taking the drug.
All this stress has resulted in complete loss of appetite. My neurologist suspects aseptic meningitis and wants to wait and see if the fasciculations, numbness, and intermittent myalgia subside. We did a lyme disease test at my insistence but my neuro seemed over confident that it's not lyme (test results are pending).
Can any/all these symptoms be attribuatble to my Graves Disease?? My gut says this is all thyroid related -- but because I'm euthyroid (all blood work normal), I can't find an endo willing to consider it.
I've never been hypo before ... are my symptoms consistent with hypo? My neurologist said the fasciciulations might also be thyroid related.
Any thoughts/ideas would be appreciated. Thanks!
Tsimmu
To:
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I did RAI for my Hyper/Graves'. I do suffer with bad charley horses when I am out of the hypo range of Labs. And I do get med. induced stymptoms when levels are out of Labs range either side (hyper/hypo).
Have you been checked for nodule(s)?
My aunt died from ALS (no family history), lets hope its not that!
Your symptoms sound off to me. Maybe other Gravers will have more insight for you.
Good luck.
I don't know all that much about Tap. treatment as far as symptoms.
I have read that Tap. (ATD) treatment does not cure, only brings a person levels back to normal (for a while). You will still have Graves' and symptoms. As long as you have an active thyroid, the antibodies can still attack and keep you rendered with symptoms.